Hi
I am currently undiagnosed and this has all come as a bit of a shock to me. My gp has always told me I have ibs but recently she told me to give a stool sample to check calprotectin levels. She called me Friday and said it has come back high indicating inflammation and likely ibd. I've been referred for colonoscopy. I'm also terrified it's cancer.
I've always had tummy troubles since my teens. I'm 33 now. At 23 I contracted campylobacter and was severely ill for at least six months afterwards. I was passing blood and mucus for months, sometimes no actual stool. I had a sigmoidoscopy and was told I had ibs. I don't think biopsys were taken.
I've always struggled to digest vegetables. I would have terrible bloating and wind after them. I would also have bouts of diarrheah depending on what I ate. I just thought it was normal.
I then developed an anxiety disorder at 30 and well the tummy troubles sky rocketed. I was told I had ibs and gastritis. Then I had my second baby a year ago and I started to eat healthy and noticed I was having loose stools every morning. Normally just once per day. I also was sensitive to certain foods for example olive oil. This would give me stomach cramps and diarrheah.
I then got a bout of gastroenteritis about 5 weeks ago and thing have been terrible since. I've got mucus in every stool. I sometimes feel constipated. I've been to the toilet 3 times in the past two hours. Started off formed stool then diarrheah. I have an ache at my right side of my stomach.
I'm not anemic although was severely so during my pregnancy and. Directly afterwards almost needing a blood transfusion. After giving birth I began to get abscesses and had to have surgery for one. Doctors kept asking me if I had any autoimmune diseases to which I said no. I also suffer from mouth ulcers maybe every few months. My haemaglobin is now normal without supplements but my b12 is borderline and so is my folic acid. I took supplements for a few weeks and the levels came up. I then stopped and I retested 6 months later and they had dropped again. But my gp says they are still normal even thought they are like one point in the 'normal' range and keep dropping!!!
In the past 4 years I've just not felt 'well' and I've had numerous tests like abdominal ultrasounds, chest X-rays, abdominal MRI, throat scopes, bladder scans, ovaries and uterus scans. Millions of blood tests including seeing a haematologist who ran panels for tumours (I was starting to worry about cancer), all of which has been normal. And I've been told it's just anxiety and ibs.
So can I ask does any of this sound like ibd??
Thanks and I'm sorry it's so long!!!!
I am currently undiagnosed and this has all come as a bit of a shock to me. My gp has always told me I have ibs but recently she told me to give a stool sample to check calprotectin levels. She called me Friday and said it has come back high indicating inflammation and likely ibd. I've been referred for colonoscopy. I'm also terrified it's cancer.
I've always had tummy troubles since my teens. I'm 33 now. At 23 I contracted campylobacter and was severely ill for at least six months afterwards. I was passing blood and mucus for months, sometimes no actual stool. I had a sigmoidoscopy and was told I had ibs. I don't think biopsys were taken.
I've always struggled to digest vegetables. I would have terrible bloating and wind after them. I would also have bouts of diarrheah depending on what I ate. I just thought it was normal.
I then developed an anxiety disorder at 30 and well the tummy troubles sky rocketed. I was told I had ibs and gastritis. Then I had my second baby a year ago and I started to eat healthy and noticed I was having loose stools every morning. Normally just once per day. I also was sensitive to certain foods for example olive oil. This would give me stomach cramps and diarrheah.
I then got a bout of gastroenteritis about 5 weeks ago and thing have been terrible since. I've got mucus in every stool. I sometimes feel constipated. I've been to the toilet 3 times in the past two hours. Started off formed stool then diarrheah. I have an ache at my right side of my stomach.
I'm not anemic although was severely so during my pregnancy and. Directly afterwards almost needing a blood transfusion. After giving birth I began to get abscesses and had to have surgery for one. Doctors kept asking me if I had any autoimmune diseases to which I said no. I also suffer from mouth ulcers maybe every few months. My haemaglobin is now normal without supplements but my b12 is borderline and so is my folic acid. I took supplements for a few weeks and the levels came up. I then stopped and I retested 6 months later and they had dropped again. But my gp says they are still normal even thought they are like one point in the 'normal' range and keep dropping!!!
In the past 4 years I've just not felt 'well' and I've had numerous tests like abdominal ultrasounds, chest X-rays, abdominal MRI, throat scopes, bladder scans, ovaries and uterus scans. Millions of blood tests including seeing a haematologist who ran panels for tumours (I was starting to worry about cancer), all of which has been normal. And I've been told it's just anxiety and ibs.
So can I ask does any of this sound like ibd??
Thanks and I'm sorry it's so long!!!!
