Hello, I hope you don't mind me posting here before I am diagnosed, but I am not coping and I don't know where to turn. I've had the calprotein test which has shown moderate/high inflammation, and blood tests show the same. My doctor has said she is pretty sure it's crohns.
I don't know where to start really. I'm sorry - this is probably going to be a very long post! I've been really suffering with depression and anxiety, I thought that was causing a lot of my symptoms as I've always had a nervous tummy. The last three years have been bad, with a couple of periods where things were very very bad in terms of my tummy issues. The past few months have been even worse - I have constant pain, nausea, a hard lump on my left side, diarrhoea (most days going 4 times or more plus maybe once a week having to run to the loo to pass just fluorescent yellow water - sorry for being graphic), constipation at other times, and only being able to do tiny thin rabbit size stools, stabbing pains in my stomach which take my breath away, and my stomach is really really really loud. It's so embarrassing - I can't do anything it happens whether I eat or not, if I need the loo or not, it's so loud and makes the worst noises, from growling to farting noises, bubbling, popping, it's insane. It's ruining my life. I can't leave the house, and am scared I will lose my job as I do community work, and I've had to go off sick. I can't take any medication as my doctor says without a diagnosis they may do more harm than good, so basically I just have to carry on like this?! The waiting list for the colonoscopy is until December at the earliest. I don't know what to do. I'm not coping and I can't seem to do anything to help. I've cut so much out my diet - only drinking water, I'm vegetarian anyway, but now avoiding dairy and eggs too, I've cut gluten out my diet, and soy. I'm avoiding too many vegetables. Nothing is making any difference. This sounds ridiculous but I've always had a bit of a phobia of this anyway (mine and other peoples) since I worked with a mentally ill woman who had smeared it everywhere in her house - literally collected it and put it all over the floors walls, surfaces - it was so bad and since then dealing with even my own makes me feel a bit nauseous! I've read the online advice about how to cope, and I cannot tell you how devestated I felt when the advice included taking a spare pair of underwear and a nappy sack. The thought of having to clean that up, or doing that in public makes me want to die. I'm sorry I know that is so heartless and I know other people have dealt with that, and I'm so sorry - I don't want to offend anyone but I honestly can't cope with that. I'm in floods of tears now just thinking about it, and I've barely left the house I weeks because of it, which is making my depression get even worse.
My husband and I have also been trying to get pregnant for four years, and have had three miscarriages - I've read that crohns can make getting pregnant and staying pregnant harder too.
I don't really know what the point of this post is. I just feel like the world is ending at the moment and I'm really really struggling. Any support or advice would be really appreciated xx
I don't know where to start really. I'm sorry - this is probably going to be a very long post! I've been really suffering with depression and anxiety, I thought that was causing a lot of my symptoms as I've always had a nervous tummy. The last three years have been bad, with a couple of periods where things were very very bad in terms of my tummy issues. The past few months have been even worse - I have constant pain, nausea, a hard lump on my left side, diarrhoea (most days going 4 times or more plus maybe once a week having to run to the loo to pass just fluorescent yellow water - sorry for being graphic), constipation at other times, and only being able to do tiny thin rabbit size stools, stabbing pains in my stomach which take my breath away, and my stomach is really really really loud. It's so embarrassing - I can't do anything it happens whether I eat or not, if I need the loo or not, it's so loud and makes the worst noises, from growling to farting noises, bubbling, popping, it's insane. It's ruining my life. I can't leave the house, and am scared I will lose my job as I do community work, and I've had to go off sick. I can't take any medication as my doctor says without a diagnosis they may do more harm than good, so basically I just have to carry on like this?! The waiting list for the colonoscopy is until December at the earliest. I don't know what to do. I'm not coping and I can't seem to do anything to help. I've cut so much out my diet - only drinking water, I'm vegetarian anyway, but now avoiding dairy and eggs too, I've cut gluten out my diet, and soy. I'm avoiding too many vegetables. Nothing is making any difference. This sounds ridiculous but I've always had a bit of a phobia of this anyway (mine and other peoples) since I worked with a mentally ill woman who had smeared it everywhere in her house - literally collected it and put it all over the floors walls, surfaces - it was so bad and since then dealing with even my own makes me feel a bit nauseous! I've read the online advice about how to cope, and I cannot tell you how devestated I felt when the advice included taking a spare pair of underwear and a nappy sack. The thought of having to clean that up, or doing that in public makes me want to die. I'm sorry I know that is so heartless and I know other people have dealt with that, and I'm so sorry - I don't want to offend anyone but I honestly can't cope with that. I'm in floods of tears now just thinking about it, and I've barely left the house I weeks because of it, which is making my depression get even worse.
My husband and I have also been trying to get pregnant for four years, and have had three miscarriages - I've read that crohns can make getting pregnant and staying pregnant harder too.
I don't really know what the point of this post is. I just feel like the world is ending at the moment and I'm really really struggling. Any support or advice would be really appreciated xx
