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so, knowing that you could pass this (crohns/colitus etc etc) on to a child if you were to ever have one, would you?

what ratio would be where you draw the line between yes and no? 1 in 5, 1 in 100?

just a thought that is very much on my mind at the moment, and i haven't come to a decision yet.

but i am afraid to pass this on to a child....
 
I understand your fears. It certainly isn't an easy decision. However, if I have the numbers right, the worst case scenario is that your children stand a 1 in 10 chance of getting IBD... and that maybe you can reduce it by limiting the number of a/b's they take as children... Not the best odds, but far from the worst, either.

And let me throw another perspective on it... I have it, you have it, we all have it. Anyone with it consider themselves 'superhuman'? Anyone with it seriously considering suicide? We've learned to cope, to adapt, and to enjoy our lives as they are with this disease. Imagine if our parents could have screened for the genetic marker for this disease; and were then given the option to terminate their pregnancy... None of us would have lived to enjoy the lives we have had.

All life is a gamble. Life with IBD is tuff... but there are far worse things out there...
 
I had my first child before I was diagnosed, and had my second after diagnosis. The thought of passing it on never occured to me until I joined the forum, but it wouldn't have stopped me. Yes, having Crohn's REALLY sucks - but I'd rather be alive with Crohn's then dead. Also, I'd rather have children with Crohn's than no children. I was 35 when I had my 2nd child, and they recommended an amnio, but I had the same answer. I'd rather have a child with down's syndrome than none at all, so I didn't take the test Selfish? Maybe. They are the world to me. Hopefully my kids will stay healthy.
 
a really difficult topic to put a definite opinion on, personally.

i think if we were 100% sure to pass on Crohns to all our offspring, somehow that would make for an easier decision. but it seems to pick & choose at random which family members it affects. i had two siblings who didnt develop crohns, but were brought up in the same environment as me, and the same childhood diet.

we have the advantage of being informed, and from the information and studies we know of, can make a really good effort to avoid the suspect factors which could bring Crohns on, in our kids. plus if its a 1/10 chance as Kev says, i think i would say its a risk worth taking.

life is crafty - we can spend so much time and effort worrying about and avoiding certain things, and then something we didnt expect comes along. my kids dont have Crohns, but they do have other problems. but i wouldnt be without them for the world.
 
I always thought it was a 1 in 3 chance, although that might have been if both parents had the disease.



--- Edit ---

While googling for numbers, I found out that a Scientology audit can cure Crohn's! Praise Xenu!

--- End Edit ---
 
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Wow...this is a touchy subject and I will be careful not to offend. While I was pregnant with my first child I developed my first Crohn's flare. I was diagnosed one month after I had him.
My husband and I originally planned to have two or three kids. We have since decided to be grateful for the one healthy child we have. Besides he keeps us busy/tired as it is. Our reasons for having just one are not just because of the potential genetic factors that we could pass on. I don't want to risk getting as sick as I did with my last flare (I nearly died). Therefore I do all that I can to avoid making my disease state worse.
I think that it is a personal decision that we should respect.

You said I'd rather have a child with down's syndrome than none at all

Touchy subject nearing prolife and pro-choice. My two cents is that you can have a child that isn't necessarily blood related (i.e. adoption). My mom was adopt and many wonderful people I know were adopted.
I would say that your statement is "selfish". There are so many children that are healthy that need to be adopted. Choosing any degree of suffering for someone seems unfair. I'm not saying I wouldn't have wanted to be born. So that is a tough situation.

Kev asked if Crohn's has made anyone suicidial. Yes, it has. There have been people on here that have expressed depression and possible suicidial thoughts. Including very young patients. The word suicide isn't always used but "giving up" is eluding to suicide.

During my second hospital stay I was in such a bad state that I had a fleeting moment where I empathized with people who contimplated suicide. I was very near not wanting to deal with the pain.

Also, I did almost die from crohn's. We aren't just talking about a simple cure that doctors have a handle on. It's complicated and different for each person. If I hadn't been so young when I entered the hospital with a lung disease caused by my crohn's I would have died. And it was only because I was given IV chemotherapy that I survived. Knowing those possibilities for my potential offspring I would never purposely have another child.
I will continue to fight hard for a cure so that if my son has to face crohn's I will know I have done all I can to make it a less painful situation.
Down Syndrome is hardly a comparison to crohn's. I get where you were going with it but it is a complete "apples to oranges" comparison.
All that said. I will support and send well wishes to anyone who continues their family. I am not one to judge because of how far from perfect I fall.
 
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I won't be having kids. Not all because of Crohn's Disease... I just simply don't want them... however, being diagnosed with Crohn's just fuels the fire for me.

My 2 mains reasons for not wanting children are because I'm afraid I would make a bad kid (either emotionally, physically, or socially and either caused by my bad parenting or just genetics) I'm a perfectionist and I just can't take the risk of me screwing it up. Also, I do not want the responsibility of having a child.

I do agree that this is a touchy subject. I am not going to judge anyone based on their personal decisions though.
 
I guess it's different because I am a man but if I got married I would definitely want kids. I had this discussion in high school and everyone couldn't believe that if my kid had 100 percent chance of having Crohn's that I would still have the child. I wouldn't be who I am without Crohn's and I wouldn't take that away from anyone. BUt yeah this is a touchy subject so I won't say anymore for fear of going into other territories.
 
Yes, this is a touchy subject....but my personal issue was since I was on my own for a bit with a 3 year old and I had a miscarriage before and after, I felt it wasnt going to happen. I had the operation and chose not to have anymore, costs, and I wanted my daughter to have the good things in life, so I made a choice. After that, I started to flare and was so badly infected, and when I saw my first Gi, he asked if I was planning on more children. I said no and he said because of the medications you will be taking, it wouldnt be in your best interest to become pregnant, so I think I made a good personal decision. All my siblings have IBS in one form or another and of all the grandchildren, 13 and 6 great grandchildren, none so far have any form of it. (Knock on wood) I feel it skips generations, and usually carried throught the mothers. Having children or not having children is a personal issue, and alot of people are choosing not to have children at all. Talk to your GI, if you are planning, and I have heard many have healthy children.
 
Butt-eze - were you REALLY careful not to offend? You might have tried a bit harder at that.
My statement had NOTHING to do with pro-life or pro-choice. My decision was made to get pregnant at the age of 34, knowing that I would be 35 at delivery. When they asked if I wanted the amnio, I said no. That's all.
I don't actually think that my decision was selfish, but I figured other people would. Our family was not complete with only one child. The second my daughter arrived, it was. I couldn't live my whole life wondering "what if...".
I realize that adoption is available. A very good friend of mine adopted 4 kids, and 2 of them have health issues that were not diagnosed at birth. She took a chance, as did I.
Let me explain my apples to oranges comparison for you. Down's syndrome is something that I could risk my child having, and the older I am - the greater the risk. Crohn's is something that I could risk my child having, and since I have Crohn's - the greater the risk. How is that not a good comparison?? My grandma died of ovarian cancer. My mother and I are at more risk for that than the general population, but I don't think that's a reason not to have children. If you do - that's your opinion, and I respect that for YOU, but I truly won't judge.
 
Just a quick point of clarification.. I said is anyone on here seriously considering suicide... That is present tense... AND serious... as you are in the process of actually planning it/carrying it out... NOT a case of it crossing one's mind when a person is first diagnosed, or in a deep depression N handed another big setback.

Guess what I tried to express is that life is prescious, and all too fleeting... and that there are fates worse than IBD... AND that science is working on a cure. I would also applaud (my personal opinion) the sentiment that ALL children are lovable, no matter what afflictions befall them. And, as an afterthought, that there are two prime age groups when IBD is prone to strike.. between 15 - 25 AND 45 - 55... So, even tho there is an increased risk of IBD due to genetics, a child may be an old fellow like myself before it rears it's ugly head. I think that the notion of not having children for fear of exposing them to the perils of life, is faulty logic. All life really requires is a chance... no parent, regardless of how wealthy, healthy or wise... can guarrantee their children a tomorrow, because they cannot guarrantee one for themselves. And one final bit of clarification. I am proposing that the genetic factor/risk of IBD isn't an end all, be all argument against having children. However, someone who doesn't want to have kids or become a parent certainly has no reason to apologize, or explain, or to feel the need to 'defend' their choice not to have children. We aren't put on this earth to simply procreate.. it is NOT wrong to not want to be a parent. Parenthood is without doubt the hardest role I've ever tackled, and tho I love my children with everything I've got... IF I were asked to be a parent again, I would really have to think about it. It takes a special courage to run that guantlet again, or a great deal of love (or too much alcohol and some cheap, no name condoms)..

Anyway, to recap.. let's all be sure we are on target with this topic, because it is a consideration for someone with IBD.. and, tho I'm paraphrasing just a bit..

Should the genetic risk factor of IBD BY ITSELF rule out the possibility of being a parent?

From my perspective, I have it, I know I have it, and yet I do NOT regret the day I was born. There have been some bad times, there will definitely be more
BUT there has also been some fantastic times, and I have 2 of the greatest kids. And that's something I would NEVER change, nor do I think I have the right to decide their future BASED on a possible, but no where near certainteed risk. Just my 4 cents worth..
 
I have to say, I agree with you "my butt hurts" as my situation was similar to yours in fact almost identical. I had my son years before I was diagnosed and 3 years after being diagnosed (once I was in remission) I had my daughter. I was 30 when I became pregnant with her and was also advised to have an amnio, I was even told I was at high risk of having a downs baby. But......I declined the test and went on to have a perfectly healthy baby. I have to say though, the reason why I declined the test was purely because whether my child has downs or crohns etc I would love them just the same and support them in every possible way. I would hate to think that I have missed out on something so precious as a child because it may have something wrong with it......a bit of a harsh perspective on life if you ask me. Its a bit like saying.....if its not perfect ....I don't want it!!! I personally think I am the best person to advise my kids should they develop crohns. Hopefully they will both have healthy and fulfilling lives but if they do develop crohns then, we deal with it.


Ruth
 
My Butt Hurts: If I did offend you, I apologize. It is not my goal to be the judge and jury. I think that children are wonderful and would do anything for my young boy (2 1/2). I'm not always great at explaining myself or gathering my thoughts in the right order.
For me and my family I wouldn't have another child. I'm not saying I would love my son less if he developed crohn's or had been born with down's. I'm saying that if I knew the risk was high I wouldn't take the risk. It's not about love or nurturing someone with a disability or disease. It's about not wishing this on anyone. Not even an enemy!
We as parents choose to bring children into this world. But I would never risk a 1 in 10 (let alone 1 in 1000) chance that my child might suffer what I have gone through.
I simply think that if you want children and need to complete your family that you can add to it with an adopted child (only if you feel worried about that child's health). However, if you are willing to take that risk on behalf of your child it is your right.
I agree with Kev that we are able to find ways to cope and make it through this disease. I also agree with Jeff that I wouldn't be who I am without going through this mess with Crohn's.
I too declined to test my baby for any potential problems. I am married, in love and saw no reason to question how I would handle a baby with a disability. It was still mine and I was going to have him. I was just lucky he was healthy and unlucky that I had a crohn's flare.
I think Kev has some of the best points about parenthood and I would agree to the level of difficulty.
Anyways, I wish everyone the best of luck in their decisions. Ultimately, I wish for a cure so that discussions like this don't even need to be had.
 
i dont think anyone can judge another person regarding this very sensitive subject, we can only give our own personal feelings on the matter - and the very fact that this topic has been brought onto the forum for discussion is something to be commended. such a large proportion of Crohns sufferers will at some point ask themselves this very question - and possibly never find such personal accounts of Crohns sufferers' feelings, opinions, and experiences in this matter, as they will do in this thread.

the implications of getting a Crohns diagnosis runs very deep, deeper than most people would realise at face value. couple that with the massive decision of whether to have a child or not, and its not surprising its a very emotional topic.
 
Well, curently here, the latest numbers say that a person with no family history has a 1 in 200 chance of getting it. So, with no inherited genetic factor, you could sceen all you want... you still wouldn't/couldn't guarantee a child won't get IBD. I dont' know how the folks with zero history of this disease get it... gene mutation?
Divine intervention? The rhyme, reason, wellll, there are just something outside of our ken. Now, this is going to sound heartless, and it's a point that I for one just shudder at... but there are only two things I have guareenteed my children by bringing them into this world. The 'chance' of life, and.. inevitably.. their 'death'. Living ones life, or ones' childrens life, by what we 'predict', well, I repeat... its' faulty logic. I'm going to go into a long winded story, longer than even my usual... cause I think this is tooo important a topic of discussion. I'm not trying to ram my beliefs down the throats of others.. to each their own, but I have had experiences in my life that... have given me a different perspective. And unless someone has had a similar experience, you just can't feel it really.

My oldest son was a planned pregnancy. And, an idylic one. Literally. 2 weeks before his 'due' date, his mom went into labour, we rushed to the hospital, but after hours it was determined to be 'false labour'.. Two weeks later, again we headed to the hospital .. right on schedule. After 36 hours of very hard labour, docs had to perform a C-section.. placenta had displaced, blocke the canal. it was touch N go... mother nearly died.. my son started his life in a coma. lack of oxygen, mercurium... rushed to a neo natal intensive care facilty 30 miles from where we lived. apparently, it wasn't false labour 2 weeks before. the timing from the ultra sounds was off by 2 weeks... and in those next two weeks he'd slowly weakened.. hard labour did the rest. by the midway mark of his 3rd day in hospital... butterfly IV's all over his body.. in an incubator.. head shaved, the alarms going off every few minutes when his heart or breathing stopped (I was by his side for most of it.. shuttling back n forth between the 2 hospitals). Well it isn't for the faint of heart to become a parent, cause no one prepare you for this. The director of the NICU laid it out for me.. he was rated a 3 out of 10. His organs were shutting down... his kidneys had just stopped.. and if anything else stopped, the only two recourses were to stop oxygen, turn off the alarms, let him go OR air evac him to Halifax, put him on a list for a kidney transplant..
hope things turned around. Even in that event, the odds against him were sky high.. she advised that it would be wise to start making arrangements, see the local funeral director,, just in case there weren't any miracles. I left there, drove the 30 miles (to this day I don't recall 1 second of that drive) stopped in to see my folks... have a man to man talk with my father.. which actually ended up me bawling like a baby... and getting his offer of meeting with undertakers.
Then I drove to the hospital where my wife was. That trip I remember as I was frantically trying to come up with a plausible story that I could fabricate so that I didn't have to tell her the truth... she wasn't completely out of the woods yet herself.. and I didn't know what the shock of the truth would do to her health.

I needn't have bothered... I'm not a very good liar. No poker face. She knew I was keeping his extremely seriois condition from her, and her aunt worked as a nurse in the hospital where the NICU was.. so in the midst of my journey, she'd called... and had been told chapter N verse. How hopeless it all really was. He really wasn't supposed to last the afternoon.. Instead of folding, she asked her aunt to perform an emergency baptism.. which her aunt did. Snuck into the NICU, went to his incubator, blessed N named him. Within 30 minutes, a miracle. No ****! No hype! He did a complete 180. Literally gained ground by the minute. Now, at my lowest points, I told the docs I didn't care if he had an IQ of 40, if I had to wait on him hand N foot, as long as they kept him alive. It was a moot point. His life was out of their control.. I made the same bargain with God. You folks have no idea how hard N often I prayed. I dunno if they was 'divine intervention', whether it was sheer luck or pre-ordained destiny. I just know my son is alive, and well.. intelligent, handsome, healthy, a musical prodigy... and I've come as close as any parent can to having lost a child w/o actually losing one... And I wouldn't want to go any closer. So, to me, thanks to this.. and other incidents along the way.. I can only repeat that none of us have guarantees, we can't pass them along to our kids, we can't demand any up front before we have kids... and to think we can means we are only fooling ourselves. Life is just too prescious, IT deserves every chance we can give it..

OK, jumping down off the pulpit now.
 
Incredible story Kev, I didn't know that. That would break down anybody, no matter how ready one wouldv'e thought they were prepared for life. Uplifting though, nonetheless.

On the matter, I agree with many of these points that you cannot guarantee a thing to any offspring, it's a roll of the dice no matter what your own genetics are, whether you have IBD or not, one cannot rule it out of a child, when the odds are stacked low for IBD, as in you and family haven't ever had history, you're still at risk of having IBD, or yet another complication arise. One cannot bring new life into this world without risks whether it's genetic, or environmental, whether it arises at birth, or decades down the road. Crohns has taken much from me, and I still wage battle in a tug of war with it to get back what is mine, what I want to have because I worked for it. I will not let Crohns take away the chance to have a son or daughter one day either, and yes, I can see how that can be interpreted as "selfish"...but to that, I point out my point above, there are no sure things in life, except the end of it. I would never call my parents selfish if, hypothetically, they told me they had learned that I had a great risk (or a sure chance even) of getting IBD just before their choice to have me. I'd love them the same. I would be glad they had me, I do not regret my entry into this universe, nor should my parents have.

I have a history of bipoloar, depression, some anxiety, and obviously, Crohns as well....my gf has her own history/family history of issues she'd hate to pass on. I worry I'd pass on anything negative, I probably have recessive genes that add to the troubles that I am not aware of too. For all I know Muscular Dystrophy is higher in my DNA or some other syndrome or disease, nobody can dictate the outcomes of such a gamble. Even if I was told I had the lowest chance a doctor had ever seen of creating a troubled offspring, that is not a guarantee. But I've wanted to be a father since I was a little boy, once the time was right. At this stage it is not, I'm not ready, but Crohns didn't deter or cancel that urge, it simply modified the parameters of it.

But even two completely issue-free adults can bring into this world a child with complications, and YET, even if the child had none, can one guarantee that things out of their control, like fatal car accidents, murder, etc...would be absent?? No, nothing has us covered from the unexpected, we could drop at any moment and all we can do is keeping playing, keep rolling the dice, and continue hoping for the best, preparing for the worst (provided we don't obsess over it).

Edit: Like it's been said to everyone else by others before, I mean NOT to say you're right or wrong in your choice with children, just expressing my views.
 
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thankyou all so much for some very helpful and inciteful posts on this subject.

i suppose my main focus for having children would be my wife.

my arthritus is slowly getting worse, hopefully meds can help that, but (and i know this is a what if?) what if something bad happens with my condition, especially my arthritus which is causing more problems than the crohns at the moment.

do i really want to "burden" my wife with what could someday be a sick child, especially if i'm not going to be 100%.

and to be honest, what if something bad happens with me (unstoppable bleed?), and i should die, then i leave her with a sick child?

i know these are all worst possible outcomes, its just something i need to look at from every angle.

thanks for all your replies.
:)
 
katiesue1506 said:
I won't be having kids. Not all because of Crohn's Disease... I just simply don't want them... however, being diagnosed with Crohn's just fuels the fire for me.

My 2 mains reasons for not wanting children are because I'm afraid I would make a bad kid (either emotionally, physically, or socially and either caused by my bad parenting or just genetics) I'm a perfectionist and I just can't take the risk of me screwing it up. Also, I do not want the responsibility of having a child.

I do agree that this is a touchy subject. I am not going to judge anyone based on their personal decisions though.

I must say that I'm mostly in agreement with the above.

However, if I really felt ready to have a child, I don't think I would let anything to do with Crohn's influence that. COnsidering that my mum doesn't have Crohn's or anything similar, but my nan does - it's very unpredictable, I think. And even if the worst did happen - I would have a lifetime of experience with the damn disease and would hopefully be able to help them. (I will admit I've had times where I've wondered if it's worth putting up with Crohn's - but that's the exception rather than the rule)

THe only thing I might be a bit hesitant on is my own ability as a mum - crohn's makes you quite lethargic at the best of times and with a child it would be worse, probably.

It's a moot point since I don't want kids - and actually, I would consider adoption if I ever did change my mind.

My opinion is not much help, considering it's hypothetical, sorry!
 
Interesting topic indeed. I had my children pre diagnosis (hindsight 20-20 - symptoms long before children came in) but for me, given the stats, I wouldn't have changed anything even if I had the dx before the kids came along.

Of course I question stats a lot as my hubby and I had triplets....and the link is supposed to be through me and there is 0 history on my side of the family. Go figure. And yes, they were naturally conceived...no drugs here. I do wonder about the possibility of the kids getting CD but no more than heart disease, diabetes or cancer which are very prevalent in my and my hubby's family. In my humble opinion, there are so many things out there that can go wrong, I don't worry about it, but try just to live each day to its fullest - finding something to truly enjoy even if it just a cup of coffee (decaf! :>)) with a real friend (geez, I sound so hallmarkish)...

I think part of this also comes from the fact my BF lost her hubby at 32 with a heart attack in his sleep and a 2 year old at home too - made all of us in our little gang sort of wake up and re think everything we were doing and not doing with our lives and that lead into my parenting thoughts too as my boys were only 5 months old at the time and sure, I was slightly overwhelmend...40 diapers a day can do that to a girl.

But seriously, my kids keep me smiling (most of the time-they are 8 (girl) and 5 (triplet boys))...and yea, it's tiring, and I have some worries, but I really wouldn't change anything.

But, I only speak for myself. Any decisions involving parenting are so very personal, imo.
 
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Back again.. Not to try to sway opinions on here pro or con about having children.
Being a parent is the most challenging thing a person can do.. if you're devoted to it. But it can also be 'THE' most rewarding.. but, again, no guarrantees.

However, I popped in because... whatever major life decisions one is faced with in living with this disease... essentially a person has a couple of choices. That is to see the disease as the biggest part of one's life, and live in constant fear of the 'worst case' scenario... I think that's a knee-jerk, almost involuntary reaction... I think this disease can knock a person off centre.. but you can fight to return to an even keel. Don't get me wrong, deluding oneself into seeing a life with IBD as a bed of roses won't work either.. I think both are the ying and yang of this disease... too pessimistic or too optimistic. If one looks past this disease... there are unlimited ways a persons life can go offtrack or haywire. I have IBD, but in the overall life I have lived, it's just another rainstorm in a sea of cloudbursts, drizzle AND SUNNY days. When I first got ill, it was all I focused on... As time has passed, I've slowly come around to seeing my life realistically. This disease isn't my life... it's a part of it. And I vow never let it become to be all of my life. I can't make the bad go away, but I can add in good whenever or wherever I can... And becoming a parent gave me more joy than anything else
 
At this stage in my life IMO, there is no greater accomplishment than having children. If I were given a choice: A)being disease free but not able to have children or B)having Crohn's disease but able to have children. I will choose (B) everytime without hesitation.

There was a time in my life when I absolutely did not wan't kids. I had started a small Prepress business and was working 7 days a week just to make ends meet. That was a very stressfull time and my business was top priority. All I cared about was being successfull and making lots of money. I would have been a horrible father. Well as it turned out I was only semi-successfull and didn't make lots of money. After 11 years my business partner and I shut down operations and got real jobs.

I can totally understand those that do not want to have kids. It's hard enough to struggle through your illness on a day to day basis.
 
Kev said:
I understand your fears. It certainly isn't an easy decision. However, if I have the numbers right, the worst case scenario is that your children stand a 1 in 10 chance of getting IBD... and that maybe you can reduce it by limiting the number of a/b's they take as children... Not the best odds, but far from the worst, either.

And let me throw another perspective on it... I have it, you have it, we all have it. Anyone with it consider themselves 'superhuman'? Anyone with it seriously considering suicide? We've learned to cope, to adapt, and to enjoy our lives as they are with this disease. Imagine if our parents could have screened for the genetic marker for this disease; and were then given the option to terminate their pregnancy... None of us would have lived to enjoy the lives we have had.

All life is a gamble. Life with IBD is tuff... but there are far worse things out there...

Just wondering - do you recall where the one in ten odds of children getting IBD are from?

Thanks.
 
Dad_01.. The odds I gave as 1 - 10 are for folks with a family medical history of IBD. Frinstance, since I have it... my children are looking at about 1 chance in 10 they will develop it.. so, these aren't the odds for everyone. just those who have a 'genetic' pre-disposition for developing it. now, as to where I drew these ###s

My GI told me there was a 5 - 10 % 'increased' risk of my sons getting my IBD
A columnist reported that the odds of a child getting it were 10 - 20 TIMES greater (I e-mailed N asked for her source, cause it was at odds - pardon the pun - of what my GI had told me - the journalist never responded). Then, not long ago.. someone on here posted a link to a fellow from the UK, a guy who made his living as a stand up comic... and a short documentary they'd filmed on him N his life with IBD. In that film bio, they interviewed some of the 'leading' authorities on IBD. One of them, I forget what his name N title was, explained the 'odds' of the genetic connection.. Essentially, if a person has 'one' parent with IBD, they run about a 10% chance of getting it... And since latest figures of overall occurence of this disease is about 1:200 (depending on where you hail from)... then for someone with a genetic risk factor, that equals about a 10 - 20 times increase... As 1:200 is 0.5% risk.. 10 x 0.5 = 5%, well, the rest of the math is pretty simple. I can see from this where a.) doc might mis-interpret the risk for children of a patient with IBD b.) a patient might mis-interpret the 5% - 10% risk a doctor would advise them of. now, that is my 'interpretation' of the various numbers, odds, etc., I've heard bandied about.. but it does make sense... The 'genetic' element really only factors into anything for someone of a mind to have more children. If you are a child of someone with IBD, the 'die' is already cast.. If you are a crohnie, and already a parent, the same goes. If you are a crohnie, and considering children... then you have a decison to make
 
I like the idea of only the living worrying about dieing. And on a species level I would rather people try and have children no matter what then not try at all.

On a personal level if I spend all my time in and out of the hospital I doubt I will want to have children. If I don't, I do.
 
Hmm, well... if this species didn't have an urge or two... we all wouldn't be here.

Today, news out of China is that they will relax the 1 couple, 1 child law for those whose children perished in the earthquake. But just for those... Having children is one of those that is easy to talk about 'in theory'.. yea, nay or whatever.. But, if the addage about 'forbidden fruit' really holds water, then I wonder what this discussion would sound like if we were all living there.. you know?
 
AbstractDonut said:
I like the idea of only the living worrying about dieing.

You've talked to the dead about their care-free attitude about death? I'm confused here.

If you mean what I have to guess what you mean then it enters the realm of talking about an afterlife.

I've heard humans are the only species aware of their own demise, though. Makes sense, we (many of us) are the most developed species known.
 
Eh, I've heard of Elephants having funeral rituals and mourning for years after a mate has died.

I guess I'm trying to say that if you could live forever you would not worry about death. And those that want to live forever may not be living if they do. Its that death defines life. Or as Kev said the only guarantee in life is death.

Us worrying about whether to bring a child to life means we worry really about the child's death. And the child would not be alive without that death.
 
I personally am not worried about bringing a child into this world based on death, I'm worried about the quality of life the child would have. Everyone knows we all must die... it is a part of the process. But running the risk of producing a child who would constantly struggle through life or not have a good quality life would make me feel horrible. I guess it is a little selfish on my part to say that I don't want to have a child because it would hurt me to see them struggle. But this is where I avoid that all together and don't have children.

Some people are great parents and are made to parent- I, however, feel I am not. I have so many things I want to do and places I want to go that I just feel I wouldn't have the time, patience, or resources to handle having children. I want to make a difference somewhere and I do not want to risk my career affecting the amount of time and love I could give to my children. At this point in my life; handling college, a job, a relationship, Crohn's Disease AND a dog is enough. Sometimes I get so frustrated with my dog even... so why would I want to put a child through that?

Keep in mind that this is all a personal feeling and it rests on the way that having a child right now would fall in my life. I truly believe that the choice to have a child depends on the amount of resources, time, money, and patience each individual has. I don't have any of those at this point in time. A lot people are willing to make sacrifices to get the time, money, resources and such to make room for a child and receive the reward of parenting, but I am not.

-Katie
 
Katie:

That was perfectly stated. That was what I was trying to say but did a horrible job of getting across myself. Thanks for sharing your views and please don't apologize for sharing where you're coming from.

Amy
 
A persons choice to have or not have children is their alone, and doesn't require defending. I personally feel that raising children while a parent has IBD would be extremely difficult... but that hasn't stopped numerous people with it from doing so. I don't think it should be presented as an insurmountable obstacle to having children. I also don't think that a group of people with IBD should publicly seem to promote that having IBD, and the genetic added risk it presents to as yet unborn children, .. makes having a family out of the question

I mean, we each must make these decisions for ourselves, and rightly so. But we are also, by our very existence here.. potential role models for folks with the disease, or even 'examples' for just the curious onlookers. It may seem its only a philosophical question... but consider this 'theoretical scenario'. Take a couple... one with IBD, one without. Married, with kids. They then divorce. A custody battle ensues. The spouse minus the IBD puts forth that custody to a person with IBD is out of the question; as being a parent while having IBD is just too difficult... And the court needn't take the spouses word for it, just go to this forum and read the negative comments AGAINST having children by people with the disease, being a parent.. coping with that AND with IBD. I know that's a stretch, a long one. It could just as easily be an adoption agency considering a potential adoptive family with 'active' Crohns'. OR, with no active Crohns, just a family history of it

Like, I'm personally torn over this... The last few years.. man. If this had hit me BEFORE I became a parent, I'm confident that I would have passed on having any. Having had them, pre illness, I'm SOOOOO glad this 'hit' after theyd' come along. As for whether one SHOULD even conceive when they have this, with the genetic risk... Two perfectly healthy people with no medical history of any disease CAN conceive a child with health implications... AND the parents also can develop health issues... or die in an accident, well.. the list of 'possible' bad things that can happen to parent, or child, or both... just goes on N on forever.
My point? Don't let the fears of the 'unknown' prevent you from living your life.
 
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I have a hard time not turning this into a philosophical question. To be honest I would be very worried about the child having a life of misery.

Though the philosophical side thinks that once again its death that defines life. If the child did have Crohn's you would value the life even more if you struggled for it. Each moment of happiness would be a hard fought battle which you won. Every success in the child's life would be that much greater because they did it with Crohn's.

Seems like almost an optimistic, pessimistic question? Do you focus on the happiness you have, or the misery? The interesting thing here is that I've read studies where they say in certain situations it is much more beneficial to be a pessimist. An optimist stupidly gambles when a pessimist cuts their losses.

And back to having kids with Crohn's, having a kid with Crohn's would be like betting on long odds. You have a greater chance to lose, but have a bigger payout if you do win.
 
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Touchy subject indeed.
Two points:
1. If one does have children and pass this on to them they will not be alone just like we are not alone (we have family, friends and each other) and it would be that much easier for them to overcome their disease with a parent that knows exactly what they are going through.
2. Everyone assumes their childrens lives would be absolutely unbearable because they have been there and know what it's like but yet here we are sharing knowledge and helping each other with emotional issues and giving advice and helping each other through tough times as well as the great times.
Common theme to this message:
I have the pleasure of witnessing a forum that embodies some of the lovingest, kindest and mentally tough indivuals in life that would be perfect for raising children let alone children with any sort of condition!
Not to offend anyone but this reminds me of a saying... God places the heaviest burden on the shoulders of those who can bear them.
 
OK, lets really throw some fuel on the fire (and this is potentially very dangerous territory).. AND Please, everyone.. Lets keep it friendly.. at the very least civil. OK?

Without touching on whether terminating a pregnancy is right or wrong, if there was a 99.99999% reliable genetic test that said a fetus 'WOULD' contract IBD, and not might... would you opt to terminate?
 
This is another reason I just skip all of the hairy questions by opting for no pregnancy at all.


I don't have to worry about tests telling me my baby has a disease or some kind of syndrome and then go through the weighing process of whether the baby should live or die.

I will say that I am pro-choice... but I don't want to have to make that decision so I will not be getting pregnant.
 
Kev said:
OK, lets really throw some fuel on the fire (and this is potentially very dangerous territory).. AND Please, everyone.. Lets keep it friendly.. at the very least civil. OK?

Without touching on whether terminating a pregnancy is right or wrong, if there was a 99.99999% reliable genetic test that said a fetus 'WOULD' contract IBD, and not might... would you opt to terminate?

no.

i'm probably not going to be able to put into words exactly what is in my heart on this matter... but here goes. if it were me, then that "foetus" is my baby, and i know we can still live a worthy life with IBS - so that particular diagnosis would not justify my ending the life of the child before it started. kids are born with all kinds of disabilities, and as much as i wish that no child should suffer with their health, it is not up to the likes of me to determine who has the right to live and who doesnt.

having said that, if after extensive tests, i was told my child would have horrific health issues, no quality of life, a sentence of pain and suffering for its whole life - then yes, i would consider termination seriously.
 
We all must live with the decisions we make and that is one I hope I never have to deal with. I couldn't live with myself if my wife and I agreed to terminate her pregnancy because at the time we were told there would be a lifetime of horrible suffering for our child and then two years later a breakthrough medical procedure would have allowed he or she to lead a normal life. Where do you draw the line?
 
The other thing is even if your child would definitely contract IBD when would it happen. It could happen the day he/she is born or it could happen the day before he/she dies. You never know. It's all out of our hands and who knows with the improvement of modern medicine and it's great leaps it's been making in the past few years who knows maybe in ten or twenty years there will finally be a cure.
 
I was pregnant with my 2nd child when i was diagnosed but I went on to have a third after a re-section.

I do not consider IBD to be a disease that would prevent me from wanting a child - to be honest there are very few that would have led me to terminate a pregnancy if they were detected but they primarily would cover major physical or mental disability.

My little girl had chronic asthma when she was a baby but I never regretted having her, my youngest has chronic eczema.

To turn the Q around do our parents regret having us because we went on to develop IBD ? Not a bit !!
 
FruitLoop said:
To turn the Q around do our parents regret having us because we went on to develop IBD ? Not a bit !!

nice one!:D

my parents would never regret having me;) but my mum is a little bit of a worrier, and i know she has spent many nights worried sick that this may be something genetic that she has passed onto me.

she doesnt blame herself or anything like that, she just worries.

@ BWS, LOL!
 
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