CHOP IBD session

[Worried mama]

Thinking of attending an upcoming crohns and colitis parent/child session at CHOP. some of chops top IBD doctors will be there. Has anybody ever gone to these before?

Any questions you want me to ask of I go? I can report back!

 

[Clash]

Oh that sound very interesting! I hope you have a productive trip!

 

[crohnsinct]

Cool! When is it? Is it open to non patients? I am in the Philly area often visiting family. Perhaps I could kill two birds.....

 

[my little penguin]

We have gone to that locally from CCFA.
Very informative but not necessarlily new information.
We enjoyed it just from the meeting other parents sorta thing
I know ours doesn't require them to be a patient but you are required to register

 

[Maya142]

We went last year to the CHOP session (M is technically a patient there because we went there for a second opinion). I didn't realize it was open to non-patients, but anyway, it was great! Really liked the slideshows and presentations. Lots of info on Enteral Nutrition, which I didn't know before. There was some info about drugs in the pipeline which I always find interesting (particularly since my girls have been on most things already).

 

[Worried mama]

It's on Sunday feb. 8th from 9am until 1pm. Says it's free and no registration required. It does not say that you need to be a patient...

 

[Maya142]

There were a LOT of people there, so that makes sense. I remember being surprised at how many families there were.
It really was great and informative. There's a panel at the end where some kids and teenagers talk about their experiences.