Hi,
This is my first post. My 7 yr old son has DS & is currently being investigated for Chron's. He's had loose, foul smelling stool in various colors including yellow/tan/orange/maroon/ and some normal color/consistency occasionally with a lot of mucous. He's had upper endoscopy and colonoscopy revealing chronic inactive gastritis and acute duodenitis with focal ulceration. He had an EGD years ago that showed chronic inactive gastritis, too. He's had a complicated medical history including an imperforate anus. Happy kid, still not very verbal and does not indicate pain so that stool was a major red flag. H Pylori negative and now we are in the midst of coming up with a plan to investigate small bowel. He won't willingly drink contrast, not sure if they would be willing to sedate and do capsule endoscopy without knowing if he has any narrowing. So that's where we are at...
I did just read about a white blood cell scan...that looked like maybe it could be an option but not sure if they do that at our hospital. Has anyone's kids had that??
Maybe I should have posted in the not diagnosed yet forum...but was curious if any parents have kids with Down Syndrome diagnosed with Chron's. I really felt like this was a malabsorbtion issue from the start...stool samples were mostly fine...he had 2 calprotectin mildly elevated and a mildly elevated ESR lab. But I just read that chron's could cause the intermittent yellow stools (they aren't yellow totally but there is yellow in them, bulky, sometimes yellow/white) and also malabsorption if it's in the small bowel which is what we are going to look at next....so I'm a little nervous now.
Anyway just wanted to make a post and see if anyone had any input.
Thank you!
This is my first post. My 7 yr old son has DS & is currently being investigated for Chron's. He's had loose, foul smelling stool in various colors including yellow/tan/orange/maroon/ and some normal color/consistency occasionally with a lot of mucous. He's had upper endoscopy and colonoscopy revealing chronic inactive gastritis and acute duodenitis with focal ulceration. He had an EGD years ago that showed chronic inactive gastritis, too. He's had a complicated medical history including an imperforate anus. Happy kid, still not very verbal and does not indicate pain so that stool was a major red flag. H Pylori negative and now we are in the midst of coming up with a plan to investigate small bowel. He won't willingly drink contrast, not sure if they would be willing to sedate and do capsule endoscopy without knowing if he has any narrowing. So that's where we are at...
I did just read about a white blood cell scan...that looked like maybe it could be an option but not sure if they do that at our hospital. Has anyone's kids had that??
Maybe I should have posted in the not diagnosed yet forum...but was curious if any parents have kids with Down Syndrome diagnosed with Chron's. I really felt like this was a malabsorbtion issue from the start...stool samples were mostly fine...he had 2 calprotectin mildly elevated and a mildly elevated ESR lab. But I just read that chron's could cause the intermittent yellow stools (they aren't yellow totally but there is yellow in them, bulky, sometimes yellow/white) and also malabsorption if it's in the small bowel which is what we are going to look at next....so I'm a little nervous now.
Anyway just wanted to make a post and see if anyone had any input.
Thank you!