Colonoscopy biopsys normal - what now?

[CatherineM]

So iv been having all the IBD symptoms, loads of mucus in stools, facael calprotectin was a very positive, all looked ok in colonoscopy, biopsys normal. Can anyone tell me what could happen now. I don't c my consultant till January. Does this mean I don't have IBD or might he do more tests. I'm so disappointed in a way, I no it's good that biopsys were fine but just leaves me with no diagnosis

 

[Ihurt]

I feel for ya, I am going through the same thing with trying to get answers. Have you had your small bowel looked at all? I just had an MRE of the small bowel that did not show anything. I am awaiting the results of the fecal calprotectin test which I should get tomorrow.

I do remember my gastro doc telling me that the fecal inflammation marker tests like lactoferrin and calprotectin are not very reliable. Now I am not sure about that really. I am still trying to learn more about these tests. My gastro doc said that any kind of inflammation or irritation can raise the markers ( I think he meant like if you had a infection of any sort in the gut( parasitic, c-diff, yeast, etc..). I had a raised lactoferrin stool test two years ago, before I even had any gut issues or symptoms, so I just dont get it. There has to be something to it though. Try not to stress out, I know it sucks not having answers. I have a lot of different health problems and believe me, it took a long time for me to even finally get a diagnosis on them. Hang in there.. In the mean time, I would tell your GI doc you are in pain and want some sort of treatment plan for your symptoms. Hang in there....

So iv been having all the IBD symptoms, loads of mucus in stools, facael calprotectin was a very positive, all looked ok in colonoscopy, biopsys normal. Can anyone tell me what could happen now. I don't c my consultant till January. Does this mean I don't have IBD or might he do more tests. I'm so disappointed in a way, I no it's good that biopsys were fine but just leaves me with no diagnosis