Good Afternoon to everyone reading this.
I have been suffering from what some Doctor's call Crohn's and others call UC.
At the age of 18 I was diagnosed and had to drop out of Uni due to a major flare up.
I have been through many different stages of diet and medication over the years, but have found Prednisolone and Mercaptupurine the best for me.
There are some foods that I avoid and for many years hot liquid eg tea,coffee, soup, even hot water would prompt a sprint to the nearest toilet.
My symptoms are very liquid stools, often with blood and mucas, very regular opening of the bowels, and when it is bad, however much I drink, I rarely urinate. My Doctor's told me they thought that was "totally normal for me"!
I am sure many of you will relate to the pain that goes with this.
At one point I was on Prednisolone for the majority of 8 years, and I had a serious addiction to it. Just dropping one tablet would be hard.
To me a good day would be my bowels opening about 8 times, a bad day could be as much as 40 times.
I was offered the Remicade/Infliximab infusions to replace my latest Prednisolone treatment, but after finishing my Prednisolone and having a really difficult few weeks, have now been told my Remicade treatment cannot go ahead on the basis that I have been taking Mercaptupurine before and therefore it is not suitable.
I have an appointment tomorrow at the hospital, but from what they are saying, the only option left is surgery. Because my disease stretches the length of the large intestine, the only option would be removal of the whole lot.
I have been hopeful that a cure would be along before I had to resort to this. Can anyone offer any suggestions?
Even with my issues, I do enjoy a good life and I am a happy person. I am not saying it is easy to cope with an ilness like this, but I do try to get on with things as much as possible and I am grateful I have something wrong with me that not everybody can see like some poor disabled people.
Many thanks for reading
I have been suffering from what some Doctor's call Crohn's and others call UC.
At the age of 18 I was diagnosed and had to drop out of Uni due to a major flare up.
I have been through many different stages of diet and medication over the years, but have found Prednisolone and Mercaptupurine the best for me.
There are some foods that I avoid and for many years hot liquid eg tea,coffee, soup, even hot water would prompt a sprint to the nearest toilet.
My symptoms are very liquid stools, often with blood and mucas, very regular opening of the bowels, and when it is bad, however much I drink, I rarely urinate. My Doctor's told me they thought that was "totally normal for me"!
I am sure many of you will relate to the pain that goes with this.
At one point I was on Prednisolone for the majority of 8 years, and I had a serious addiction to it. Just dropping one tablet would be hard.
To me a good day would be my bowels opening about 8 times, a bad day could be as much as 40 times.
I was offered the Remicade/Infliximab infusions to replace my latest Prednisolone treatment, but after finishing my Prednisolone and having a really difficult few weeks, have now been told my Remicade treatment cannot go ahead on the basis that I have been taking Mercaptupurine before and therefore it is not suitable.
I have an appointment tomorrow at the hospital, but from what they are saying, the only option left is surgery. Because my disease stretches the length of the large intestine, the only option would be removal of the whole lot.
I have been hopeful that a cure would be along before I had to resort to this. Can anyone offer any suggestions?
Even with my issues, I do enjoy a good life and I am a happy person. I am not saying it is easy to cope with an ilness like this, but I do try to get on with things as much as possible and I am grateful I have something wrong with me that not everybody can see like some poor disabled people.
Many thanks for reading
