Crohn's Disease

[haeveingridseyn]

My fiancé Erin suffers from a chronic condition known as Crohn's Disease, which I am told wreaks havoc with the digestive system. She's pointed me to a ccfa with information on the disease and I am trying to learn more since I'll be having to not only live with this but most likely take care of her if anything happens. Does anyone know anything about this disease or what I should know to be a good caretaker for her?

 

[D Bergy]

There is lots of Crohn's experience here. I would not even know where to begin with advice for support, but I think in general, if you just learn what you can about the disease, and read how different people handle it, mentally and treatment wise, you will automatically be more helpful than not knowing anything about it.

Dan

 

[kjhngisd]

yeah, my wife has it.
you can find a great resource in wikipedia
http://en.wikipedia.org/wiki/Crohn's


there's other sites that have a lot of information on it, but my experience is that wikipedia is the best, simplest and most complete all-around guide.

There's a lot of info here on real life experiences, too.
I can tell you a bit about what it's like to take care of someone with crohn's. Other people can tell you what it feels like.

You'll probably be end up becoming an expert on it eventually.

What is it you're looking to know?
--kevin

 

[jooles6377]

My husband would never ever think to look into Crohns in more detail 'in order to help me' Oh no chance. I pretty much feel like no-one understands and I know they do but it does make you feel so alone. So good on you in helping and trying to be there and understand this awful disease.

 

[kjhngisd]

really sorry to hear that, jooles.

@haeveingridseyn: Shantel has a great point. There are a lot of really, really scary things with Crohn's. But everyone's different. The scary stories show you what can happen, not what *will* happen. Learn from it, but don't let it own you.

--kevin

 

[Peggy]

My husband did not need to look t it, he knows as he has it himself, its the blind leeding the blind in our house. At least he understands where I am coming from, good luck to you and yours. Peggy

 

[littleone]

a word of adivce? never tell her to "deal with it" or if she had been in remission and starts to slowly feel icky, never tell her "it's in your head. you're fine" that'll piss her off for months! no joke. it lead to the demise of my relationship with my boyfriend of 6 years. i was enver in remission b/c no one after told me with great proof that i had it until this past april. and we finally split in nov.

and if she feels really really bad in the potty and is in there for a long while, just leave her be. if its a really long while, make sure she's like not dead you kno but if she's "ok", just leave eher alone. she most likely won't want you to bother her (no offence).