Crohns for 20 yrs

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Joined
Mar 13, 2013
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Hello Everyone, Im Jimmy and I was diagnosed with Crohns Disease at the age of 15 when I had to have Surgery for the blocked intestine. Went on meds after the operation felt good 3 years, then had to increase meds and adjust due to flare ups. At age 23 I had another stricture where it adheared to the abdomen wall, leading to ER visit/surgery. More removal, med adjustments. At age 25 the Dr recommended Remecaid Therapy which at that time was experimental/ trial.. Insurance covered only 20%.. After 3 or 4 treatments over maybe 2 months things inside felt better, you can just tell,or I can feel that good difference. It seemed great and I would say itwas in remission till 2011 when I developed a Fistula in the surgical scar of my second surgery.. That scar was origionally a temp drain incision that would close naturally after the interior section healed.Never had a bag or anything on my side. I now have this Fistula and have been laying in this hospital for over a week. I lost 20lbs,went on a Nutrition Protein IV bag and have been IV given Meds, Steroids,,anxiety meds,meds for nausea. 2 CT scans and at the moment the fistula is lraking draining still. I was on full liquid diet, things seemed alittle better. We just changed to soft/normal foods and the Fistula and other skin holes that developed are leaking alittle more. You probably have read alot of stories similar. But thats mine and I look foreard to looking over this forum to educate myself better. Right now surgery seems to not be their course of action,but I would prefer if they did. That way I know its fixed,ive been like this 2 yrs. No work, no money. Ive lost my family home this month cause I could not pay property taxes. So I now have health ins, but now homeless. Just want this fixed quickly an know its fixed. That way I can get my physical health back, get employment and now start my life completly over because I really have lost everything except clothes,paperwork and most loved family pictures. Im honestly looking for a trratment program for possible mental and medical rehab. Thx for your time. Jim
 
i wish there was a pill that made it go away, but ther is not..it takes time. Are you still on Remicade? dossage and frequency?
 
Im not on Remicade at the moment, but the Drs have mentioned it as a possible treatment. I didnt even think of what dosages would be involved if it comes to that.
 

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