I don't know really where to start but here goes...
I was diagnosed with crohns 5 years ago and told it was in my small bowel, after scans and endless tests I was put onto salofalk. My symptoms seem to get better and I carried on.
I didn't realise how I'll I was getting, no energy, felt like I had the flu and dizziness all the time, black rings around my eyes and constant D. My stomach was also getting larger.
After seeing my consultant he suggested steroids, I had a bad reaction to steroids in the past so I was very cautious. I decided to start the course and to be honest after the initial side affects I started to feel better. Then the bang.
I was out on a Saturday doing shopping when all of a sudden I was stopped n my tracks, I couldn't walk and felt terrible. My husband took me to hospital and they admitted me with a flare up. I was in hospital 8 days, they put me on antibiotics and gave me pain killers and sent me home. I was still taking my steroids and salofalk.
when I got home I didn't get any better, temp all the time and my stomach was really painful. For the next 3 weeks I was layed up in bed then one day I couldn't take it any more. I went to the doctors who said they could give me morphine but that was just hiding the problem, so it was agreed I was re admitted to hospital.
This time I had a ct scan and they saw several abscesses and said I need surgery, but they wanted to see if the abscesses went down with antibiotics first. So I went home with more meds.
In a total of 6 weeks I had lost 3 stone in weight and I looked like death.
The meds worked a bit but I knew I was very ill, I rang my surgeon and he said he would operate immediately. I had an illocecal resection and they removed the abscesses and 2 fistulas.
It was an open procedure and I woke to find I had a stoma. My initial feelings was anger that I had got one (in called it Russell) and I wanted my life back, but I now realise it has saved my life.
My operation was 9 weeks ago and I had a check up this week and I am scheduled for a reversal in November and it can't come quick enough.
Has anyone got any facts about the reversal procedure as I am a bit nervous about having another big operation.
I was diagnosed with crohns 5 years ago and told it was in my small bowel, after scans and endless tests I was put onto salofalk. My symptoms seem to get better and I carried on.
I didn't realise how I'll I was getting, no energy, felt like I had the flu and dizziness all the time, black rings around my eyes and constant D. My stomach was also getting larger.
After seeing my consultant he suggested steroids, I had a bad reaction to steroids in the past so I was very cautious. I decided to start the course and to be honest after the initial side affects I started to feel better. Then the bang.
I was out on a Saturday doing shopping when all of a sudden I was stopped n my tracks, I couldn't walk and felt terrible. My husband took me to hospital and they admitted me with a flare up. I was in hospital 8 days, they put me on antibiotics and gave me pain killers and sent me home. I was still taking my steroids and salofalk.
when I got home I didn't get any better, temp all the time and my stomach was really painful. For the next 3 weeks I was layed up in bed then one day I couldn't take it any more. I went to the doctors who said they could give me morphine but that was just hiding the problem, so it was agreed I was re admitted to hospital.
This time I had a ct scan and they saw several abscesses and said I need surgery, but they wanted to see if the abscesses went down with antibiotics first. So I went home with more meds.
In a total of 6 weeks I had lost 3 stone in weight and I looked like death.
The meds worked a bit but I knew I was very ill, I rang my surgeon and he said he would operate immediately. I had an illocecal resection and they removed the abscesses and 2 fistulas.
It was an open procedure and I woke to find I had a stoma. My initial feelings was anger that I had got one (in called it Russell) and I wanted my life back, but I now realise it has saved my life.
My operation was 9 weeks ago and I had a check up this week and I am scheduled for a reversal in November and it can't come quick enough.
Has anyone got any facts about the reversal procedure as I am a bit nervous about having another big operation.
