Crohns in the J-Pouch

[sam01]

Has anyone experienced Crohns in the J-pouch? My son has had a J pouch for 2.5 years. About a year ago, he started having blood. He also has a hernia at the stoma site. Bad scar tissue. Skin tags now too. Test results show that j pouch changed shape. Looks more like a funnel now with narrowing at the end. Docs say it's now Crohns which he did not have prior to surgery. Path report showed UC. Regardless, he's on aggressive meds. Don't see much improvement. He's functioning well but think he's partially in denial ( I get it--he just wants to be a college student). Our hope is to save the pouch. I would love to hear if anyone has had pouch issues and been able to turn things around. So concerned for him. He's on more drugs than he was with UC. Humira, Methotrexate, Flagy, Cortifoam, Steroids, Folic Acid, Probiotics, Vitamins,

 

[2thFairy]

There are a few people on this forum that have had this happen, but right this minute I don't recall who.

There is a dedicated J-pouch group online that I'm positive you can find several people that have had this occur and can tell you their experiences.
Here's a link: http://j-pouch.org/eve

 

[sam01]

thank you