Crohns is a pain!!

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Jul 26, 2011
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Hi, I was diagnose with crohns in april 2011 but i have been ill for 2 years. It all started after i had my son in 2009.. I couldnt keep any food in and was always going to the bathroom. I went to a few different doctors and the first one told me that it was hormones, the second one told me it was stress, the after seeing the third one for about 6 months he got me doing test and then we found out that it was crohns. towards the end i was 115 lbs and i am 5-9, my joints were so sore that i could barly walk somedays. Th doctor put me on prednisone i am still on it. They want to put me on humaria soon aswell to get me off prednisone. I just found out that i am pregnant tho so i was hoping that i could go the pregnancy without drugs. Is this possible?? what would be safer for baby and me going on humaria or drug free? I also was wounder how you know that you are in remission? ever sence being on prednisone i dont go to the bathroom as often and my poops arent diarrehea but i can tell that i am still inflamme because my poops are skinny and weird looking.. i am on a low dose right now of prednisone 15mg a day i think that is low.. what would happen if i weened off prednisone would i go back to how i was before? I am so worried that crohns is going to make me misscarry i am only 7 weeks 5 days pregnant. I also heard that it is more likly to have still birth as well .. what are my chances? i am so scared and nervouse!
 
I've heard it's healthier for the baby to have a healthy mama on medication than a sick mama on nothing. I don't know about starting a new drug during pregnancy, though. I'd be worried, too. I would definitely discuss this with your GI.
 
Hi Jolene and welcome! First off, congratulations!

I am not pregnant, but my husband and I would like to start a family within the next year. So, I have done A LOT of homework on the subject of Crohn's, treatment & pregnancy. Stephanie is right on the money, a healthy mom is the most important thing. The biggest risk to the baby would be active Crohn's. And many of the treatment options for Crohn's (including Humira) have proven to be safe. You may find this article from the CCFA to be helpful:

http://www.ccfa.org/media/pdf/FactSheets/pregnancy.pdf

With this being said, of course you can only decide what you want to do as far as treatment while pregnant. It is a tough decision to make, so just do your best to do your homework, weigh all the options, and speak with your doctors. I wish you luck with your decision, and I hope you and baby thrive!
 
Thank you all for the welcomes and the advice i greatly appreciate it!! i have a appointment with the doctors next thursday and august 16th to talk about options if i have any.
 
Hi Jolene,

Congratulations!!
I understand your concerns about taking drugs through your pregnancy.
I gave birth to twin boys in May, 2010 and took Humira and Flagyl through the entire pregnancy and whilst breast feeding. I did my research before falling pregnant and saw a doctor who specialises in drugs and pregnancy. She told me that there was no evidence to support that Humira or Flagyl would be a problem during pregnancy so I decided to go ahead and try for a baby.
We fell straight away. I had some diarrhea during the pregnancy but the babies were very healthy during and after the birth.
I agree with Jill, a healthy Mum is very important and if that means you need to take medication then it might be a good option for you.
Let us know what the doctor says this week.

Amanda
 
Well I can not comment about the pregnancy, obviously, but congratulations. I was going to comment about "how do you know if you are in remission"? When I was put on prednisone and began to feel better, I too had weird poops. Skinny and all, and they have never gone back to normal. When I weaned off of prednisone, I believe began to flare again. I was also taking Pentasa but based on what happened, we (dr. and I) believe it did not work and I was having difficulty passing stool but believed it was caused by pain meds...so not sure which, flare or pain meds. Either way, got off pain meds and still had trouble pooping. Back to prednisone, poop started coming...also on to 6mp, two weeks later, poop is going well, but still looks funny. So, for me, I don't care how it looks...so long as it is going. I feel it will never look like it did before but I also feel like the prednisone has put me in the right place. I hope the 6mp will work so I can get off the prednisone. I still have 3 to 6 months to see if 6mp will work.

If that gives an idea of if you are in remission, good. I guess I really do not know if I am in remission...I just am not in pain right now...3 days and counting.
 
Thank you everyone!! I am so glad that your boys turned out healthy and congrates on the twins i would love to have twins!! and cheers steelerfan to skinny weird poops lol.. That helps alot knowing i am not the only one lol..

I got my blood back from the one doctor and everything is looking good i am still waitting to go see my GI on august 16th.
 
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