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Jan 4, 2012
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Hello everyone,

I am new to this site because I have a possible diagnosis of Crohn's disease. I am wondering what everyone's symptoms were when they were diagnosed?? Has anyone had severe nausea???
 
Hello and welcome :D

Diarrhea and occasionally constipation, sharp and intense pain in my upper abdomen, mouth ulcers, erythema nodosum, uveitis, joint pain, extreme fatigue, blood in my stools and sometimes vomiting. Everyone is very different.

Have you seen a GI and had any tests done yet?
 
When I was dx my main symptoms were belly pain, joint pain, D and then I started bleeding, so I went to the e.r. I was dx very quickly. Nausea was never a problem for me until last year. Now I get it everyday! Everybody is different w/ bowel disease.
 
Chronic diarrhea, vomiting, no appetite, weight loss, fatigue, nausea, intense pain in the LRQ, blurred vision, back pain....... symptoms vary from person to person.

What are your other symptoms?
 
Hello and welcome to the forum :bigwave: My symptoms at diagnosis were: diarrhoea, severe weight loss, acne, weird rash on my legs, no appetite, fatigue, mouth ulcers and lots of abdominal pain. Like ekay sickness was not an issue I had until the end of 2011, not sure if this is something the op has done... As queried above, what tests have been done for you? When are you due to see your doc?
 
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Welcome Surfer Girl. I had extreme diarrhea, nausea and vomiting, weight loss, sores in my mouth, back pain, severe (like I feel like I'm about to die severe) pain in my abdomen, dehydration and eventually eye problems before I was diagnosed.

Everyone's symptoms are different, and also depending on the amount of time from onset of symptoms until diagnosis they can be more or less severe.

I hope your nausea goes away.
 
I have had the following symptoms:

nausea
diarrhea
constipation
mouth sores
eye problems (dry, itchy, blurry, double vision, watery)
bloody, mucus stools
abdominal pain (especially after eating)
fatigue
cramping
no appetite
fever

Initially, a GI doctor said it was IBS but nothing she gave me or told me to do relieved my symptoms. Then my general doctor said it is GERD (acid reflux) but again, nothing she gave me worked either. THe other day I had a colonoscopy and upper endoscopy and the only abnormality was inflammation of my upper colon/intestine. He took biopy's and is going to get back to me. I have a CT scan of my intestine's tomorrow so hopefully that will show more.

Any advice on medications to get rid of some of the symptoms....I am on an anti-nausea medication right now but that's it for the above symptoms.
 
Hopefully the biopsies give you some answers and you can get on a treatment soon.

In the meantime, for diarrhea and pain I use codeine and if I have diarrhea without pain, I use loperamide (Imodium). Both of these medications are over the counter here in Australia, I think they should be in the US too.
 
Hi , My symptoms were abdominal pains, diarrhea with blood and mucus, mouth ulcers, fatique, loss of appitite and weight loss, fissures, fever and aneamia. i had a sigmoidoscopy first as they suspected ulcerative colitis, they sent away the biopsys which is when i got my diagnosis of crohns. Later had a colonoscopy and barium meal and have been told i have crohns colitis. I use Lopermide if sysmptoms are bad, and paracetmol, tramadol for pain , also buscapan for the cramping pain , good luck :)
 
codeine is not otc in the US, but Imodium is. All that we can take here in the US for pain is acetaminophen.
 
So today my doctor called with the results of the biopsy's....if you remember I had a colonoscopy on tuesday and they took samples. The colonoscopy showed inflammation in my upper colon. My doctor said that the results of the biopsy showed inflammation of the colon but nothing else. He said this does not warrant a diagnosis of crohn's like he thought it would. Anyone have a similar experience???
 
My research and doc's statements were that the only method to identify Crohns 100% is biopsy/pathology of resected tissue. All other methods are indicators. So I would think the pathogolgy of the tissue they biopsied would tell them one way or the other.

But, my area of issue (crohns) was in the transition between the small and large intestine...only in that one area - no where else. So if they would have taken tissues from anywhere else, they would not have seen the crohns under the microscope.
 
My symptom that drove me to the doctor was painful burning diarrhea. After diagnoses and learning I have been having lots of symptoms for years.

I feel my experience with my gi physician assistant doc has been less then satisfactory. Initial vist went well. She thought I should get a colonoscopy immediately, and switch to a no fiber diet.

So 5 days later I was scoped by one of the doctors, whom was very nice but don't remember much from the sleepy drugs. Discharge paperwork had initial diagnoses of moderate crohn's. With instructions on after scope stuff. My PA had me come the next day even though biopsies would take a week to get done (so interesting yours were done in 2 days). She told me it was most likely crohn's (crohn's like ulceration from ileum and large intestine), gave me a sheet of info about crohn's (including a bit saying diet has no effect and to avoid fiber, which seems untrue cause diet sure seems to have an effect, as well as having at least some fiber is useful!), gave me a pile of lialda samples, asked if I was willing to do the prometheus crohn's prognostic test (and mentioned it was expensive and not all insurance companies will pay for it), and told me she would call back when results came in. I did the Prometheus test that day.

A week later I got a call from my PA saying the biopsies were indicating crohn's as well but she wanted to wait for the Prometheus test results before talking more. Which was disappointing as I had questions for her but she wouldn't take them yet.

Which to me seems really odd since most good doctor/nurse/pa listen and answer questions... So like I said less then satisfactory, but I dunno what to do. I have had lots of other weird symptoms pop up and would like to mention them but she doesn't seem responsive except to what the tests say. It's been 3 weeks waiting on the Prometheus tests dunno if the holidays slowed it up or what happened there

I am planning to go back to my gp here soon for a bad hacking cough that I caught from a coworker and can't seem to get over for the last month. I will also express my concerns there and ask him my unanswered questions at least.
 
I'm also new to this site, hello (=.

Here's some:

When you feel like ****

lost a LOT of weight

not hungry

when you start pouring blood from your butt

when you fart it stinks insanely bad
 
My experience is that you are the best doctor out there. Yes, a MD is necessary to prescribe the meds and run the tests, BUT, there so many varying symptoms and issues that no 1 MD can have all the answers.

Thats where the web and this Forum are critical to your life! I mean that figuratively and literally!

All my web research states the pathology is the only 100% diognosis. That means to me that if your biposies come back as a positive for Crohns, you have Crohns. Its like "sort-of pregnent" - you either have Crohns or you don't.

That being said, I have read where some people with Crohns (even on meds) can barely get out of bed each day to to joint pain, head aches, DR, etc... and on the other end of spectrum is me, I have zero symptoms. Which is great, but not knowing when I was flaring put in the hospital (surgery) and a 6 month recovery. If I was diognosed earlier and put on meds, maybe I could have contolled the Crohns and eliminated the surgery.

Last bit here: There are no 100% answers - EVERYONE is different and has different symptoms (yes, some are same DR, appitite, etc...). You have to research/forum Chrohns and make recommendations to your doctor. Be more informed than they are - its actually not to hard to do...Doc's have so many things to remember - Crohns details to cover everyone with Crohns would be impossible for any Doc. Spend some hours reading through this forum - and some google-ing...
 

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