- Joined
- Dec 15, 2011
- Messages
- 4
Hello Fellow Crohn's Survivors
My name is Lisa. I'm 37 years old, I have two sons, one is 18 and the other is 15. They are my world. My partner, I met almost two years ago and has been the most supportive human being in my life. I live in the boonies with my amazing boys and chocolate lab that pesters the heck out of me. Why? Because I'm sicker than I have ever been in the last 7 years.
My last ostomy surgery was in 2005. After having a reversal done I ended up with a recto=vaginal fistulae. This compromised the j=pouch and had to have yet another stoma for the j=pouch to heal. After one year, I was taken down again and given an ileostomy on the left side. This is my 4th stoma.
The last 6 years have been testy, on and off with pain. I have limitations on what I can eat, but now, I can't eat anything without getting great distention and cramps. I normally have diarhea but it's been greatly increased the last month and half and I've lost nearly 20 lbs in the last month as well. I am scheduled to see my colorectal surgeon on the 22nd in MOntreal. I can't wait at this point.
Ever go in the hospital in cruciating pain and get told to go home with a shot of demerol and there isn't anything they can do?
THis has been my situation the last 4 years chronically. Enough is enough I see my colorectal surgeon. That is, before I wither away or I eat my arm.
Now, I've had a hysterectomy when I was 24. The gyne left an ovary in for hormones, pffft, the thing has been giving me problems since the last bowel surgery. Because of all the scar tissue in that area (rectum) I have serious pain when it does ovulate. I have been on Lupron to suppress ovary function so I won't have any pain from that area, but it hasn't worked for me. I've begged, pleaded specialists to remove that ovary in hopes that I can have some type of quality of life. I feel like a freak, because no one wants to touch me. Too much risk they say, the ovary is apparently attached to the underside of my vagina and embedded in scar tissue adjacent to my bladder. Sex can be painful at times, but tolerable with pain medication. Lately, life has been "tolerable" with the pain medication but it does not allow me to be me.
I'm extremely tired at this point, hungry, dehydrated and slowly goin insane. I really hope my colorectal surgeon can help me. I want my life back.
During the last 6 years I was able to complete two years of college studies and now in my 4th year University studying a double degree in Sociology and Gender Equality and Social Justice, I have had to take the last two months off and then some because I am too sick to go anywhere. I also own my own business selling Partylite and have to put it on hiatus because I can't do my shows. I feel useless, cynical and dark but I do really love life.
Please tell me I am not alone........:sign0085:
My name is Lisa. I'm 37 years old, I have two sons, one is 18 and the other is 15. They are my world. My partner, I met almost two years ago and has been the most supportive human being in my life. I live in the boonies with my amazing boys and chocolate lab that pesters the heck out of me. Why? Because I'm sicker than I have ever been in the last 7 years.
My last ostomy surgery was in 2005. After having a reversal done I ended up with a recto=vaginal fistulae. This compromised the j=pouch and had to have yet another stoma for the j=pouch to heal. After one year, I was taken down again and given an ileostomy on the left side. This is my 4th stoma.
The last 6 years have been testy, on and off with pain. I have limitations on what I can eat, but now, I can't eat anything without getting great distention and cramps. I normally have diarhea but it's been greatly increased the last month and half and I've lost nearly 20 lbs in the last month as well. I am scheduled to see my colorectal surgeon on the 22nd in MOntreal. I can't wait at this point.
Ever go in the hospital in cruciating pain and get told to go home with a shot of demerol and there isn't anything they can do?
THis has been my situation the last 4 years chronically. Enough is enough I see my colorectal surgeon. That is, before I wither away or I eat my arm.
Now, I've had a hysterectomy when I was 24. The gyne left an ovary in for hormones, pffft, the thing has been giving me problems since the last bowel surgery. Because of all the scar tissue in that area (rectum) I have serious pain when it does ovulate. I have been on Lupron to suppress ovary function so I won't have any pain from that area, but it hasn't worked for me. I've begged, pleaded specialists to remove that ovary in hopes that I can have some type of quality of life. I feel like a freak, because no one wants to touch me. Too much risk they say, the ovary is apparently attached to the underside of my vagina and embedded in scar tissue adjacent to my bladder. Sex can be painful at times, but tolerable with pain medication. Lately, life has been "tolerable" with the pain medication but it does not allow me to be me.
I'm extremely tired at this point, hungry, dehydrated and slowly goin insane. I really hope my colorectal surgeon can help me. I want my life back.
During the last 6 years I was able to complete two years of college studies and now in my 4th year University studying a double degree in Sociology and Gender Equality and Social Justice, I have had to take the last two months off and then some because I am too sick to go anywhere. I also own my own business selling Partylite and have to put it on hiatus because I can't do my shows. I feel useless, cynical and dark but I do really love life.
Please tell me I am not alone........:sign0085:
