Daughter Remicade, Second Dose.

[araceli]

My daughter [16] diagnose at 14, is going tomorrow for her remicade infusion, second dose. :frown: I was expecting not be as worried as the first time. I was wrong. She started the prednisone tampering this week. So far so good. Hope everything will be fine tomorrow. It has been kind of hard this past months. I also have a 14 year old boy with lower back and joint pain since June. Many test and mris and don't have a Dx yet. Looks like another autoimmune disease. Don't want to think about it, but I feel like I need to get it out of my system. I AM SAD, MAD, WORRIED. I can not tell anyone in my family how I feel, I am the strong one, the one that is always positive, that never gives up, the one that always gives comfort to everybody. I am not used to be on the other side. And since none of you know me, I guess is ok for me to let it out. I know all of you are in the same boat. See.... I feel better know. Thanks For this forum.

 

[Clash]

Vent, cry, scream away!!! Most of us have been exactly where you are at and that is the wonderful thing about this forum regardless of the role you play in real life(strong, stoic, upbeat never let 'em see you sweat caregiver) you can come here and just release. I hope your daughter does well at the infusion tomorrow and that the pred taper continues to go well. Those first few infusions fray the nerves a bit but hopefully the Remi will get her CD under control and you will be in a better place emotionally seeing your daughter improve!!! Sending support your way!!

 

[araceli]

Thanks Clash. I really needed somebody to tell me is ok to feel this way sometimes. Its very hard for me to feel down or even cry. But I know I need to vent away sometimes in order to keep going. A million thanks.

 

[Clash]

No problem, it is hard to just release sometimes, especially when if you are like me and a bit of a control freak. I try to keep my control freak mentality out of the situation when dealing with C but then the excess has to go somewhere!! LOL My mindset is usually, here is the goal, this is how we must reach it, at all costs but I learned quickly that CD doesn't play by my rules so there is alot of venting from time to time!

I will say that C's remi treatments quickly became relieving times once we saw how well it treated his symptoms and allowed him to get back to "life". We aren't all the way there now, we recently added MTX, but fingers crossed we have had no symptoms and he has made it further than before between treatment...oh and he has gained a little bit of weight this week!!

 

[araceli]

No problem, it is hard to just release sometimes, especially when if you are like me and a bit of a control freak. I try to keep my control freak mentality out of the situation when dealing with C but then the excess has to go somewhere!! LOL My mindset is usually, here is the goal, this is how we must reach it, at all costs but I learned quickly that CD doesn't play by my rules so there is alot of venting from time to time!

I will say that C's remi treatments quickly became relieving times once we saw how well it treated his symptoms and allowed him to get back to "life". We aren't all the way there now, we recently added MTX, but fingers crossed we have had no symptoms and he has made it further than before between treatment...oh and he has gained a little bit of weight this week!![/QUOTE

That's great! Hope he keeps getting better.:ysmile: