- Joined
- Sep 6, 2013
- Messages
- 24
Hello everyone!
My first time here and also my first time ever doing anything like this. I first heard about crohns a few years back when my aunt told me about her grandson being diagnosed. I could hear the fear in her voice as it cracked when she told me. She, nor I had really any clue to what it was. I was faced with that same fear earlier this year when my 10 yr old grand daughter was also diagnosed with the same. After going through some issues with stomach pains, we thought that she may be lactose intolerant like her father. One day I walked in on her in the bathroom and noticed blood. It was not a lot of blood but was still a concern. I asked her about it and she really thought nothing about it as she said it has happened a few times. I alerted her mother who made arrangements to have her checked out. Thus the road began! She went in for a colonoscopy in December, just after turning 10 years old. She was diagnosed in January and so the medication started. She was doing pretty well with some minor flair ups until this past week where she was so bad that she was admitted to Joe DiMaggio children's hospital and was found to be anemic and dehydrated. She had been going to the bathroom over 15 times a day. After 4 days in the hospital she was ready to come home only to be constipated now. What a roller coaster it has been. That is where we are now. Her mother makes her lunch to take to school everyday now. We always ask her how she is feeling and sometimes she says her stomach hurts a little. I am presently on the look out for a book called Beating the viscous cycle. We have been to nutrition food stores (Very Expensive) and picked up a few things. It would be great to know what lunch box, breakfast foods and dinners that she likes we can make for her. I have the bland, the fiber free, the SCD, and a few others that we are working on. I feel like I am still lost! Well that's my story. Thanks for hearing me out. Any and all suggestion would be greatly appreciated!
My first time here and also my first time ever doing anything like this. I first heard about crohns a few years back when my aunt told me about her grandson being diagnosed. I could hear the fear in her voice as it cracked when she told me. She, nor I had really any clue to what it was. I was faced with that same fear earlier this year when my 10 yr old grand daughter was also diagnosed with the same. After going through some issues with stomach pains, we thought that she may be lactose intolerant like her father. One day I walked in on her in the bathroom and noticed blood. It was not a lot of blood but was still a concern. I asked her about it and she really thought nothing about it as she said it has happened a few times. I alerted her mother who made arrangements to have her checked out. Thus the road began! She went in for a colonoscopy in December, just after turning 10 years old. She was diagnosed in January and so the medication started. She was doing pretty well with some minor flair ups until this past week where she was so bad that she was admitted to Joe DiMaggio children's hospital and was found to be anemic and dehydrated. She had been going to the bathroom over 15 times a day. After 4 days in the hospital she was ready to come home only to be constipated now. What a roller coaster it has been. That is where we are now. Her mother makes her lunch to take to school everyday now. We always ask her how she is feeling and sometimes she says her stomach hurts a little. I am presently on the look out for a book called Beating the viscous cycle. We have been to nutrition food stores (Very Expensive) and picked up a few things. It would be great to know what lunch box, breakfast foods and dinners that she likes we can make for her. I have the bland, the fiber free, the SCD, and a few others that we are working on. I feel like I am still lost! Well that's my story. Thanks for hearing me out. Any and all suggestion would be greatly appreciated!
