dealing with this disease
hi everyone
i am the long suffering wife of a hubby with crohns disease diabetes ankylosing spondylitus .we have trundled on for years on pred and eating issues belly ache etec without much doctor intervention then in 2009 bang perforated bowel multiple internal abcesses and our world turned upside down .
hubby ended up in theatre and in a coma for 19 days they gave him an ileostomy and since then he has had a major resection and reversal of ileostomy everything was going well until 2 months ago when the pain started to re occur back in hospital again it would appear he has a stricture and another small perf they put him on an elemental diet which we have done for 5weeks there has been a great improvement. there is now great debate about whether more surgery will be needed we are now on a low residue diet during the day and elemental feed via gn tube at night
has anyone else done this ?
the added prob is my hubby is hospital phobic and every time he is in i have to stay with him 24hrs a day or he runs away ill or not !:sign0085:
hi everyone
i am the long suffering wife of a hubby with crohns disease diabetes ankylosing spondylitus .we have trundled on for years on pred and eating issues belly ache etec without much doctor intervention then in 2009 bang perforated bowel multiple internal abcesses and our world turned upside down .
hubby ended up in theatre and in a coma for 19 days they gave him an ileostomy and since then he has had a major resection and reversal of ileostomy everything was going well until 2 months ago when the pain started to re occur back in hospital again it would appear he has a stricture and another small perf they put him on an elemental diet which we have done for 5weeks there has been a great improvement. there is now great debate about whether more surgery will be needed we are now on a low residue diet during the day and elemental feed via gn tube at night
has anyone else done this ?
the added prob is my hubby is hospital phobic and every time he is in i have to stay with him 24hrs a day or he runs away ill or not !:sign0085:
I'm glad you found your way here though and I wish you and your husband nothing but the best!
