when i feel the beginnings of a flare (abdominal pain, for me), i do 24hrs of just liquids to try and give my gut a rest before it becomes too inflamed and snowballs into a full flare. after 24hrs i try a banana smoothie (banana, coconut milk, ice) to test. if i still have pains, i go 48 more hours of just liquids. i call these liquid-only times 'survival mode'. this is only my 15th month of living with crohns, so i'm still figuring out what works for me. becuz of my food intolerances, i find myself frustratingly limited to what i can depend on for nutrition during survival mode.
so, for me (female, 24yearsold, 5ft8inch), my daily goal is 42g protein, 1500 calories:
8oz each of:
r.w knudsen black currant juice (100cal, 1g protein);
r.w. knudsen just concord juice (160cal, 2g protein);
santa cruz 100% orange mango juice (130cal, 1g protein);
living harvest unsweetened original hemp milk (80cal, 2g protein);
rice dream rice milk vanilla enriched (130cal, 1g protein);
dream blends rice and quinoa original enriched (90cal, 1g protein);
so delicious dairy free unsweetened coconut milk (45cal, 0g protein);
4 scoops (1 every 3hrs to spread out the fiber (2g fiber per scoop)) metagenics ultrainflamx 360plus medical food (100cal 7.5g protein/1scoop = 400 cal 30g protein/4scoops);
1t kroger natural creamy peanut butter (95cal, 4g protein).
the hard part is: i don't know if this is sufficient to live on, indefinitely. i can't do many of the EN or EEN drinks offered becuz of my intolerances. does anyone have similar intolerances (gluten, soy, casein, candida, + ) and has found an EN or EEN that qualifies? or: does anyone know of something i'm missing from my survival mode diet that would be beneficial/essential? for instance: i have no veggies. will this slowly kill me? is there a veggie juice (preferably with protein) that would help - with additional positive effects like reducing inflammation? or: are there other things that are low fiber enough that are not necessarily drinks - like my peanut butter addition?
