- Joined
- Nov 18, 2012
- Messages
- 7
Hi everyone, my name (on here anyway) is Lelu and I'm 25 years old. I posted something once a few months ago but never introduced myself. I was diagnosed with Crohn's disease last September. I never had any digestive problems before in my life so it was so strange when I suddenly got symptoms. It started with abdominal pain that kept getting worse. I had some diarrhea off and on, but my main symptom was the pain. My stomach would also get very bloated. I was suspected to have Crohn's disease so I was prescribed Budesonide. After a few the pain just got worse. I started vomiting one night and the pain was excruciating. I went to the hospital at around 3 in the morning. They were worried I had a bowel obstruction but luckily I didn't. They found I had a slight perforation in my colon and a lot of swelling. I was put on a bunch of antibiotics, probiotics and other medications. I believe they started me on Asacol as well. I was in the hospital for 4 days and they had me on a clear liquid diet, then a full liquid diet. I am a vegan so in a hospital that meant pretty much vegetable broth, flavored ice, coffee, and tea. I needed painkillers most of my stay (dilaudid). By the time I was discharged though I felt much better. The pain slowly returned after a while though, and my GI doc wanted to put me on a different treatment because he said Asacol isn't really for Crohns, its for UC. He started me on Remicade and shortly after 6MP. The 6MP made me so nauseated though that I just couldn't handle it so I stopped taking it. I was miserable on it. The Remicade seems to help, but I still have pain almost almost every day. I've been taking vicodin for pain. I am moving soon and will need to find a new doctor. The past few days my pain has increased, but I think it may be because I have been experimenting with egg-like dishes using black salt (which contains sulfur) and drinking mango based juices (high fructose). I stopped drinking the juice and using black salt so hopefully that helps. I've tried gluten free a little while ago but admittedly it was only for about 3-4 days. It didn't seem to do much and I just didn't want to give up bread, seitan (vegan wheat "meat") etc. I have also cut carrageenan out of my diet a long time ago since I read about the connection, but I've messed up a few times.
Anyways, sorry for the long intro. Any suggestions for good/bad foods specifically for a vegan? I'm just now experimenting with the fructose thing, and I hope that isn't the issue for me because my diets becoming pretty limiting! Lots of fructose in many fruits, a lot of fiber in many veggies/legumes, wheat in seitan, etc etc. I'm still not sure exactly what causes my symptoms, but so far it seems whole corn is no good (processed corn like tortilla/chips seem ok though), and I'm also avoiding whole nuts/seeds as much as possible. I seem to handle mashed potatoes and potatoes in general pretty well. I think tofu is ok but its hard to tell since I usually add lots of stuff to it. I'm also sure to buy carrageenan free almond milk or make my own. I also try to add turmeric to dishes if possible, but I haven't in a while. I've been trying to take vitamins/supplements but I'm not super consistent. I have been more consistent with a general multivitamin but I have a bunch of other vitamins too with higher amounts but I hate taking too many pills so usually its just the multivitamin, sometimes and omega 3 supplement and sometimes Florastor. I know I need to be more consistent though. Anyways, thanks for taking the time to read this and I look forward to the insights you all can give!
Anyways, sorry for the long intro. Any suggestions for good/bad foods specifically for a vegan? I'm just now experimenting with the fructose thing, and I hope that isn't the issue for me because my diets becoming pretty limiting! Lots of fructose in many fruits, a lot of fiber in many veggies/legumes, wheat in seitan, etc etc. I'm still not sure exactly what causes my symptoms, but so far it seems whole corn is no good (processed corn like tortilla/chips seem ok though), and I'm also avoiding whole nuts/seeds as much as possible. I seem to handle mashed potatoes and potatoes in general pretty well. I think tofu is ok but its hard to tell since I usually add lots of stuff to it. I'm also sure to buy carrageenan free almond milk or make my own. I also try to add turmeric to dishes if possible, but I haven't in a while. I've been trying to take vitamins/supplements but I'm not super consistent. I have been more consistent with a general multivitamin but I have a bunch of other vitamins too with higher amounts but I hate taking too many pills so usually its just the multivitamin, sometimes and omega 3 supplement and sometimes Florastor. I know I need to be more consistent though. Anyways, thanks for taking the time to read this and I look forward to the insights you all can give!