Does anybody take humira every week?
- Thread starter Hermione
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My son experienced same thing. We went weekly for 4 months or so. My son's labs went to normal quickly. He was 12 yrs old tho...and at school he picked up all kinds of illnesses. GI thought it may have knocked his immune system too much. She put him to every 10 days. Since March of 2013 his markers kept climbing-tried adding methotrexate. All out flare in Sept. We just started Cimzia.
I think there are many who get it weekly and are happy.
I think there are many who get it weekly and are happy.
I used to be on 40mg a fortnight, but I had a flare up and was taken off it for a while, now i'm on 40mg a week, and although for a while I had bad dizziness and side effects upping the dose seems to have helped me.
However when it stopped working fortnightly, I did try a high dose of steroids first before I was put back on it weekly after a boost of 80mg in one go.
Most people I spoke to personally said it helped them within a month or so, but for me it tooks maybe three or four to see an effect.
However when it stopped working fortnightly, I did try a high dose of steroids first before I was put back on it weekly after a boost of 80mg in one go.
Most people I spoke to personally said it helped them within a month or so, but for me it tooks maybe three or four to see an effect.
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I had to go from every two weeks to every ten days and it made all the difference.
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I found it'd only last 9 days before I started getting cramping. Now I'm on a weekly dose and my doctor says all his Humira patients are on a weekly dose too.
BTW its typical for the biologics to get less effective with time. I was in the clinical trials and have been taking Humira for about 7 years, and this past year it's started to really lose its effectiveness. Time to switch, but Remicade is out of the question because I developed a reaction to it - the @#$% mouse proteins.
BTW its typical for the biologics to get less effective with time. I was in the clinical trials and have been taking Humira for about 7 years, and this past year it's started to really lose its effectiveness. Time to switch, but Remicade is out of the question because I developed a reaction to it - the @#$% mouse proteins.
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Thank you for posting this. I have been on humira since the end of July and am currently in a flare. I'm on it once every two weeks, but scared to go on remicade or steroids again. I gained so much weight and felt like crap on steroids. I see my GI on Thursday so I guess we'll see what happens.
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Hermione, I am in a very similar stage as you. I started the Humira in May of this year and have just recently been flaring up for about a week and a half which started about 4 days after a Humira shot. From talking to my GI doc, she has recommended increasing the dosage to weekly as well without going on steroids. Increasing the Humira seems puzzling to me since my flare up started just 4 days or so after a shot indicating to me that the reason for the flare up doesn't appear to be due to the Humira running out. Has anyone else had a similar case to this and has upping the Humira to weekly helped? Once increasing the dosage to weekly, is it possible to reduce it back down and what indicates that this can be tried?
Hermione, do you have any updates on your condition? Hopefully you have inproved?
Hermione, do you have any updates on your condition? Hopefully you have inproved?
I was in a similar situation a few months ago. I moved from once a fortnight to every week. I definitely felt it have more of an impact. I would occasionally feel nausea for the day of injection after taking Humira for a couple of weeks. It would go away after 12/24 hours.
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I started Humira bi-weekly in February and have been noticing for a couple of months now that I started to get symptoms at about day 10 or 11. My GI has told me to start weekly now so will see how that goes.
Question, are any of you on weekly Humira also taking methotrexate?
I'm taking methotrexate 15 mg subcutaneous each week. I was on a higher dose for a year before I started Humira but it didn't work well enough. I find it causes a lot of fatigue. I am hoping that with the higher dose of Humira I will be able to decrease the methotrexate to a lower dose (and still prevent the antibodies). Did anyone have this experience?
thanks!
Question, are any of you on weekly Humira also taking methotrexate?
I'm taking methotrexate 15 mg subcutaneous each week. I was on a higher dose for a year before I started Humira but it didn't work well enough. I find it causes a lot of fatigue. I am hoping that with the higher dose of Humira I will be able to decrease the methotrexate to a lower dose (and still prevent the antibodies). Did anyone have this experience?
thanks!
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After I was diagnosed, I took Humira every 2 weeks for about 3 months before I was back in the hospital with a partial blockage again. At that point, my doctor moved me to weekly shots and added azathioprine on top of it. I have been taking that combination now for over 3 years and haven't had a flareup since. Also, my doctor said that I would most likely never stop taking that combination as long as it was working for me.
I just moved to another state and saw my new gastro just last week and he is under the same philosophy that if it is working for me and I am not having any symptoms, there is no reason to stop or change my medication at this point.
I just moved to another state and saw my new gastro just last week and he is under the same philosophy that if it is working for me and I am not having any symptoms, there is no reason to stop or change my medication at this point.
