Does anyone else get joint pain as a symptom?

[darster]

I used to have awful hip and knee pain, now I have extremely bad elbow pain. I used to be on Remicade, now I'm on Humira. Has anyone else experienced this as a symptom?

 

[superzeeman]

Yes, it can be a common thing among crohns patients. I have it in my hips, knees, and sometimes elbows. I didi a google on crohns and pain and find that they have it broken down into different levels and even have names for the different levels of condition.

 

[Jam300]

Not personally, no, but it is a very common side effect of Crohn's and/or the medication used to treat it. I believe theres a fair few threads on it in our Extra Intestinal Manifestations Forum : http://www.crohnsforum.com/forumdisplay.php?f=81

 

[darster]

Thanks for the link, I wasn't sure what Extraintestinal was!

 

[exit4]

Yes, I have low back/hips pain, it is one of the many "lovely" gifts that some may have with Crohn's. Being on Humira has helped me some, I also use heat pad and pain meds on bad days.

 

[Sailorluna]

I had bad joint pain from the humira and had to stop taking it. You may want to see a rheumitologist.

 

[PsychoJane]

It can be related to the crohn itself or to the medication. It is hard to tell without proper test and as Sailorluna mentionned, it might worth seeing a rheumatologist to perform the needed tests if the pain is limiting you. I know that I've had issues with joint pain that was linked to the humira while I was on it.

When I am not on any medication, I get mild sacro-iliac type of pain, those were pretty much absent for the time I was on humira. But I had one episode of really intense arthritic crisis that was triggered by the humira, some sort of lupus like reaction that they could hardly classified but I can tell you that my markers were wrong.

Try to keep tract of when the pain happens; does it get better when you are due for a new shot or is it worst. That might help determining if it is humira or crohn related!

 

[darster]

Thanks very much for the responses. I will start tracking it. :ysmile:

 

[Jer]

I never really had much joint pain over the last 9 years with Crohns, a little sore but not much.
Well, for the last 3 weeks or so, my left elbow has been bad. I work out regularly and with decent weight, so I thought maybe I just needed a break and take some time off to rest. Hasn't helped, actually now both elbows hurt. I can can't even pick up my 17mo old daughter without shooting pains in my elbows.