Does anyone have new problems since Crohns (while in remission)

[Mary]

Just wondering if anyone has any other problems. My allergies and colds seem to be worse as well as muscle pain. I am only on Pentasa. So that shouldnt lower my immunity.

 

[Nyx]

The only problem I'm having is bad acne...now that I'm not on any meds it's gotten out of control again. But it's much better than the other symptoms I'd had when flaring!

 

[Lydia]

Nope, I feel good.

 

[woops!]

Yes your allergies has something to do with crohns being an autoimune dx. So my ENT tells me. I have been having leg nuropathy and joint pain. Do you feel that now you are in remission that you hold your breath and wait for something to happen. I feel pretty good, and as happy as I am about that. I just hope I never go back to where I was......

 

[wolfem]

Hey Mary

Yep. Lots of problems. Especially joint pain but it could be a multi-faceted complication (ex. B12 deficiency). I really won't know until I get my blood results back.

In my opinion, I think if the medication is working for you and the side effects aren't too bad it might be worth staying on. Sometimes the side effects go away after awhile. However, I've been on pentasa for awhile my pain has just gotten worse. Then again I was able to lower my dose after trying some natural remedies. So, it might be something else causing the pains, in my case.

-Mary

____________________________
Diagnosed: Crohn’s December ‘09
Gastritis August ’09, TMJD 1992
Surgeries: 1-terminal ileum removal
Treatments: Current- pentasa
Past- pred.:voodoo: aciphex, ranitidine
Other: Multi-vitamin, calcium,
digestive enzymes, probiotics,
fish oil, and ginger

 

[wolfem]

Oh wait!

I just remembered. I actually felt like I had the flu while on pentasa. That lasted a couple of weeks but then went away. The say if it continues, that you should go off of it.

 

[wolfem]

Ummmm. I didn't start having joint pain in my hip until after I started taking pentasa. I didn't start having generalized bone pain until after I started taking pentasa. I'm going to consult my doctor and see if I can go off of this stuff. See if the pain goes away.

I hope your muscle pains go away.