Double Baggers/ People with multiple Stomas Support Group

[DuchessLoula]

I am writing to ask if you could publicise our new group on Facebook. We are a group of people who have for many different reasons ended up with 2 or more ostomy bags often because of cancer, nerve damage or trauma. We are raising awareness of urostomy users and people with 2 or more Ostomies. We have named ourselves Double Baggers. Both Urostomates and people with multiple stomas as groups are little known and face unique medical and social issues. Rachel Jury also writes a blog called Rocking2Stomas where she discusses all issues surrounding having two bags. We are also promoting having better body image in an age where women with perfect bodies get body shamed. Men and women who have ostomy bags often feel ashamed of their bodies we are using the analogy that our scars are part of our road map of life and we should not be ashamed of them. We see ourselves as survivors of our diseases and are promoting having a good body image despite having to wear ostomy bags or/and scars.
We would really appreciate if you would make our grour known to your members we would greatly appreciate it. We are starting a campaign to raise these issues and need input from as many double estimates and Urostomates as possible. We are based in the Uk and have members from all over the world. We have only been live as a group for a week and have 62 members already. Please come and have a look and tell us what you think.

Thank you for reading this message.
Louise Pearce

 

[Bufford]

I don't Facebook or use social media other than specific sites such as this one. Does your organization have a dedicated website?

 

[DuchessLoula]

At the moment it is a private group on Facebook anything posted there is only seen by the group members it doesn't appear on your timeline. We are looking into both website and forum. But we are both I'll and it's taking time along with campaign in the press.
Louise

 

[Bufford]

One is bad enough, but I sure hope I do not have to get into double trouble, by having to cope with two. the reality of life is that one can never rule it out. I hope you have a successful endeavor in this, and will visit your website when its up.