Hi, my name is Mel. I am about to turn 21 soon. I was initially diagnosed with Ulcerative Colitis my first month into my freshman year of college in October 2011. I was initially diagnosed with Ulcerative colitis. The first doctor I saw was very adamant about me not taking too much medication since I was young. He was strong about watching my diet. Since I was in terrible condition when I first saw him, he put me on 40mg perdisone and I tapered down. It helped a lot. I was also put on Asacol and I was put for a different amount of levels after I tapered off of perdisone. Eventually, I got much worse my spring semester of 2013. I ended up having to switch doctors. I currently have two doctor: one GI doctor and one digestive internal medicine doctor. They work together on my cases. They had diagnosed me with Crohn's Disease.
When I met my new digestive internal medicine doctor I was put on 6MP. A week after I ended up in the hospital due to the fact that I was vomiting everything including water as well as having diarrhea. Nothing stayed in my system. I ended up staying in the hospital for a week. It was then I started 80mg of perdisone and I got off of 6mp and also was put on Remicade for the first time. I took Remicade since July and ended it in December as a recommendation from the nurses. They said it should have worked by now and that they didn't think it will work on me.
Afterwards, my past winter break (January 2014) I ended up getting really sick again towards the end of the month which landed me in the hospital once again. I actually began taking Cimzia for the first time that month. When I landed in the hospital I found out I had infections. One of them being pancreatitis. We're not exactly sure what caused it... all though I suspect it could have been the Cimzia. I was put on cimzia as solution to help me get off of perdisone. I've been on it since my hospitalization from last June. Everytime I taper off, it gives me the worst side effects. I also feel like my pancreatitis still exists because I have random inflammation. Tomorrow I will be to the doctor's for an endoscopy to figure out what's really going on. If my doctor doesn't feel like Cimzia isn't working (which at this rate, it isn't as effective as it could be) he wants me to start using experimental drugs.
I am actually very concerned about this. I realized how much these medications/ treatments effect my body and the toll it puts on my other organs. I'm not sure which is worse... my Crohn's pain or the new issues that my medications cause. I feel like I've been through everything and nothing is working.
I actually just kind of want to start a natural healing diet. Does anyone have any recommendations? One of my friends had gastroenteritis. I know it's different but she said when she started using aloe vera in her drinks it helped build up the mucus lining in her stomach and she is cured of her disease. Does anyone have any suggestions or advice? I'd be glad to listen!
When I met my new digestive internal medicine doctor I was put on 6MP. A week after I ended up in the hospital due to the fact that I was vomiting everything including water as well as having diarrhea. Nothing stayed in my system. I ended up staying in the hospital for a week. It was then I started 80mg of perdisone and I got off of 6mp and also was put on Remicade for the first time. I took Remicade since July and ended it in December as a recommendation from the nurses. They said it should have worked by now and that they didn't think it will work on me.
Afterwards, my past winter break (January 2014) I ended up getting really sick again towards the end of the month which landed me in the hospital once again. I actually began taking Cimzia for the first time that month. When I landed in the hospital I found out I had infections. One of them being pancreatitis. We're not exactly sure what caused it... all though I suspect it could have been the Cimzia. I was put on cimzia as solution to help me get off of perdisone. I've been on it since my hospitalization from last June. Everytime I taper off, it gives me the worst side effects. I also feel like my pancreatitis still exists because I have random inflammation. Tomorrow I will be to the doctor's for an endoscopy to figure out what's really going on. If my doctor doesn't feel like Cimzia isn't working (which at this rate, it isn't as effective as it could be) he wants me to start using experimental drugs.
I am actually very concerned about this. I realized how much these medications/ treatments effect my body and the toll it puts on my other organs. I'm not sure which is worse... my Crohn's pain or the new issues that my medications cause. I feel like I've been through everything and nothing is working.
I actually just kind of want to start a natural healing diet. Does anyone have any recommendations? One of my friends had gastroenteritis. I know it's different but she said when she started using aloe vera in her drinks it helped build up the mucus lining in her stomach and she is cured of her disease. Does anyone have any suggestions or advice? I'd be glad to listen!
