Hi,
I am sorry you are having all these difficulties. When you say your numbers are getting worse, do you mean your percent O2 saturation is still low and getting lower?
Thanks for checking in!
I sure appreciated your help last year!
spo2 is actually getting a scosche better
Averaging around 85~89%
i think the portable oxygen concentrator i'm using at night helps that a bit
it's an old, and tired unit and i have it set on 1.5 liter a minute, and only use it when sleeping, so it's not going to do much more than keep it from dropping down to where my pulse/ox finger tingler gives with the vibra massage (it does keep it above 90% )
... the gentle
to~pa~ca~it~ta~ pishhhhh sound it makes is soothing in a weird way,
kinda brings to mind Walter Mitty for us older folks who remember Danny Kaye's masterpiece
Most of the time these days if someone had O2 saturation of 83% I would at first suspect a bad case of COVID-19. But you had that number a month ago. If it were COVID by now you should be either recovered or on a ventilator in the ICU.
i saw 77% for a few moments up on the mountain at ~9,200 ft on my mountain property, the heart rate was also kinda nuts, 155bpm (have it set to alarm above 150)
... i was feeling kindy woozy,
.... so i stopped chasing my dog
... who was chasing a fox
... who was chasing a rabbit
... so i sat down on a rock to catch my breath.
By the time my dog came back, (covered in stickers, of course ) i was down around 110bpm, and my pulse ox was up to ~85%, but definitely still felt a bit short of breath
for reference, my wife and live at about 7500 ft here on my farm, and the doctors office in the city is ~5200 ft altitude
im quite curious what my carboxyhemoglobin will be this time ( it was over 9 last time)
the vfd staff sent me off with a CO pendant and i did identify a potential carbon monoxide problem at one of my out buildings, and also found that my yard truck i use up on the mountain would offend greta tberg a bunch, so i've avoided those this test cycle
i've cut my smoking down to 3 cigarettes a day (at most) and have maintained that this month (same as last time)
... going to be interesting to see what number comes up when they spin the carboxyhemoglobin wheel of fortune
What is your current diagnosis and what treatments are they recommending?
My last doc (professor) was doing some very specific labs and running down any/all lead he could think of before he pulled the trigger on anything other than drive by blood lettin
He called it secondary polycthemia/cause yet to be determined
He had a slow, methodical approach that i really appreciated
... awesome man!
and turns out he did have a sense of humour, it was just a bit ... british ...
at an appointment earlier this year, he said the staff was still talking about me from last years visits
said he had never seen so much laughter and high spirits ... ever ... in his staff
unfortunately, the hospital is shambles
pretty much the entire clinic staff quit, and these new folks are just pissy from the get go (not so much with me, more each other, it's ...ugly ... )
this new doc acts like he's some kinda wizard and only he can understand / treat this
acts like my test results are some kinda secret or something?
hates answering questions
... and has had no information or direction on where he's going with treatment
0/10
would NOT recomend
