I'm having a really hard time staying asleep. I take my entocort as prescribed, first thing every morning - and yet I cannot sleep... I fall asleep and then wake up and toss and turn. This morning I got out of bed at 530 and decided to start my day. Right now (5:30pm) I'm exhausted..... I lie in bed tired but wired.... is this normal? is it the Entocort?
Entocort and Insomnia
- Thread starter Binka
- Start date
Help Support Crohn's Disease Forum:
Astra
Moderator
- Joined
- Jan 21, 2010
- Messages
- 6,234
Yup, and it's a nightmare!
Not as bad as Pred, but it's still a steroid.
All I can suggest is, don't fight it. Go with the flow, sleep when you can, stay awake and do something else if you're wizzing, then rest, just don't toss n turn, this will make you more anxious. Just try to accept that this is out of your control and that the effects will soon reduce.
good luck
xxx
Not as bad as Pred, but it's still a steroid.
All I can suggest is, don't fight it. Go with the flow, sleep when you can, stay awake and do something else if you're wizzing, then rest, just don't toss n turn, this will make you more anxious. Just try to accept that this is out of your control and that the effects will soon reduce.
good luck
xxx
- Joined
- Apr 10, 2011
- Messages
- 265
Funny, I never had insomnia with Entocort (on it for 6 months), but I do with Remicade. Insomnia sucks hard. I can, at times, counter it by making myself extra exhausted during the day (exercise, physical chores around the house, etc) so that I basically pass out at night and am so physically tired that I don't wake up until a normal rising hour.
The thing is that I lie there, totally exhausted but too wired to sleep.... its insane....and I don't know why but my knees, ankles and hips hurt as well... don't know if this is from trying to find a comfortable spot or meds? or just age?? (I'm 50)
At any rate... I'm not a happy camper. I'm trying to stay up later so that I will pass out...hopefully I will not keep waking up like the past couple of nights. :ybatty::ybatty::ybatty:
Thanks for your insights...!!
At any rate... I'm not a happy camper. I'm trying to stay up later so that I will pass out...hopefully I will not keep waking up like the past couple of nights. :ybatty::ybatty::ybatty:
Thanks for your insights...!!
Wow, I am so glad I joined! I am off my Entecort until I get my Dble Balloon thingy all out of the way. I have been off for 5? days now. And looking back; I did (still a little now) have trouble sleeping! Thanks!
Astra
Moderator
- Joined
- Jan 21, 2010
- Messages
- 6,234
Hiya Binka
and this is why I'm on Amitriptyline!
Whilst on Entocort I suffered headaches, joint pains, knees and hips etc
Amitriptyline is my Godsend, I'm loving it!
I take it at 10.30pm and I'm in a coma til the alarm goes off!
It's a good pain blocker and at higher doses, it's an anti depressant.
hope you get something sorted, not fair to suffer like this, ask about Amitriptyline.
xxx
and this is why I'm on Amitriptyline!
Whilst on Entocort I suffered headaches, joint pains, knees and hips etc
Amitriptyline is my Godsend, I'm loving it!
I take it at 10.30pm and I'm in a coma til the alarm goes off!
It's a good pain blocker and at higher doses, it's an anti depressant.
hope you get something sorted, not fair to suffer like this, ask about Amitriptyline.
xxx
I have a similar experience. On Entocort now, and I am dead tired but dont sleep through the night at all. Not only do I just randomly wake up, but I have to urinate about every 2-3 hrs too. I have sudden bursts of energy followed by a period of being barely able to hold myself up. Gotta love those roids!
Starting 6MP and Humira in a couple weeks. Hopefully I can sleep better then.
Starting 6MP and Humira in a couple weeks. Hopefully I can sleep better then.
- Joined
- Jun 24, 2010
- Messages
- 2,040
How frustrating! Do you know how long you are going to be on it? I was told by my GI that systemic symptoms don't happen when you're on Entocort, but I know that's a load of bull! My migraines went off the charts!
How long have you been on it? I got mania with Pred for about a week, but then it went away and I kind of missed it, as I started being tired all the time. I hope the side effects ease up on you a bit. And yes the joint pain could totally be caused by the Entocort.
How long have you been on it? I got mania with Pred for about a week, but then it went away and I kind of missed it, as I started being tired all the time. I hope the side effects ease up on you a bit. And yes the joint pain could totally be caused by the Entocort.
