Ever feel like you are just going to drop over...and random questions..

[horseluvnhonee]

HI all..

Just a little update on me....I've been in some sort of flare since Valentines Day. :eek2: The joint pain and fatigue is just about killing me!! I got so fed up that I called my pcp on Monday and he started me on a trial of Prednisone. During this flare...I've been running fevers of 100 to 101...not an uncommon thing for me but the problem was..I could never get the thing to break...with Vicodin or Ibuprofen.

So...I'm on day three of my prednisone and I think it might be slowly starting to help....I have been able to break my temp now and some of the flu like feeling has gone away...ahhhhh. I had a f/u today to discuss pain meds. I had been out of my Vicodin for a few days but didn't have the heart to ask for a refill on Monday when I talked to him. I'm finding out I can live without the Vicodin but it is very,very hard. Today he switched me to the 10/500 so I'm not getting so much tylenol. I'm a nurse so it's very hard for me to be on the Vicodin and I am so worried about addiction,etc.....I know I've built up tolerance and dependence to it...but I don't know what else to do?? It seems to be the only thing that gives me some relief. I think I'm more worried about it than my doc is...but still...i feel guilty for using it.

I've still been having issues with right sided pain that goes into my back...also still having mucous in my stools at least every other day. Last night the mucous was bloody again. A few times lately.....it's just been jelly like mucus with no stool..weird???

Anyways...still not convinced it's Crohn's but part of me thinks it makes sense...the low b12, iron,etc. I have my appt with the GI next Friday.....I'm ready to do any testing she wants...I am so desperate for some kind of reason for all this pain,etc.

On an off note...does anybody has severe heel pain/pain on the bottom of their feet? My rheumy said this can be quite commonly found with IBD?? My feet have been hurting soooo bad...I can't even walk on them sometimes.

Another question....does anyone have a red rash on their palms? That was one of my first sx and again..my rheumy said she see's it all the time in autoimmune issues.

Ok..one more....does anyone have mouth problems? The whole inside of my mouth peels all the time...I also get very gross and painful blood blisters that just randomly appear???

Ok..enough from me....hope everyone is as good as they can be.....I'll keep everyone updated. Thanks again for welcoming me here...even though I don't know if this is where I belong?? LoL

Hugs,
Olivia

 

[Nyx]

Hi Olivia...I've had the foot pain, but never associated it with the Crohn's! What I found helpful was using a bag of frozen peas (or whatever you happen to have and don't like in your freezer) under my feet while I'm on the computer. Just roll the bag around on the floor under your feet. Also, doing some isometrics helped as well. Stand about 2' from the wall with your hands on it at shoulder height. Then go up and down on your tiptoes for ten times. You can do this as many times as you like, or can stand. I found it stretched the bottoms of my feet and felt better.

I don't have answers to your other questions as I don't have any experience with those.

Good luck to you! Hope this was helpful...

 

[imisspopcorn]

Hi Olivia...you poor thing.....I do get the heel pain. I have started taking calcium supplements and it disappeared??? I'm a nurse too and have aching feet as a result of those 12 hour shifts. I know what you mean about the drug dependancy. As a nurse we are always in fear of losing our license if we become addicted. As long as you are taking it as directed, you have a doctors order and should not have anything to worry about....It is such a slippery slope....Do you feel impaired when on it?

 

[Crohn's 35]

Hi Olivia, whoa, lots of questions lol... I understand the Vicodin drug thing if I took anything for pain it was half a pill and food. Just enough to kill the pain. I worry of addictions too.

I also just went through the bloody mucous and not a stool formation but with light coloured blood and had sigmoid scope and biopsy and Gi said he suspects Colitis. Waiting for results.
I am on B12 shots but late as of my recent shot and potassium. The Ileum is where everything is absorbed and if you are having inflammation you could be not getting what you need. AS you know B12 is very important.

I have had heel pain usually from Cipro, so I know when it is time to get off it. I was just on Cipro/Flagyl and pred IV and pills. Now on 40mg of pred and taking Calcium and Vitamin D3. I also take VSL with yogurt to help the bad bacteria stay at bay.

I get canker sores and just getting over a cold sore on my lip, cankers are painful and was told to rinse with peroxide and avoid acidic foods.

I have had painful feet a few times to the point I couldnt walk and also when I had a reaction to Remicade.

Only thing I dont get are the rashes on my palms... pretty bad odds on the rest , so I am guessing Crohn's cause havoc to our systems.

You belong here just fine, hope I could answer some of your suspicions of Crohns and side effects! Take care.

 

[horseluvnhonee]

Thanks so much you guys...I sure do feel the love here!!! Yeah...the pain med thing has always bothered me....before all of this started...my main "issue" was endometriosis. I would take Vicodin during my period because I had horrible cramps.....and it was either take the medicine or roll around on the floor sobbing. Luckily since having Cooper in 07'...my periods have settled so much and what a blessing...if I was dealing with all this stuff/plus that...I think I would have jumped off a cliff by now!! It's such a double edged sword.....I don't go into massive withdrawls without the Vicodin but I do definitely have the pain. They help, I'm using them as directed, always have my pcp refill it and always use the same pharmacy. One minute I feel horrible for taking them and then the next minute I'm like...this is crazy...noone should have to go by hour by hour, day by day with this much pain. I'm a full time mom, full time nurse and full time housewife...lol....I can't afford to not be functioning.

Yeah...I'm pretty convinced that if I do have GI issues/crohn's etc...it's definitely in the ileum area. Using my nursing school anatomy book...(lol)....I estimated the ileum to be pretty much straight across from the hip bone...that's exactly where my pain is. It's so hard with belly pain and me....I still deal a little bit with the endo, ovarian cysts and adhesions...it's so hard to say what is causing this pain....it's definitely intensified since I started having the strange stools...and got even worse after my "incomplete" colonoscopy...(I suppose perhaps from the prep and "digging around" trying to get that darn scope down the right side...(which he couldn't).

Yeah...my heels/feet are killing me tonight.....I am going to try the frozen pea thing...thanks Nyx!!!! I find my rheumy to be extremely educated and up on things so I guess if she says the heel/foot pain is common with IBD...I guess I'm going to believe her..lol. She said..just like the "spill over" of inflammation can get into the joints...it also can get into the fascia and tendons that run the length of the foot. I swear I learn something new about this everyday.. ..a lot of it from you guys!!

Ok...thanks again all...you are too sweet!! I will definitely update you after my GI appt on the 5th. I'm leaning towards the capsule endoscopy...but we'll see. I have never felt so bad in my life and so desperately want to get to the bottom of it....for myself, for my hubby, for my Cooper,etc......other than the medical stuff...I am happier than I've ever been...job I love (it was a true blessing from God...that the job in telephone triage came up for me a few years ago...I think God knew something was coming for me and He knew that running the floors, working nights on med/surg would have killed me), best hubby in the world and best little man, we are also hoping to buy land soon and build.....can't wait to get back into my horseback riding . Ok...gosh I ramble a lot! Thanks again all!

Olivia

 

[RogerDoger]

HI all..


On an off note...does anybody has severe heel pain/pain on the bottom of their feet? My rheumy said this can be quite commonly found with IBD?? My feet have been hurting soooo bad...I can't even walk on them sometimes.

Holy cow, yes I do! Wine helps.
Imagine running a business where you do heavy....I mean heavy....lifting every day. Most of the time I grin and bear it, but I know I'll soon either have to give it up or hire some young f***ers.

 

[Rob]

I havnt had heel pain, but my calves .... geeez they kill feels like someone gave me a dead leg at times upto where it feels like my Hami is gonna explode our the back man it's bad
I been usin Elmore oil works wonders that an just panadole - (paracetamol)
seems to make a difference

 

[Astra]

hiya Olivia!
yes you defo belong here, welcome!
There is someone else one here who's mentioned red palms, but I haven't experienced that one yet,
no heel pain, but sometimes I cant bend down cos my knees ache soooo much!
Old age, that, I think!

yes, my mouth gets very sore, and lots of ulcers too, but my worst, is a sore tongue, it cracks! Dental hygieniest says thats common with CD,

From the tip of your tongue, to the tip of your bum!

besta luck xxx