Fear have come true

[smhdoormouse]

fear have come true

went last week for c scope and at the time the doc says i dont have crohns ugh i was afraid this would happen cause it took so long for a dignose and a speical trip to a big wig hospital he said that we have to wait for biospy to come back to be sure but he dosnt think so he just dosnt know what is wrong again here we go with we dont know what it is i mean im not saying i want this disease but it was better than we dont know what is wrong it must be in ur head and on top of that the meds didnt work again and i was mostly awake and i told the doc to stop and he didnt i hate doctors i really do i have just been in shock since the test i dont know what to do i mean if i go to another doctor c scope again would be what they would want to do and i cant go though it again so soon i have been depressed since the test i just feel like giving up i mean i cant go though this we dont know whats wrong again i really cant i cant go though well there is really no reason for u to be in pain no reason why u have blood in ur stool no reason for ur dirharia with the dignose it least i had something to go on u know i could go to the hospital when i had bad pain i give them a reason for it not they have no idea i am sorry so long just needed to vent but i guess i dont belong here i dont have it even though i was told in 05 i had it and in may i was told by a ct scan there was inflamation and it was my crohns flaring i have also done my own research and this disease fits everything that i have been going though for many years 31 now and this disease fits things dating as far back as my teen years at least if not before anyway i just dont know what to do now or even can anyway sorry so long talk later gotta go

 

[shazamataz]

Hi doormouse,

Sounds like you are having a very frustrating time!
You are always welcome here. There are a number of people here that are struggling to be diagnosed and just because you don;t yet fit into the Crohns 'box' this is a good place to be
Hope you get some answers soon - don't give up!

 

[Guest]

hi doormouse.. firstly i just want to say you are not only welcome here, you're entitled to be here! this forum is for anyone who's life has been affected by IBD, we have partners of sufferers, people with other issues than Crohn's - and you certainly sound like you could do with some support... so please, stay!

it really sounds weird that you're having all these symptoms, AND you've been told you have Crohn's at one point, only to be told they now can't find a reason. you poor thing, you must be tearing your hair out after all these years and getting nowhere. let's hope the biopsies show something... i know what you mean, no-one wants Crohn's, but having a definite diagnosis is sometimes a relief when you've been suffering and not known why.... particularly if people hint you're imagining it.

let us know how things go.. and please, stay around - & if you need any advice or just want to moan.. go ahead.

 

[Crohn's 35]

HI there, I know how frustrating it can be, but as you have, I had many scopes, ct scans barium....nothing....then went to a teaching hospital in Toronto and 5 min later the doctor knew right away. I thank God because I had lost 40 lbs and wasting away. I had from the mouth to the intestines endoscopy scope with a barium push through and even I could see it. Yep I was awake, scared but it was after a year of test and drinking stuff... it is very hard to diagnose and if you still have symptoms, you have to keep finding a GI that will take you seriously ok. Like Shaz says, dont give up!

 

[farm]

:welcome: I'm glad you found us; you will find great support and info here.

 

[Nancy Lee]

I just wanted to say that you are welcome here anytime.
The door is open to you and since you have a yet undiagnosed IBD
you are more than welcome to stay.

Hope you get a diagnosis soon.

Welcome and healing hugs~Nancy

 

[smhdoormouse]

thanks

Thanks for all the surport i feeling like pulling my hair out though it has been a rough time and since this recent doctor told me this i have just been so depressed and feel so hopeless i have kept this to my self till last night i cant talk to my family there not big on doctors and my mom dosnt think i have it she just always disgrees with doctors i just didnt want to hear from her i told u so my boyfriend was the only one that knew i was going though this part of it and we arent getting along well right now either probally mainly me but he has just been on my nerves lately i know its me i hate this i hate my life ugh ok ill stop for now ill check back later

 

[Jennjenn]

Dont give up smhdoormouse. Just because they have not found what it might be yet that doesnt mean that they wont. Just keep on following up on this and then you will feel a lot more relieved when you find out whats making you sick. I know that times can get rough. I also can understand the not wanting to hear things from your mother who thinks she knows it all. (I have one also!) But in the end no one knows exactly what your feeling and going through but you. Dont listen to things that might stress you out, just keep pushing for answers so you can start to feel better.