Feeling bleh

[Kate77]

feeling bleh

Hey all,

I am 23 and was diagnosed with Crohns at age 7 in 1994. At the time not many people knew what it was, so it took over a year to find a doctor that could tell my parents what was going on. Unfortunately it seems to be pretty common now, when I told people 10 years ago what I had I had to explain it. Now I don't, which is kind of a relief, but it sucks at the same time- I hate that more people are having to going through this.

My mum has been my rock, she is an absolute godsend.

I've been on imuran, salazopyrin, salofalk, prednisone, a liquid and milk based diet when I was 11 that I can't remember the name of, humira and remicade (and probably a few others my parents tried when I was younger, and things I can't remember).
I am currently on imuran, salazopyrin and have a remicade infusion every 8 weeks (though I have had a bad cold for the last few weeks, and am overdue by about 3 weeks and am really feeling it).
Prednisone stopped working over a year ago, so I went on humira and had a localised allergic reaction to the injection site, so I was put on remicade (which the govt. pays for thankfully as all other treatment has failed).

I have been with my boyfriend for about 9 months, and seeing as I have been on remicade for almost a year he has never seen a bad flare up. I am a little afraid I will push him away (as I seem to have done in the past), or it will freak him out (there is little chance of this though-he takes me to all my doc appointments and is incredibly supportive =) ).

I've never really spoken to anyone with Crohns, and I figured it was about time!!! =)

Katie

 

[Crohn's 35]

:bigwave: Hi Katie, welcome to the forum! Glad you found us, there are many young people here and others who can share their experiences too.

Your body seems like mine now with no meds being able to stablilize you. Hope you can get back on track.

I know it is scary to think some of our partners could flee but it really shouldnt be a concern too much as that is stress and can cause your CD to flare more. Take it one day at a time. It is hard enough for us to deal with it and sometimes outsiders don't even grasp that even meds that help us there is no cure. Always look after yourself, and try not to eat things that upset your Crohns.

Glad you found us! Many great people here to help you along.

 

[Kate77]

thanks! =D

 

[Rob]

Welcome aboard Katie
another Aussie, seems a few of us on here now

I'm sure that if you have a flare your bf would be supportive, seein he takes you to ya drs appt now, so he must have an idea of what cd is an some of the problems

hope ya find some answers an tips here

goodluck

 

[Regular Joe]

Hi Kate,

Glad you could join us.

About the "boyfriend" thing. If he's taking you to appointments, give him a chance, and encourage him to find out more about this condition. I say this because at one time I was a "boyfriend" that didn't have the disease (probably had it but it was in remission and I didn't know what it was). But I love my girlfriend and it was hard just standing by and watching, not knowing what I could do to make things better. So I dove into learning about this, and I became a much better friend and companion.

So your boyfriend probably wants to be the best friend to you that he can be. If he's never been with you when you flare, it will be better for him to understand what happens, instead of knowing you the way you are now, and then face a change that easily drives all of us toward isolation and irritability. That's just how this disease works as hundreds who post remind us what flares do.

Welcome again and good luck on your journey.
Joe

 

[Dallies]

Hello there Kate and welcome.

 

[donna martinez]

Hello katie, welcome to the forum

 

[reidyjo81]

Hey Katie,

Welcome I had the same dread when I first got with my partner, was only 26 at the time and was scared he wouldn't want to be with me if I had a flare. Lucky for me in the past couple of years only had some minor flares that have been blasted away with pred so he still doesn't know what i am like in a big one but I know he would stand by me as he loves me and sure the same applies to you.

Lots of advice on here, so have a look around.

Positive thinking.
Jo xxx

 

[Aura]

HI ya Katie
Welcome to the forum zythunder: :banana:

It's great that your bf is coming to your appointments. My hubby wanted to go buy dvd's rather than come to mine, but I let him know that he was going to be a supportive hub and come with me.

There are lots of friendly people here, quite a few aussies as well. I look forward to seeing you in some of the threads, take care and have fun.

 

[Dexky]

If he's taking you to appointments, give him a chance, and encourage him to find out more about this condition. If he's never been with you when you flare, it will be better for him to understand what happens, instead of knowing you the way you are now, and then face a change that easily drives all of us toward isolation and irritability.

Hi Katie, I really agree with Joe here. Better to be proactive and prepared for the changes a possible flare could bring. If he knows ahead of time what to expect, there'll be no big surprises. Best of luck.

 

[Kate77]

thank you for the warm welcome and the advice guys, really feels nice =)

i think i'm going to speak to my boyfriend tonight, and just let him know how i'm feeling. if i don't i think i will just stress out more, and we all know what happens when we get stressed =(

 

[DustyKat]

Hi Katie and :welcome:

Another Aussie! YAY!

Yeah, Mum's are great aren't they.:wink:

I agree with what the others have said about involving your boyfriend. I hope things continue to work well for you. There is a Remicade thread here -

http://www.crohnsforum.com/showthread.php?t=4544

BTW, I grew up in Sydney and Roo now goes to Uni there.

Take care,
Dusty

 

[Astra]

Hi Katie
and welcome

I'm in a new relationship too (one year) and so I know how you feel. my boyf hadn't seen me in a flare neither til this year when I ended up in hospital, and I was dreading it! there I was dying, and worrying wot he was gonna do, dump me or stay? crazy!!
of course he stayed! he knows he's on to a good un ha ha
but he has been my rock!
your boyf will be the same too, don't worry! talk to him
effective communication is the key to success!
good luck, glad you found us
lotsa luv
Joan xxx

 

[silver]

Hi Katie! (Hey you're my age!)

I hope the talk with your boyfriend went well, he sounds like the supportive type so it should be alright!

Welcome to the forum!