Feeling sad :(

[stylinmama]

Hi all! It's been awhile since I've posted....probably because I've been in remission for two years. Anyway, flaring now and my dr REFUSES to prescribe pred. Stating that the risks outweigh the benefits. So now he's got me on 20mg buscopan 3 times daily, Tylenol3 up to four times daily, and asacol of course 800mg 3 times daily. Now since Tuesday, the day my flare started, I've lost seven pounds and I'm in pain almost all the time. I'm only eating between 600-800 calories a day, I really just can't force anymore food into me . Has anyone else been on this cocktail of drugs and had it work for them? I want/need some relief before I waste away into nothing and/or have to give my kids away because I can't give them proper care while I'm like this. Is there any hope this will work?

 

[mickey]

There will be a light at the end of the tunnel...hold out for it. I have not experienced that, but hope that it helps you. Feel better!

 

[Rebecca85]

Buscopan and Tylenol3 will only treat the symptoms, they won't affect the disease process. Asacol is the only Crohn's med your doc has given you, and that is for maintaining remission, it won't treat a flare!

I would go back, and explain very carefully that you are in pain, you can't eat, you can't look after your kids, you have lost 7 pounds in 7 days, and that you are more at risk from NOT taking the pred.

If that doesn't work, tell him that he is at risk of being fired! And go get a second opinion!

 

[JerseyIrish79]

I know how you feel, I'm currently flared up and fighting either severe D or C every day but my doctor's don't seem to understand the pain I'm in and keep switching around my meds before telling me to come back in a month. It's affecting my work, my personal life and has driven me into a deep depression. Friends and family tell me to keep faith in the doctor and to just keep going to work day after day in pain to show my dedication. I've been down these roads and it's always the same. I feel worse and worse and my performance at work suffers.