Finally, decent care!

Crohn's Disease Forum

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Joined
May 24, 2011
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660
Haven't been here for a few weeks, I've been going downhill. Lost so much weight, I've been hospitalized in June, July and August for 4-7 days each time, pretty much for no reason, they gave me fluids enough to get my weight up and antibiotics to make me ill. Finally came up here to UAB to see a real doctor. When the doctor asked who referred me I told him I referred myself. He was surprised that I would drive 5 hours to see a new doctor but I told him my doctor had given up on me.

The doctors here are amazing!! They actually are concerned about my condition! The GI specialist I saw said he would do anything it took to get the vomiting to stop, he was worried that I couldn't even keep fluids or my meds down. My GI before wasn't concerned at all about the vomiting, he thought I was doing it to myself because of stress. He also suggested my abdominal pain was from my ovaries. Grrr.

I'm pretty scared, I don't know what's going to happen. I'm going to have a colonoscopy and endoscopy, doc is worried the Crohn's may have moved to my stomach. He also said he would do whatever it took to make me better, even if I need surgery. That scares me too, but I just really want to get better. I can't live like this anymore. At least I finally have some hope.
 
I'm sorry you're feeling so terrible, but thank goodness you finally got a good doctor who will do whatever it takes to get you on the mend. I'm excited and very hopeful for you. Keep us updated!

*hugs*
 
I can relate to how you feel! It sounds like you're in good hands. You can often tell by just talking to a doctor, can't you? Good on you for going to them...

Hope you're sorted asap.
 
Thank goodness you are being seen by someone who wants to get to the bottom of what is going, and to help you!

I'm so glad you are being helped, and by someone who sounds like they really will DO SOMETHING!!!
:kiss::kiss::hug::hug::kiss::kiss:
 
I hope this is the new perspective you need to get you feeling better again!! If this doc is willing to work with you and figure this all out, hopefully you can maintain remission and not have to travel so far too often. Stay positive, I know you've had a rough go of it, so hang in there! We're all cheering for you!!
 

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