Flare Up Time

[TammySue62]

Well spring has almost sprung and this means alot of flare-ups
for most crohnies again.


Anyone else been slowly getting sicker and sicker...

I mean the big bad "D"s ,nausea ,wicked heartburn stomach pain
and my entire body just aches.


I feel like total crap!!!


I am really hoping that my remicade infusion will make me feel better
tomorrow if not then I am definitely in a flare..........just great:mad2:

 

[mRae85]

Weeeelllllll, now I know why I feel like...."crap"! Didnt know this... was a seasonal thing too. Your not alone... litterally the blood, sweat, tears, nausea, heartburn like crazy, REALLY BAD PAIN IN MY SIDES, aches, and pains are killing me right now Cept instead of D, I am dealing with the worst C i have ever had. I get the urgancy about 20+ times a day, but seriously.... almost nothing happens!!

 

[Kittee]

<------------------

YES. YES. YES.
My next infusion is in April and they are giving me a double dose. 10mg instead of 5.

 

[Mark33180]

Maybe i'm just the opposite but i seem to flare more oct thru feb times... not spring or summer

 

[Mazen]

Yes, I have been feeling worse every day. Now i'm having severe pain that is waking me up at night. I will take a 10 day course of Cipro and Flagyl and hope it works like it did before....

 

[daisy_dueller]

Maybe it's our bodies doing it's own little bit of 'spring cleaning'???

I've never noticed a change with the seasons...but then again...I haven't really been paying attention either!

 

[TammySue62]

Yes, Tammy I am right there with you, but awaiting for 4 weeks now for Cimzia to be approved here in Canada, from the company or....... surgery, ugh!

Hey Pen since you also live close to me (in Canada)can you let me no your
progress on the cimzia approval. The remicade is working a bit to control
some of the side effects but dwindling rapidly.

Im also on the list for surgery. Dam fistulas just will not settle down.

 

[TammySue62]

Well I had my infusion on Tuesday but have not felt any better.
Actually my body aches more....... I hope and pray its not surgery time...

 

[GoJohnnyGo]

Yeah, tough go of late for me too...

Still running through all the various tests after my initial GI consultation. Maxed out on the Asacol, and putting off the Pred.

Just generally not feeling good all over.

 

[mRae85]

Aww sorry to hear you are so close to going under the knife tammy and pen

I haven't noticed if the seasons make a difference but I've only been diagnosed a little over a year, so this year I will pay close attention and then this time next year I will know for sure :lol: If it does, as I said at least it explains why I am going from bad to worse again.

 

[D Bergy]

More sunlight would increase vitamin D production causing an immune system boost. It could be fighting the immune suppressing action of some medications.

Some people feel worse in the Fall and Winter months. Lower immune function due to lack of D.

Either way the seasons change our body chemistry. I can't think of many alternate explanations.

Dan

 

[ChefShazzy]

I'm going through my fourth flare in two years, since being diagnosed in Spring 2007. I've been home on prednisone for over a week now, and I'm *just* starting to see an improvement in symptoms. It is getting harder and harder to stay positive, especially with the mood swings I get now that I am on a high dose (60mg) of Pred...

I'm just so weak and exhausted, it's tough for me to look at the calendar and think that I have been confined to my bed, couch, and bathroom for 8 days.

So, I couldn't say if it is the season that's causing me to be sick, it seems that every 6 months or so, my body just decides it's time to shake things up. I've tried Asacol, that wasn't effective... I went on Imuran and had a reaction.... I just started 6MP a month ago, and after a week on it, I began to show symptoms of a major flare... So, for now I've discontinued the 6MP until I am a little stronger. I hope it works because I am worried about the next steps (remicade, humira, surgery??)...

 

[ThatGuy2006]

This is actually the first time that I havent been flaring during the beginning of spring. I usually get really sick around october, and I go up and down until about june...so really july, august, and september are my only "well" months.

 

[DanM]

I hope that seasonal changes is the only reason why I have been flaring the past few weeks...

Dan

 

[TammySue62]

Hi Tammy, I am sorry you are still not getting relief from Remicade. I was on it but by the 3rd shot I ended up in the hospital from a bad lymphatic reaction. Then the Humira was not too bad but peter'd out. I am hoping I hear something soon about the Cimzia just waiting for Cimzia, my Gi is trying his best to get it. Mike (Kimberlie's Mike) just got the Cimzia shot today, hoping it will help his PG.

I will keep you informed though. I live in Thunder Bay area so we are still on the map lol.

How many surgeries have you had and exactly where?

Hang in there ok.

Penny

I have had 2 thus far but this time around will be major. An illeostomy (sp)

its the fistulas giving me grief they just will not settle down.

 

[ChefShazzy]

So my flare still hasn't subsided... GI called today, looks like I may be starting Remicade soon, but they discovered a 'growth' on my liver, so I have to go for some more tests to determine if it is safe to proceed... Arrrrghh... Scared.