Flaring after resection
- Thread starter LTomes
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I don't want to alarm you, but I recently watched a lecture by a GI who specializes in IBD who said that flaring soon after a resection is too frequently a result of a mistake in the surgery. I would suggest meeting with your GI about this and maybe going to another surgeon for a consult?
I can't speak from personal experience though because thankfully I haven't had to have surgery…
I hope you feel better soon :hug:
I can't speak from personal experience though because thankfully I haven't had to have surgery…
I hope you feel better soon :hug:
fuzzy butterfly
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Hi LT i had a resection n ileostomy 21mths ago, no flare n no flare since reversal of ileostomy 10 mths ago. I would get back on to docs asap. . It can flare soon after tho.. it maybe coz of what Dr mommy said but cant be sure till u get checked i guess. Best of luck. 
fuzzy butterfly
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Your welcome. Hope you get answers n relief soon. 
Here is the link to the video.
https://www.youtube.com/watch?v=ikCdHbOSFHY
Listen/watch from 5.00 to 6.20 (or so), I'm not sure this describes what you're experiencing but I think its helpful information to know when going to the specialist. Best of luck, I hope you feel better soon!
https://www.youtube.com/watch?v=ikCdHbOSFHY
Listen/watch from 5.00 to 6.20 (or so), I'm not sure this describes what you're experiencing but I think its helpful information to know when going to the specialist. Best of luck, I hope you feel better soon!
I think you misunderstood the lecture, but hey i could be wrong. The dr is describing when there are complications from a poor surgical procedure. He refers to the patient flaring within a week while still in the hospital and developing 2 abscesses following a resect... not necessarily the disease flaring again, but either way you should def make sure they check you out and do bloodwork, tests, etc.
I personally had my first resection in sept 21 this yr, and i wouldnt say i began "flaring", but 6 wks following surgery, i began to feel just as i had felt prior to surgery, not nearly as much pain, but def went from feeling "brand new" with tons of energy, to feeling "fatigued" all the time, achy almost arthitic pain, went from having an amzing appetite, to fearing food like the plague again, never, not once did i get a break from the D. Started remicade again in nov, and didnt feel any better at all, so just started humira yesterday. I also had a abdominal mre with cotrast and they said everything was lookin good, and bloodwork was showing no markers for inflammation. And even showed the markers of when i was flaring out of control. Was like 34, and now it is at like a 3. But i am so miserable, which absokutely scares me, the only thing i am thinking is that i also have IBS as well now, as IBS will not respond to the treatments for CD. So the good ole waiting game which i am so fond of is where i am at. But for you, just really make sure to stay on your surgeon/gi doc to make sure your watxhed over. By the way, when you say your already flaring, what exactly are your symptoms?
Just curious, when u guys are experiencing "flares" what is occuring symptomatically? Ever since my original "flare", my disease has just been what i would say, uncontrolled? When i intially "flared" i was running a fever of 104.3, stomach cramps, diarrhea, nausea, and i went into the hospital on no food/liquid for a week, with iv of flagyl and metronizadole. But other than it not going bonkers again, i have always felt as if it was out of control, wiuld that be considered flaring, or is flaring when there are indicators of inflammation and other markers showing signs of active disease.
Maybe I am mixing up having symptoms with having a flare. I just know im tired of having this feeling. And at the same time i have mentally accepted that this is going to be my reality and that ill never feel better again.
Maybe I am mixing up having symptoms with having a flare. I just know im tired of having this feeling. And at the same time i have mentally accepted that this is going to be my reality and that ill never feel better again.
My symptoms are just extreme pain in the lower right part of my stomach and also my back.. I can't walk well when i flare do to the extreme pain it's miserable and actually when I'm at my worst of flaring I'm constipated. But it also hurts for me to push when I'm flaring.. (Sorry for the tmi) . Which I think is strange because everyone talks about running to the bathroom. But once I start swelling it's hard for me to go where otherwise i go more frequently.. But it's definitely not under control I never honestly had relief from surgery.. They have put me back in prednisone which was the only thing keeping my pain under control because i kept telling them I was uncomfortable still on my lower right side.. And they just thought it was from surgery but tampered me off prednisone and literally 3 days later in immense pain.. I waited a few days to see if maybe i just over did it.. But kept going.. Called my surgeon he had me in for a ct scan and then he thought I might be backed up so had me on laxatives and everything for the weekend- which for the record that one hurts because i was already flaring and then those make your stomach contract to go .. Goodness it hurt.. But anyways ended up back in the hospital where they re did my ct and saw i was right I was just a flaring.. It's been a nightmare! In haven't had relief of this since it all started.. But they put me on prednisone and the next day I felt much better not good i still hurt but at least with the prednisone i can get up walk and move around..
I understand not knowing what your going through and feeling.. I just started this journey in September.. Initially i felt like I had the flu and back pain.. And just minimal pain on my lower right side.. So my symptoms very a lot and i would say there all related if your not flaring I would think you would feel well but again I'm no expert.. And mine hasn't stopped at all since all this began.
Same here, other than 6wks of feeling good following surgery, i have felt terrible sonce 2010. And, with all the pain, i have a feeling of urgency, like "needing" to go, and it is always diarrhea, but i am also like constipated, almost lime my body is fighting itself. Like its swollen, and cant go easily, but when i do go its very loose, or watery, sorry as well for the tmi. Plus, when i am able to go, it is relieving but also it is painful, and rains painful for quite some time after having a bowel movement. Havent had much relief from the pain myself. All those ct scans are bad for you, they say they are like 100 xrays. At least thats what i was told. I hate this disease.
Hi,
I had a perforation (in ileum termunal) on the July of 2014 and six months later, while I seemed to be in remission after the surgery, I had a flare-up which led to bleeding in three points. As the location of pain felt the same locatiin if the surgery and I suspected there was sth wring with the old surgeon, my doctor ensured me that this is new and the images confirmed so. I have been on prednisone+antibiotic, beside Asacol, since then and 3 months after the bleeding I went back to remission.
I had a perforation (in ileum termunal) on the July of 2014 and six months later, while I seemed to be in remission after the surgery, I had a flare-up which led to bleeding in three points. As the location of pain felt the same locatiin if the surgery and I suspected there was sth wring with the old surgeon, my doctor ensured me that this is new and the images confirmed so. I have been on prednisone+antibiotic, beside Asacol, since then and 3 months after the bleeding I went back to remission.
Thx for the reply. Maybe i am just being impatient. Just hard to feel that short period of feeling good, and now feel just the way i did before surgery, and having mri and bloodwork be clear, as of right now at least. I am curious to see how a colonoscopy or endoscopy looks though. Im just feeling like crud, i dont get it. And its depressing.
