Flare ups suck.
I'm halfway through my inflectra cycle, they checked my antibodies and medication level at my last infusion and they were fine.
And yet, here we are.
I might have triggered it by trying to be a productive member of society.
We painted the living room after years of talking about it. A friend helped, the whole family helped out.
But I way overdid it. I was incredibly wiped out.
But I went to work the next day. And had to leave early.
I had my first pool therapy appointment the next day and felt good for a day.
And then felt WAYYYYY worse on the 2nd day.
I canceled the 2nd appointment because diarrhea and pools don't mix.
I worked 90 minutes yesterday and then quit.
The fatigue, pain, and diarrhea suck. My bones hurt! What's up with that?
I've seen a rheumatologist in the past. He diagnosed me with fibromyalgia, twice. And his profile says that he wishes people knew that rheumatologists don't manage pain or fibromyalgia. All the RA tests were negative. I've heard of sero-negative arthritis, but I'm already on Inflectra.
Shouldn't that fix the SA, if I had it?
I had to run errands today, and I was so exhausted that I used the scooter cart thing at Target. There were several available, but I still felt stupid doing it.
But on the other hand, I didn't pass out in the store.
So, what am I doing? Trying to rest and drink lots of water.
Trying really hard not to take NSAIDs. I have an upper endoscopy in a month and my doc always points it out if he sees I've been taking them.
If it keeps up I guess I'll call the GI clinic.
But I hate the poop hat stool collection song and dance.
Maybe it will just go away
I picked up some bananas so I can make smoothies. Everything else is like eating shards of glass. Yay.
I hope everyone else is having a great Fall season!
I'm halfway through my inflectra cycle, they checked my antibodies and medication level at my last infusion and they were fine.
And yet, here we are.
I might have triggered it by trying to be a productive member of society.
We painted the living room after years of talking about it. A friend helped, the whole family helped out.
But I way overdid it. I was incredibly wiped out.
But I went to work the next day. And had to leave early.
I had my first pool therapy appointment the next day and felt good for a day.
And then felt WAYYYYY worse on the 2nd day.
I canceled the 2nd appointment because diarrhea and pools don't mix.
I worked 90 minutes yesterday and then quit.
The fatigue, pain, and diarrhea suck. My bones hurt! What's up with that?
I've seen a rheumatologist in the past. He diagnosed me with fibromyalgia, twice. And his profile says that he wishes people knew that rheumatologists don't manage pain or fibromyalgia. All the RA tests were negative. I've heard of sero-negative arthritis, but I'm already on Inflectra.
Shouldn't that fix the SA, if I had it?
I had to run errands today, and I was so exhausted that I used the scooter cart thing at Target. There were several available, but I still felt stupid doing it.
But on the other hand, I didn't pass out in the store.
So, what am I doing? Trying to rest and drink lots of water.
Trying really hard not to take NSAIDs. I have an upper endoscopy in a month and my doc always points it out if he sees I've been taking them.
If it keeps up I guess I'll call the GI clinic.
But I hate the poop hat stool collection song and dance.
Maybe it will just go away
I picked up some bananas so I can make smoothies. Everything else is like eating shards of glass. Yay.
I hope everyone else is having a great Fall season!
Last edited:
.
