Hello all. I am posting out of complete desperation. Please bear with me, as this post may be long.
I have four young children very close in age. I was in picture perfect health up until my last baby was born four and a half years ago. Within forty eight hours I could no longer eat eggs, as I would get intense long lasting upper abdominal cramps so badly that I would have to lay down for hours. So needless to say, I stopped eating eggs. All was fine for a couple of weeks until "IT" started.
I would jump up out of my seat or bed because a sneaking, creeping, intense sensation would come over me. I would have a squeezing pain sensation in my upper abdominal area, between my shoulder blades, sometimes chest, even spreading to an ear or my jaw. It would build in waves, each time building in intensity, and drop off. There would five mins in between these pains, and all I could do was pace the floor for two hours or more. I couldn't sit, lay down as I always had to move my body along with the pain.
I have had my heart checked. I had my gallbladder removed because my first GI doc said while I had no stones, that my gallbladder wasn't pumping well (I had a HIDA scan to prove this). But the pain never went away. It is still here and comes without warning, no matter what I eat, what journals I keep, what diet changes I make for three weeks at a time. It is always worse during ovulation and my leading up to my period. I even had a slight fever once during a regular physical during a rough couple of days where I had an "attack" a few days in a row.
I have had three upper endocscopies within the last four and a half years and two colonoscopies. Each time the upper endoscopies showed esophagitis, except for the last one I had two months ago, but I was already on a PPI. Colonoscopies were normal. First doc took biopsies in 2008, second doc didn't even bother.
I have had celiac blood tests, inflammation marker blood tests, regular blood tests, ultrasounds of abdomen over the years. All I get is IBS, which I don't believe I have. True, I alternate between regular, slightly hard, and looser stools, but my symptoms don't seem to be relieved with defecation, brought on by defecation, and are NEVER in my lower abdomen. I did have a weird rash on my palms and back of heels/soles of feet for 18 months about two and a half years ago. I also had a year of knee pain.
The worst started about fifteen months ago. I had terrible upper abdominal cramping and watery diarrhea for six days with pain constant. I went to the ER and a CT scan showed inflammation of the descending colon and I was diagnosed with infectious colitis. I took meds and healed somewhat only to have a reappearance that following October for four days. I had the doc call the meds into the pharmacy as the symptoms were exactly the same. Then I left him and found a new doc who is treating me for IBS with Bentyl. I lost forty pounds in three months with all of the colitis issues.
So now it's fifteen months later and I still have the attcks. Some days I have daily for five days or so. Sometimes it goes away for a week or so and comes back. I've been to an allergist and am allergic to nothing, even the egg test came back good! But I still can't eat eggs. I am still down thirty five pounds or so, which is fine with me as I have some extra meat on my bones.
I cannot take this anymore. I need some answers, so that I can begin to feel normal. I have four girls ages 4.5, 6, 7.5, 9. I am also a nursing student, and wife. My poor husband is so supportive and helps me through each attack, but it is starting to truly affect our world.
Someone, anyone, what are your thoughts? Please help!
I have four young children very close in age. I was in picture perfect health up until my last baby was born four and a half years ago. Within forty eight hours I could no longer eat eggs, as I would get intense long lasting upper abdominal cramps so badly that I would have to lay down for hours. So needless to say, I stopped eating eggs. All was fine for a couple of weeks until "IT" started.
I would jump up out of my seat or bed because a sneaking, creeping, intense sensation would come over me. I would have a squeezing pain sensation in my upper abdominal area, between my shoulder blades, sometimes chest, even spreading to an ear or my jaw. It would build in waves, each time building in intensity, and drop off. There would five mins in between these pains, and all I could do was pace the floor for two hours or more. I couldn't sit, lay down as I always had to move my body along with the pain.
I have had my heart checked. I had my gallbladder removed because my first GI doc said while I had no stones, that my gallbladder wasn't pumping well (I had a HIDA scan to prove this). But the pain never went away. It is still here and comes without warning, no matter what I eat, what journals I keep, what diet changes I make for three weeks at a time. It is always worse during ovulation and my leading up to my period. I even had a slight fever once during a regular physical during a rough couple of days where I had an "attack" a few days in a row.
I have had three upper endocscopies within the last four and a half years and two colonoscopies. Each time the upper endoscopies showed esophagitis, except for the last one I had two months ago, but I was already on a PPI. Colonoscopies were normal. First doc took biopsies in 2008, second doc didn't even bother.
I have had celiac blood tests, inflammation marker blood tests, regular blood tests, ultrasounds of abdomen over the years. All I get is IBS, which I don't believe I have. True, I alternate between regular, slightly hard, and looser stools, but my symptoms don't seem to be relieved with defecation, brought on by defecation, and are NEVER in my lower abdomen. I did have a weird rash on my palms and back of heels/soles of feet for 18 months about two and a half years ago. I also had a year of knee pain.
The worst started about fifteen months ago. I had terrible upper abdominal cramping and watery diarrhea for six days with pain constant. I went to the ER and a CT scan showed inflammation of the descending colon and I was diagnosed with infectious colitis. I took meds and healed somewhat only to have a reappearance that following October for four days. I had the doc call the meds into the pharmacy as the symptoms were exactly the same. Then I left him and found a new doc who is treating me for IBS with Bentyl. I lost forty pounds in three months with all of the colitis issues.
So now it's fifteen months later and I still have the attcks. Some days I have daily for five days or so. Sometimes it goes away for a week or so and comes back. I've been to an allergist and am allergic to nothing, even the egg test came back good! But I still can't eat eggs. I am still down thirty five pounds or so, which is fine with me as I have some extra meat on my bones.
I cannot take this anymore. I need some answers, so that I can begin to feel normal. I have four girls ages 4.5, 6, 7.5, 9. I am also a nursing student, and wife. My poor husband is so supportive and helps me through each attack, but it is starting to truly affect our world.
Someone, anyone, what are your thoughts? Please help!
