Frustrated with everything and ready to cry

[aideen33]

As i said in my vent post, Im on day 3 of repeated calls back and forth to doctor, insurance, and pharmacy trying to get the Humira approved. (stupid insurance, wants another form because Humira is expensive and stupid office staff at Gastros office wont get that to her till after office hours)

She originally wrote for Humira and increased my pred again Monday because i had an increase in bleeding.
Its getting worse not better at this point, passing copious amounts of blood and what look like clots which is new despite the 40mg of pred every day

Ive put in another call to her to see how concerned she is about this and what she wants me to do but i am just frustrated after 3 days straight of this and ready to cry

 

[Clash]

I'm so sorry to hear of all your are going through. I would be very forthright in requesting blood work while you wait to make sure your HGB and iron levels don't sink. It may be that you require IV steroids to kick start things then over to oral pred while the humira reaches therapeutic levels. Sending hugs your way!

 

[aideen33]

she is leaving me go unless i start "feeling dizzy or weak" which im kinda... well Borderline... i may well end up calling her back tonight cause this is worrying me, and is the last thing i need with the DH in the hospital for dehydration induced tachycardia after a nasty stomach bug hit while he already had the flu. Im torn about being able to even go see him cause hes got *germs* i dont need and i really cant afford for my happy behind to end up inpatient while he is already... we've got wee ones at home :/

*fingers crossed*

 

[Jen C]

I know this is an old thread but I need to vent because this is exactly how I feel. I am on Entocort (up to 12 mg per day as needed, but surviving on 9 mg). My doctor put me on a new anti-depressant a couple of weeks ago because my old SSRI just wasn't cutting it any more. However, she took me off of it yesterday because of a number of adverse side effect. Now I'm thinking all my symptoms are related to the Entocort and not to that anti-depressant. I'm so frustrated! Why can't the doctors fix it and prescribe the right medicines for the right things? I still have the rapid heartbeat, irritability which is why she took me off the other med. I really just want to cry. I'm so sick of feeling so bitchy. Sorry if that word is not allowed but that's how I feel. And I probably went off of a good medicine because when I first started on the new anti-depressant, I felt pretty good overall. That was about the same time my colitis started really getting bad and she increased my entocort. So, she probably got the symptoms wrong regarding which med was causing it. Now I am right back where I was and already threw away all the med she took me off of. So frustrated and sick of everything!

 

[aideen33]

I know the feeling alll too well. Right now Im on Methylprednisolone (old doc said itd be less for sides than the prednisone formulation... it is not btw) which makes me a witch to begin with and now im in this weird med limbo as we stopped humira and theoretically i will start remicade next week (should have been THIS week but infusion center wrote the wrong dosage on the insurance approval paperwork and we just now got that sorted)