Regular Joe
Senior Member
- Joined
- Sep 2, 2009
- Messages
- 302
Wanna hear something funny?
The doc went in today ready to cut and repair the "precancerous nodule", and guess what? Nodule? What nodule?
Apparently one of those Crohn's Disease "Houdini" tricks. No nodule...gone away...on holiday or something.
Funny thing was, I was totally awake, buzzed on demorrhal, but I was clear enough to have a conversation. I said what do you mean its not there?
He points to the TV and says look! I'm at 40 millimeters right where it's supposed to be and nothing! Then he twirls the scope or something, of course that felt weird, but he wanted to show me the whole area and nearby areas. And there wasn't anything.
He looked a little bit more then he said "There's a scar there."
Oh really?
I know your GI made mince meat with as many biopsies as he did on the thing. The only thing I can think of is he took it all out with all of his biopsies, But look here...
Then he shows me one of those standard "stalk" type polyps. He goes in there, circles the tool around it, the thing swells up then snip, which again felt pretty weird, but not painful.
So this was a rather odd time today at the Cleveland Clinic for me. The nurse who maintained the sedatives was a girl I went to high school with - we sat together at lunch. We're also "friends" on classmates.com. I said to myself "Oh boy this is definitely weird." Of course she had to sneak a peak at my butt. She lifts up the blanket...
"Oooops. Wrong arm. I thought the IV was in this arm."
Yeah right, lately there's always some woman looking at my butt every day!
So we're all carrying on this conversation, the doctor, the nurse, and me, while the other two assistants kinda felt slighted. The doc asked the nurse "Did you guys like each other?".
This is all going on with the colonoscope up my @ss, and we're watching the monitor as we chat. "Have you seen Al?" I asked about another classmate. "Oh, he got divorced."
OK it gets even weirder. Of course my girlfriend is waiting and comes in and the doc is going on about how I'll need to have a colonoscopy every year because of the type of "colitis" I have. I just blew him off and thought he got the terms mixed up. Then he said "colitis" again and how much more likely cancer of the colon is. It can develop even in a "cancer prevention program" where they're keeping a close eye on it.
I stop him this time. "Colitis? I have Crohn's Disease."
"Yes it is Crohn's Disease. It's a type of colitis. Crohn's Colitis."
My girlfriend, stunned once again, says "I have Crohn's Colitis, too!"
The doctor, without skipping a beat tells her "You'll need a yearly colonoscopy too. What? Are you guys brother and sister?"
We looked at each other and shook our heads no, both of us too stunned to speak.
"What? Did you meet on a Crohn's internet site?"
I just said "I think I must have caught it from her."
And we all had a laugh. We told him about our family members with the disease. And he shook his head. He went on about "environmental factors", then said "who knows?" I think my girlfriend is still in disbelief - she kept a copy of the report.
Seriously, I mean what are the chances of two people meeting and becoming "an item", then both us ending up with the same type of Crohn's disease? Those are really slim odds. It's like what are the odds a person will get killed by a falling coconut? This might be just me, but it seems there is a peculiar twist of "destiny" at work here.
I'm thinking because I still felt drugged, that I totally misunderstood things. But I swore I remembered the whole procedure and our conversations. Then I looked at the report.
"Screening for personal history of polyps (V12.72) with a history of Crohn's colitis."
Well I guess I don't have Crohn's ileitis after all. I mean my GI just said I have "Crohn's Disease" over the phone and after the last colonoscopy - not which variety. Which makes me think that maybe the "nodule" wasn't even a nodule in the first place. Since it left behind scarring, and I've been taking the Entocort, and I now find out my official diagnosis (on paper) is "Crohn's colitis", it was probably disease inflammation. That would explain a whole lot about why the flare symptoms were as bad as they were.
I guess I'll need to phone my GI when he gets back. "Looks like somebody's got some 'splainin' to do!"
All in all, it was a peculiar day at the clinic with a very peculiar disease...see what I mean...this disease has a mind of its own!
In a peculiar way, everything came out, well, "normal"...with nothing to apparently worry about. Normal except for the "Incredible Houdini, the disappearing Crohn's Nodule", I suppose? And then having the same diagnosis as my girlfreind.
I'm still a "crohnnie" - probably the only thing that didn't change from 6 weeks ago.
I can hear my primary care doctor in his non-commital way:
"Well you have some kind of Crohn's Disease going on somewhere in there."
The doc went in today ready to cut and repair the "precancerous nodule", and guess what? Nodule? What nodule?
Apparently one of those Crohn's Disease "Houdini" tricks. No nodule...gone away...on holiday or something.
Funny thing was, I was totally awake, buzzed on demorrhal, but I was clear enough to have a conversation. I said what do you mean its not there?
He points to the TV and says look! I'm at 40 millimeters right where it's supposed to be and nothing! Then he twirls the scope or something, of course that felt weird, but he wanted to show me the whole area and nearby areas. And there wasn't anything.
He looked a little bit more then he said "There's a scar there."
Oh really?
I know your GI made mince meat with as many biopsies as he did on the thing. The only thing I can think of is he took it all out with all of his biopsies, But look here...
Then he shows me one of those standard "stalk" type polyps. He goes in there, circles the tool around it, the thing swells up then snip, which again felt pretty weird, but not painful.
So this was a rather odd time today at the Cleveland Clinic for me. The nurse who maintained the sedatives was a girl I went to high school with - we sat together at lunch. We're also "friends" on classmates.com. I said to myself "Oh boy this is definitely weird." Of course she had to sneak a peak at my butt. She lifts up the blanket...
"Oooops. Wrong arm. I thought the IV was in this arm."
Yeah right, lately there's always some woman looking at my butt every day!
So we're all carrying on this conversation, the doctor, the nurse, and me, while the other two assistants kinda felt slighted. The doc asked the nurse "Did you guys like each other?".
This is all going on with the colonoscope up my @ss, and we're watching the monitor as we chat. "Have you seen Al?" I asked about another classmate. "Oh, he got divorced."
OK it gets even weirder. Of course my girlfriend is waiting and comes in and the doc is going on about how I'll need to have a colonoscopy every year because of the type of "colitis" I have. I just blew him off and thought he got the terms mixed up. Then he said "colitis" again and how much more likely cancer of the colon is. It can develop even in a "cancer prevention program" where they're keeping a close eye on it.
I stop him this time. "Colitis? I have Crohn's Disease."
"Yes it is Crohn's Disease. It's a type of colitis. Crohn's Colitis."
My girlfriend, stunned once again, says "I have Crohn's Colitis, too!"
The doctor, without skipping a beat tells her "You'll need a yearly colonoscopy too. What? Are you guys brother and sister?"
We looked at each other and shook our heads no, both of us too stunned to speak.
"What? Did you meet on a Crohn's internet site?"
I just said "I think I must have caught it from her."
And we all had a laugh. We told him about our family members with the disease. And he shook his head. He went on about "environmental factors", then said "who knows?" I think my girlfriend is still in disbelief - she kept a copy of the report.
Seriously, I mean what are the chances of two people meeting and becoming "an item", then both us ending up with the same type of Crohn's disease? Those are really slim odds. It's like what are the odds a person will get killed by a falling coconut? This might be just me, but it seems there is a peculiar twist of "destiny" at work here.
I'm thinking because I still felt drugged, that I totally misunderstood things. But I swore I remembered the whole procedure and our conversations. Then I looked at the report.
"Screening for personal history of polyps (V12.72) with a history of Crohn's colitis."
Well I guess I don't have Crohn's ileitis after all. I mean my GI just said I have "Crohn's Disease" over the phone and after the last colonoscopy - not which variety. Which makes me think that maybe the "nodule" wasn't even a nodule in the first place. Since it left behind scarring, and I've been taking the Entocort, and I now find out my official diagnosis (on paper) is "Crohn's colitis", it was probably disease inflammation. That would explain a whole lot about why the flare symptoms were as bad as they were.
I guess I'll need to phone my GI when he gets back. "Looks like somebody's got some 'splainin' to do!"
All in all, it was a peculiar day at the clinic with a very peculiar disease...see what I mean...this disease has a mind of its own!
In a peculiar way, everything came out, well, "normal"...with nothing to apparently worry about. Normal except for the "Incredible Houdini, the disappearing Crohn's Nodule", I suppose? And then having the same diagnosis as my girlfreind.
I'm still a "crohnnie" - probably the only thing that didn't change from 6 weeks ago.
I can hear my primary care doctor in his non-commital way:
"Well you have some kind of Crohn's Disease going on somewhere in there."
. Don't sit under any coconut trees!! Glad you're back.
