Gone from functioning to useless in three days

[Wallace]

I'm getting rather frustrated. I had surgery in December, and once I recovered from that, I finally started to feel better. I even gained back some weight. I could manage taking care of things at home and at work, and even maintain a small social life.

Before surgery, It was really hard to keep up with work and taking care of myself. I live alone, and my nearest family is over a 6 hour drive away. Things like cooking, cleaning, groceries, and laundry on top of all of the planning, marking, coaching, meetings, and general insanity that new teachers have to do. Forget social life.

I picked up a GI bug of some kind, which hit me like a ton of bricks. I may as well have been preparing for a colonoscopy, I missed two and a half days of work, and lost over 5lbs in three days. I am now back to the point where I feel like I can't take care of myself and do a good job at work.

I have a sense of pride at being a really good teacher, and I want my high school kids to be well prepared for their futures after taking my courses. I have a whole pile of marking and planning to do this weekend, as well of other plans, and every time I stand up and start walking around, my guts hurt, and I get dizzy.

I've always been fiercely independent, and I can't even take care of myself properly anymore.

 

[copeland]

I'm getting rather frustrated. I had surgery in December, and once I recovered from that, I finally started to feel better. I even gained back some weight. I could manage taking care of things at home and at work, and even maintain a small social life.

Before surgery, It was really hard to keep up with work and taking care of myself. I live alone, and my nearest family is over a 6 hour drive away. Things like cooking, cleaning, groceries, and laundry on top of all of the planning, marking, coaching, meetings, and general insanity that new teachers have to do. Forget social life.

I picked up a GI bug of some kind, which hit me like a ton of bricks. I may as well have been preparing for a colonoscopy, I missed two and a half days of work, and lost over 5lbs in three days. I am now back to the point where I feel like I can't take care of myself and do a good job at work.

I have a sense of pride at being a really good teacher, and I want my high school kids to be well prepared for their futures after taking my courses. I have a whole pile of marking and planning to do this weekend, as well of other plans, and every time I stand up and start walking around, my guts hurt, and I get dizzy.

I've always been fiercely independent, and I can't even take care of myself properly anymore.

Sorry things are going so poorly. I can sympathize... my current flare started around the beginning of March, and I've lost about 20lbs since then. I'm still going to work, but it's difficult and I know I'm not doing as well as I could be at work, which i a terrible feeling. I'm super independent as well, and it's really scary not to be able to take care of myself properly. I haven't really done laundry lately (oops!) and cleaning has kind of fallen by the wayside.

 

[NurseAdam]

Totally understand how you feel, have been flaring since last May. Had to leave a very high paying job in Feb now on unemployment benifit. But together we will not let this b@@@ard thing beat us!

 

[pink&green]

Sorry you are having a hard time Wallace sending :ghug: have you spoken with your GI about your flare hopefully your GI can proscribe you something to help:ghug:

 

[Essieluv]

Oh I am so sorry to hear this. Believe me, you are not alone in this. I think you should talk to your GI if you haven't already. If this is a flare it is best to catch it quickly before it does a ton of damage. I feel for you hun, I really do. Sending you hugs and prayers for a quick recovery :ghug:

 

[Wallace]

Thanks for all of the help guys! I really appreciate it!!:hug:

I've started to feel much better the past few days, I think it was a GI bug that my intestines took offense to. I was acutually able to leave the house Friday, and was able to have a mostly normal day Sunday and today. (If normal counts as more non-crohn's related medical appointments).

I'm hoping it isn't a flare, I've just had 6 inches of intestine removed, and they removed all the damaged and non-functioning portions. If it's a flare, that means it's come back super fast!

I called my GI's nurse practitioner, and she said that it sounds like some type of stomach flu, or something of the like. I'm starting to put a few pounds back on already.

Stupid immune systems. I wonder if our immune systems realize what back stabbing pricks they are being lol. Our poor hacked up intestines....

 

[LCATC945]

I had a reflare from my flare last year when my gi was tapering me off of pred. Just in time did valentines day.
I was finally placed on imuran about 3 weeks because I had to get a bloodtest after seeing my doc and then had to wait for the results. I was slowly improving for about 3-4 weeks but then I got hit hard with symptoms. Vomiting and severe pain. The second day I was in so much pain I was in tears. I had my gf drive me to the hospital and her mom met me there and stayed with me till my parents could come down. I'm 2 hours from home at college. Small college all the teachers and the dean are very understanding and care about me and want me to get better so they are going to let me finish my classes Over the summer. Anyway. After getting to the hospital they found that my white bloodcell count was tanked. They admitted me based on that. And then the next day they put me an isolation room on suspicion that I had cdiff. A stool infection. I finally was able to have avowal movement because I went on liquid diet after they cut me off at midnight the night I was admitted because they were thinking if have a ct scan but never did it. So I got liquid diet. Anyway the stool sample was positive and so I had my own room in the hospital for a week. All the while they were trying to push me out. Stupid medical residents. There was only one smart one that talked to me like an equal. The rest were idiots hat treated me like I was stupid. And the gi talked down to me like I was stupid. Anyway I didn't have the best hospital experience and I was on pain killers for the pain. Morphine and Percocet. Finally got off of the morphine and they booted me out. But the medical resident tried to kick me out with a lower pain med without telling me and only give me 10 pills. Finally was able to talk to the over seeing doctor who was surprised by this and gave me 30 of the Percocet. But said I needed to ween off. I've been trying. But with no luck. Finally saw my gi Monday. Was almost out of pain meds. He said the same thing as well as that he doesn't usually prescribe them and I need to get off of them. And I'm trying. I have a colonoscopy Tuesday I'll have to prep for Monday. And I had my white bloodcells restested yesterday. My next wack at treatment will be humira but I have to wait till after the colonoscopy. Soooo pretty much I may have to ask for a refill on the pain meds to manage the pain because I can't handle the pain without them right now. And I don't have anything changed like any new treatment to improve my situation in order to be able to ween off the pain med. No matter how hard I try. Worst part is I can't drive.