Had 1st infusion today...advice on what to expect

[mzlateah]

I had my 1st infusion today. I have been reading the forum and concerned that I will be experiencing some of these symptoms. Prior to today I have had major joint pain and stiffness. Is this expected to get worse or better? Anyone with experience on remi, help! Just concerned.....

 

[Lisa]

I had my umpteenth infusion yesterday, I usually get tired in the evening, was up by six am today for work.....I don't have many side effects, lately my lower back had been bothering me, but I have sacroilietis also.

 

[deedee]

After my infusions, I am usually very tired for about 2 days. Sometimes I notice that I'm also hungrier than usual. Hopefully, your joint pain will start to improve soon! After my first infusion, I felt better after only a few days, and much better after a few weeks.

 

[rollinstone]

I had my first infusion last week and had really sore joints that night but it got better the next day, I'm not really feeling that much of an improvement but they say to wait until the loading doses

 

[Jison0612]

Remicade world great just give it a couple treatments Ull be like new again!!!

 

[mzlateah]

I feel ok. But just super tired. I'm dragging at work today :/

 

[iriechic]

Hi to another new Remicader! I just got my second loading dose a little over a week ago. I'm on steroids though so it's hard to know what is doing what. I was flaring really bad. I pray that the Remicade works wonders for you and all the rest of us on here!!!

 

[mzlateah]

Thanks! Its been a week since the first infusion. U can't tell a difference yet. Still having symptoms. I go next tuesday for the second one.

 

[mzlateah]

Deedee I have also been a little more hungrier. Like craving milk or sweets. And sometimes I can t stand the smell of food. Is this normal?