- Joined
- Feb 15, 2015
- Messages
- 11
I have had Crohn's since I was 19 I am 42 now. when I was 30 I had resection and was in remission for quite a few years. My 16 year old son also has Crohn's and has been on remicade for 2 1/2 years and is in remission. i am back to having severe Crohn's again, and just got out of the hospital for having blockages. Since I tried every medicine under the sun in the last 25 years, I was hoping remicade would work for me. About an hour into my infusion my hips felt tight and i got a headache, then i started shivering and was freezing all of a sudden. The nurses said they would stop turning the drip up. then my feet and hands started itching, then burning, i called the nurses over and I was covered in hives. Then my eyes started to swell shut, my tongue started to swell and I had sever chest pains like bad heart burn, my heart rate went o 150 and I spiked a fever. They brought me straight to the Er because my infusion center is in the hospital. the gave me steroids and 150 mg of benadryl, and in about 10 minutes I started to feel much better. i see my Dr next week. Has anyone had these problems with remicade and been able to continue. I'm assuming I'm now done with remicade. This is the first biologic i tried, so what do you think the nest drugs is i should try?