Had my colonoscopy - not sure what happens now?

[KatAttak]

had my colonoscopy - not sure what happens now?

so i have had my colonoscopy. and been told they have taken biopsies

however, the report doesnt seem like it had found anything?

what do i do from here? i am a little disheartened as the prep near killed me and i have been throwing up all day.

does anyone have any advice? just feel like crying.

surely all of my symptoms and stomach pains and horrendous weight loss must count for something?

sorry to rant just incredibly fed up now.

 

[StarGirrrrl]

I'm sorry to hear that
Your biopsy results will be back in 4-6 weeks and your Dr/GI should be in touch. Alternativle ring once or twice a week to see if they are back, because sometimes they sit on a desk and no-one thinks to contact the patient!
Weight loss can indicate small bowel issues, which the colonoscopy and upper endoscopy only peeks into (it's about 20 feet long).
It may be that you need additional tests if the biopsies come back normal.

In the meantime take it day by day is all I can suggest.

 

[KatAttak]

They did the scope down my throat too. Really peed off though as I have got pernicious anaemia out of nowhere yet they can't explain that either.
The only issue is I got admitted to hospital a few weeks back due to immense pains and chest pains but with all the waiting for the scopes im out of my flare as I was on tablets.

My dr is convinced its crohns but now feels like I'm not going to get any answers.
Thank you for the advice about the biopsies I'll be sure to keep chasing them.

I see you've been I'll for a long time too, and alike me have gastro saying its ibs. Can I ask what symptoms you have?

The scope was so strange it hurt at times but a weird sensation all in all.

 

[StarGirrrrl]

Wow, where to start. I am 25 now and at 19 got tummy issues, couldn't keep any food in, it ran through me after a few bites. Had a colonoscopy and got told IBS when it was normal (despite red flag symptoms and abnormal bloods). Put on low dose AD's which worked quite well for a few years. Woke up one morning (I was 23) with a swollen upper arm, which since then has turned into crushingly bad joint pain from neck to fingers. I get awful mouth ulcers, have to get up during the night with D, nausea, on/off abdominal pain, up/down appetite, have passed blood also. AD's had become ineffective (no longer take them), gave up eating out, now I don't eat unless I am home for the day, etc. Once the swollen arm started, it was a gradual downhill spiral in my health. I would say the bowel issues are worse now than when they started, I have flares, and times when things are better and I can eat more.

Gastro still say IBS because they don't want to admit their mistake early on. They even had test results (a WBC scan which is an injection to detect inflammation, not surprisingly it was found it in my guts) changed because of this- I put this allegation before them and they ignored it which speaks volumes. They accepted it as valid until other tests came back normal.

Since my troubles started my blood tests have consistently showed inflammation in my body. 2+2=4 you know?

I had a very good and very expensive scan Tuesday which I am hoping will get me somewhere at last.

The upper endoscopy also only peeks into the small bowel. Aneamia could be due to a bleed in the small bowel caused by IBD. You'd need a Barium X-Ray or Pill Cam to best visualise the small bowel. I learned the hard way that scopes are not enough to rule out IBD and dx IBS.

 

[Devynnsmom]

Now its the waiting game, which sucks. My daughter had her first colonoscopy in Oct 2009. We were told everything looked great, normal..a few weeks later we went in and were told they were *unoficially* diagnosing her with Crohn's disease. She started meds and within a week, was a different child. Things were pretty good until June of 2011, we found out my Mom had cancer (she passed 4 weeks later) and the stress made her flare up again. We upped the Pentasa, but by Jan of this year she was still in a flare and lost all the skin on the bottom of both feet. They ordered another upper and lower scope and told me everything was normal. A few weeks later we were given an official diagnosis of ulcerative colitis and still the *unoficial* diagnosis of the Crohn's disease.
Waiting is the worst, but I hope you will get some answers. (((hugs))

 

[KatAttak]

hi to you both,

so sorry i haven't got back to you in a few days. how is everyone?

after reading both of your comments, i dont feel as frustrated to have done all this and get nowhere from it.
i am so sorry to hear about your daughter, but i must ask, if they didnt see anything, howcome they are giving an unofficial diagnosis? under what pretenses can they say that? if i could just be told that and given a trial run on meds i would be happy...not trying to be a druggie, but i have been triald before and actually felt better. but it is only ever on trial for a week.

also stargirl - good luck with the scan on tuesday, what scan is that? i too have the inflammatory markers in my blood tests too.

its strange? thank you for your kind words, im not holding my breath on answers but i will not accept ibs. because i have so many other symptoms.

oh and sorry what was that about the skin on your daughters feet? i had a severe skin problem a few years back, as well i get regular skin blisters all over too, could this be linked?

 

[StarGirrrrl]

No worries
I had a PET/CT scan last week (eyes to thighs lol as the Nurse said), results due anytime between now and my next Rheumy appointment 28th May.
Is a miracle I got funding approval, they turned me down flat last year on cost grounds with no medical consideration what so ever.

I had to travel to get it done it's so specialist, there are three mobile units in the region and it's pot luck where you get sent. Neither three are in my County even.

:medal1:

 

[Devynnsmom]

Hi Katattak, When they did the scopes, they came to talk to me as my daughter was in recovery. At that point, they said everything looked great. When they got the biopsy results and pics, they saw the inflamation and ulcers. The skin peeling off of her feet was as far as they know, linked to the Crohn's. She has had different skin conditions through the years, and nobody could ever tell us what it was. Once she was diagnosed, they said it is most likely linked to the Crohn's.