Having a bad flare.

[JynxGirl]

I know I haven't posted here a lot, but I have been reading since I joined last year in June-ish...

Things were actually going great while we moved into our new house, and I finally got settled here.

Then I had a major asthma attack on New Year's Eve which seemed to kick off a Crohn's flare. Not sure if it was the asthma medication or the shock of having my first asthma attack in almost 8 years, but I am still in flare.

My new family doctor has been great, and already has me set up to see a new GI. I have pain meds and more prednisone to try and stave this off until then.

Is it bad that I'm just so sick of being sick? I think I may have to change my vows from "In sickness and in health," to "In sickness and remission."
My fiance has been awesome about all of this, and he's amazing with my daughter when I'm unable to move around.

I, on the other hand, have become a monster and am super moody and miserable.

How do you stay positive when you alternate from never leaving the bathroom, to not pooping for five days in a row? Or when you're on morphine and prednisone for weeks due to pain and inflamation?

Anyone?

 

[stargazer]

I am so sorry to hear you are sick! Its horrible and people who don't have this disorder don't udnerstand. It's not bad at all that you are sick of being sick! It's completely understandable. It's hard to stay positive while on Prednisone. The only advice I have is keep remembering who you love in your life, who your supports are. maybe keep something on you that reminds you of them or something nice they did for you. Another thing that helps is forums like this. Talking to people, venting and realizing that as awful as things are right now, they will get better. Do something you enjoy at least once a day whether its reading a favorite quote, using special bath salts, buying yourself a flower, anything you enjoy. I like to keep positive quotes on the walls of my bedroom and anything that is bothering you, let it out instead of keeping it in. Try to remember the good thigns you have around you like your daugther and your husband. You are not alone is my main point. I hope you find the inner strength that's in you. My heart goes out to you.

 

[ameslouise]

Tough to stay positive on the pred, but if it's helping you feel better, then that's one good reason to be happy!

I started on Celexa when I was at 40 mg of pred. Helped me keep it together and eased that feeling of flying off the handle all the time.

Hope you start to feel better soon!

- Amy

 

[MADiMarc]

Jynx, sorry to hear you are in a flare. Makes everything seem like it's going to hell. No, it is not bad to be sick of being sick. It is not bad to want to be normal (what ever that is). I am not on pred & I have been so angry the last week or so because I am sick and tired of being sick and tired. Our feelings are our feelings and we have a right to them.

I hope your new doc can help you quickly.
Michele

 

[Astra]

Amitriptyline helped me to keep the Beast in the Cellar!

Hope you feel better soon
xxx