Having tons of complications after surgery on the 20th. Warning- long.

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Hello everybody, I'm back.

After typing all of this, I realized how ridiculously long it is. I don't expect you guys to actually read the entire thing, I just figured I'd share my story with people other than my family, friends, and hospital staff. Also, I want to have my story available for my own reference in the future.

I'd like to begin by apologizing that I haven't been on here supporting all of you in such a long time, and now I'm here to tell all of you what I've been going through. I had a very rough end of spring semester and have not had the time to make my way on here.

Anyways, I went in surgery on May 20th for what was to be a laprascopic small bowel resection with partial colectomy with hand-assist. I was told there was approximately 6 inches of diseased bowel that would be removed, and since I am young and healthy, I would be out of the hospital in 3-4 days. Well, it turned out to be quite a different scenario.

I could write a novel about what I've been through since then and what is to come, but I will try to keep this as short as possible for reading purposes.

The surgery (Thursday) went well, and they actually ended up removing about 12 inches of inflamed and strictured bowel as opposed to the 6 inches they saw on CT scans. That evening also went well until the middle of the night when I came to find out that they did NOT leave the urinary catheter in during surgery for some reason. The nurses did a bladder scan and I was full of urine yet unable to go. They had to insert a catheter at 3am and to say the least, it took them 3 attempts and was excruciating pain.

The next day, Friday, went pretty well. This is where I start to get my days mixed up because everything started happening so fast and it's hard for me to remember what happened when.

But Saturday is when all the problems began. I started to become unable to tolerate even clear liquids, I had constant nausea, I vomited any time they tried to give me a pill by mouth. I still was not passing any gas and over the next couple of days these symptoms just worsened to an unbelievable level.

I finally started to pass very liquidy stool, but still no gas, and still could not keep down pills. I started to run a constantly high fever that would reach close to 104 degrees Fahrenheit. My hemoglobin ended up dropping to 5 (normal is 12-14) so this was considered dangerously low and I received 2 units of blood which helped it to rise to a decent level. With the fever and and an elevated white blood cell count, there was obvious signs of infection and I was started on Cipro and Flagyl through IV. I ended up receiving a CT scan which showed a hematoma (blood in the abdomen) as well as a very inflamed colon. At this point, the hematoma was looked at as normal and that the blood would reabsorb itself back into the body. The inflamed colon led to suspicion of the infection C-diff (a bad infection of the colon that gets worse with most antibiotics and can only be treated with Flagyl). The results ended up negative for C-diff.

My colon remained inflamed, my blood count continued to drop, the pain in my abdomen became more and more excruciating, the high fevers continued, the nausea and vomiting continued as well as not being able to tolerate more than a half a cup of liquid at a time.

Finally, just the other day, an abcess was finally identified on that CT scan from days ago, and it was right at the site of surgery. They rushed me downstairs to radiology to have it drained and catheterized. To say the least, that process was the most excruciating and traumatic episode of pain I have ever been through in my entire life. They could not do conscious sedation as they usually do because it was an emergency situation and anesthesia was booked solid. So they told me that they would give me a mix of Fentanyl and a sedative to keep my comfortable. However, the administration of the drugs failed and the doctors and nurses though I was just overreacting when I told them that I do not feel any effect of the drugs they had administered twice already. So, they began the procedure by inserting a very large needle into my abdomen that would reach all the way down into the abcess, and like I said, I had to be held down, I was in an inhumane amount of pain, and am completely traumatized from what I experienced. After the procedure, the nurse told me that she's never seen anybody in as much pain as I was in, and has never administered as much of the medication to anybody as she did to me, yet she still did not realize that I somehow did NOT receive it.

Well, after they removed the IV that they put in place for the procedure, they saw that the line was COMPLETELY crimped and folded and creased, because this procedure was done in a CT machine and the IV was in the bend of my arm, and my arms had to be bent over my head during the procedure. So let's just say that action WILL be taken against the people who were involved in this procedure, because of PURE negligence.

So now as I sit in the hospital and my abcess drains, my fever remains high and my pain is still excruciating to the level where I actually take my IV pain meds right on schedule (I'm usually a person who despises strong narcotics and I will not take them unless the pain makes me unable to function, which in this case it does.)

Also, I've had a lingering headache that does not seem to go away for very long at all. And my hemoglobin is still dropping after after having received an addition unit of blood (3 total). So now I have to sit here over the next 48 hours as the doctors monitor my blood levels. If the levels continue to drop as they have been doing the day after I receive a unit of blood, I will have to return to surgery so that the source of this bleeding can be identified and stopped.

So believe it or not, that is the shortest possible story of what I've went through since last Thursday (the past 10 days). And I've probably even left out some things I just totally forgot to mention. For those of you that actually took the time to read this, I appreciate that more than I can put into words! Once I am better again, I will definitely be back on here supporting all of you guys, since you have all been so wonderful and a great source of support to me.
 
Wow, that is horrible! You poor thing. I am thinking about you!
Hope things turnaround for you sooner than later.

May
 
Omg, I am so sorry you went through such hell. I am also angry at such incompetence of your nurses and doctors. You should of been on IV's (checked all the time, and I always do myself) and been on Flaygl BEFORE the surgery. Also after, because infections can spread whilst being pumped full of air for a Laproscopic incision. I had a catheter put in whilst I was under, and for them to have administered so much pain killer and the line was crimped, and you were in so much pain! :( It might of been a good thing it didnt they could of over medicated you had the line uncrimped. When someone says they are in pain, they should respond!!!! You have been put through way too much, there was absolutely no reason for all that had happend. It didnt surprise me that more was infected because they can't see exactly how much is infected thru CT scans.

You have every right to be long on your post.. :sorry: you went thru all this and I feel so bad recommending that you had surgery. Flagyl and Cipro sucks but I would demand they continue this so that no more infections are not missed. Giving Flaygl by mouth can make a healthy person sick, empty stomach and burns like hell. Please keep us updated, I will watch for your posts in the future. Again I am sooooooo sorry. Sending healing hugs and prayers.
 
Very understandable as to why you havnt been on

when something very big an important lies before you it's easy to forget or push things aside to concentrate on it

fingers an toes crossed they sort out your blood loss very soon
and hoping the pain and discomfort levels reside very soon

best of luck keep us posted
 
I'm sorry to hear about all your troubles and pain! I don't blame you for being angry about the level of care you've received to this point. I hope they get things under control for you and that you start feeling better soon.

Keep us posted when you can...take care...
 
How awuful

I hope things start to improve for you. That sounds completely horrid! Being sick, in the hospital and having to deal with all that stuff is bad enough...much worse so when it is made worse by people not caring for you the way they should. Sending you strength and light to get through this!
 
What an awful, hideous time you have been having!! I can't believe they didn't investigate the pain as they drained your abscess any better than that ~ ridiculous!! They had to hold you down but wouldn't stop to look into WHY???? I am so sorry to hear that anyone went through something like that.

Hope the antibiotics bring your infection under control quickly & completely now, and that the hemoglobin corrects itself. I'll keep you in my thoughts and prayers.
 
Aw you poor love
I'm shocked and appalled! heads should roll for this, when you're better get yourself to a solicitor about negligence, you should get lots of dosh for this!
hope you're ok and on the road to recovery, sending big hug your way
take care and let us know how you are when you're ready
xxxxx
 
your post just brought tears to my eyes. oh you poor thing - i am so upset for you, not only that you've had these complications, but that you've had to endure such heights of pain when that part at least could have been avoided!! you make sure you do take action girl, even if when you come home you're just relieved to be home and well.... don't let this slip.

i can identify with all you've posted... i've also had post-surgical complications, and one time it was a pelvic abcess post surgery.. same thing, pain, soaring temp, feeling very ill - and even tho i was still in hospital, no-one knew what was going on. i ended up getting so frustrated i asked my consultant "what the hell is it?" and he got cross about my attitude! i got sent home, then readmitted via ambulance days later for emergency surgery to remove the abcess. so i know what it's like... but you'll get there, all these horrid experiences will fade into memories, thank goodness... just keep your chin up, your spirit up as much as you can, and look forward to putting this behind you.
 
I am so sorry that you have had to endure what you have. It never ceases to amaze me what terrible things occur when you're in the hospital. They were just absolutely negligent in not observing your IV and doing that procedure without anesthesia. Again I am so sorry
Bethy
 
Oh how awful for you. It's sad that it no longer surprises me how doctors and nurses can move so effortlessly from one disaster to another. I hope they get their act together and this turn around for you ASAP. Hang in there, mega ((((((HUGS)))))) coming your way.
 
I think a complication or two for our procedures is to be expected but you sure got more than your fair share. Those HUGE needles for the Percutaneous drain really do hurt even on the sedative. You poor girl you :(

I sure hope they get things together for the rest of you stay.
 
I read your whole story, which was very short considering how much you have been through. I do hope you make the idiots pay for torturing you like that. They should not be allowed to practice medicine anymore, especially on you. I will keep you in my prayers and hope you start getting better soon.
 
What a horrendous ordeal. I hope things turn around and that you don't have to undergo another surgery.
 
That is terrible! I am still shocked to hear stories like this. Makes me wonder how many others were treated the same way by these so-called medical professionals. I hope you pursue action against them as well!

I agree with Kenny, I had twilight sedation while getting my abscess drained and it still hurt like heck! I can't imagine how you had to go through that!!

I hope things continue to heal for you and all of that misery is behind you. Big hugs and well wishes!
 
oh. my. god.

that makes me SO angry.

and its not even the mistake that bothers me so much, its that they DIDNT BELIEVE you when you said that the drugs werent working. that they thought you were faking pain?!
that is just so offensive.
i have 2 hospital instances that im sure could be taken to court but never felt compelled to.
but THIS. this you suffered massively for, and not to mention that the medical community needs to be taught a lesson. its called listening. and modesty.
they do not always know best and they are not always right. sometimes the patient is the one making the better call.

would be nice to make an example out of this team.
 
I concur with Kello. Reading this forum, I would say the med pros RARELY know what's best and RARELY know what's right.

Hope things are improving.
Mark
 
Thank you all so much for reading and responding. Your comments really help me to feel a little bit better about everything in the midst of a complete nightmare.

And yeah, the medical team during the draining of the abcess just absolutely amazes me that there could be such ignorance. The nurse even SAID to me after the procedure that she "has never had to give a patient as much Fentanyl and sedative as she gave to me." Well that should ring a freakin' bell because I've lost so much weight I must be down to 110 pounds. Giving a massive amount of IV Fentanyl to somebody my weight, there is NO way that I would have even been conscious and able to speak the way I was, and there's no way I would have been in such an ungodly amount of pain, even like the woman said, that she has never seen somebody in so much pain during that procedure.

I have no idea what kind of action I will take. All I know is that on Tuesday I'll be talking with the hospital's patient care advocate, she is the person you go to when you need to complain about an incident such as mine. So hopefully she'll be able to lead me in the right direction.

And I'm still just waiting for a pick line that will be put in Tuesday, and as of now the plan is still to remain on TPN through the pick line for 4-5 weeks, and I'll still be NPO for that period of time...so basically my summer is shot!
 
Make sure they give you the proper amount of local anesthisia for the picc line! They didn't give me enough when I got mine put in and it hurt like a bugger (I know, after what you've been through who am I to say that it hurt like a bugger?) But, fortunately as soon as I complained that I could feel it, they gave me more. After that, the picc line was a godsend till I got an infection from it (I'm not helping with your confidence here am I?). Just make sure they watch for that. Other than that, it was great...no more IV's in the hand and no more needles for bloodwork...that was wonderful as they were taking blood from me 3x a day.

Good luck! I hope you get to feeling better soon and put this nightmare behind you. Take care!
 
I hated getting my picc line put in. They tried 3 times on my right arm and it wouldn't go all the way through. It didn't really hurt. It was on a Friday they tried to do it, so radiology was closed (which is where they send you to get it down with a doctor looking on an x-ray to guide it in if they can't do it manually). I told them I wanted them to come back in an hour and we could try my left arm.

Well, they came back and my veins must have collapsed by then because it was not working and it hurt like a B! I think they hit a nerve trying to get it in because I've never had a sensation so awful. It was like my veins were shaking. I screamed and I never scream, haha. They stopped immediately and I had to wait until Monday to get it done in radiology. I was drugged up for that one thank goodness because I was so worried it would hurt after the last attempt. It was done in like 2 seconds.

Anyway....sorry to snag your thread. Just wanted to say if you have the option to get it done in radiology I'd go for that. Less guessing and less pain! ;)
 
You poor thing! I'm so sorry to hear what a nightmare time you have had! Make sure you make your feelings clear to those in charge about the level of care you have received!!

Doctors do tend to assume the patient is being meladramatic when it comes to pain relief - I had an epidural after my surgery and they thought I was just making a drugged up scene when I was complaining of pain...took hours for them to admit the block had slipped and so I had no pain relief working for the area of my abdomen where I actually had the surgery, despite the fact my legs and feet were dead to the touch! They then quickly switched me to a PCA machine which was a much better plan!! I hope they are getting your pain under control now?

I have just had a picc line removed a few days ago - I have them semi-regularly now as my veins have pretty much given up on me all together after a few yrs of illness - they can't get anything in or out of me! They have been a god send to me, initially they were reluctant to put one in over here (I was previously treated in New Zealand where they happily put one in and it saved me alot of pain from failed canulations and time in pain awaiting pain relief) They kept insisting they could get a canula into me, after nurses, doctors, and anaesthetists all failing to get one in, and my feet veins blowing within an hour, I was bruised and more than a little fed up. Then they gave in and I finally met my hero - the surgeon who puts picc lines in! He was furious I had been left that long without a picc line ( i now looked like an addict the state of my arms and feet!) he swiftly put one in and does whenever I go in to hospital now - I just ask for him to see me and he comes to my rescue. He also insists noone takes it out until I have needed nothing IV for a month. I am lucky to have someone like him on my team now. He is trying to educate others that picc lines are useful and an assett to many people, not something to be scared of - as long as looked after properly!!

I hope you feel better soon...keep us all posted

Big hugs from the UK xx
 
I'll keep it simple...
That is friggin shocking!

I reeeeaaalllyyy hope things start to look up for you!

Sue their negligent asses to the ground!lol

I hope the TPN makes a good difference 5 weeks will fly by!

Best of luck x
 
Maybe the whole TPN thing will be better in the long run. I went to solid food within 4 days of surgery and I still feel that darn spot where they stuck the small intestine into the large EVERY day.

Hope the system starts working better for you M.
 
It boggles my mind when people decide to continue with a procedure even though the patient is CLEARLY awake and aware. Common sense just isn't so common and sadly we all have to pay for it. I really hope you make them pay for their mistake so they'll at least learn and never do it again. I checked your location to see if you were anywhere near me because I have a great lawyer but sadly I don't know any in your area. I'm so sorry.
 
Thanks again, everyone.

And wow, I'm sorry to hear that so many of you have had problems with the picc line! Mine went in very smoothly...they did it right in my hospital room. After the nurse made everything completely sanitary with cloths etc, which took forever, the actual insertion of the picc line after they numbed my arm with Lidocaine took only minutes, and there was no pain at all!
 
Glad to see your picc line went in with no pain involved, thank goodness for that! I have never had one but have had IV's and it rare for them not to poke me at least 5 times before they get it in.

The best advice I can give you, even though you went through so much hell, is try not to dwell on it (I did on my second surgery, it was a total nightmare too) but your healing takes longer, so concentrate on healing and sleep, it is important ok? Big hugs, hang in there keep us posted! :)
 
I just read what you have been through. I am so saddened to read that you have had such complications with your surgery. The pain could have been controlled and I am shocked (even though I had problems with pain before) that they would not be more empathetic for patients who are having such horrific pain. When I had my complications my mother had to call the administration of the hospital and then a pain management team came in. I also had post surgical complications when I had my resection. First surgery went well then 4 days later the nightmare began ....2 more surgeries, and a post-surgical abscess right at the surgical site. Fevers the whole time, nausea, and pain, and just overall sick :(

I feel so bad that you had to go through this. I hope that you start to feel well and have no further complications.
 
I just read your post (all of it) and I am so sorry for what you have gone through. I just had an iliostomy done, so I know what you are going through (to some extent). Be well and know that it will get easier. I hope that your surgery helps you in the long run.
 
Hi mharvey,

I'm so sorry. I wish there was something I could do for you. Surely you don't deserve this kind of pain.

If you can, keep your cool for now, and I'm sure we're all hoping you can get through the rest of this without any more pain. Once you get mobile and out of your dire situation, then focus on taking the actions against the hospital.

First things first - you're a fighter and an inspiration, get your butt well and outta that place!

Wishing you peace, and I hope some kind of angel finds you - that will keep her busy and keep you safe and comfortable.

All my best, and get well!
Joseph
 
Hey everybody,
just an update. I'm still in the hospital and will be until my abcess completely drains and heals, because until then, I cannot have any food by mouth. And this probably won't be until the middle of next week. So assuming all goes well with that plan, it'll be 3 weeks that I've been in the hospital...which leads me to my next question.

Right after surgery I was started on 1mg of Diluadid every 3 hours for the pain, which was doing the trick. Several days later when the pain started getting out of control from the then unknown abcess, they increased me to 2mg. The 2mg kept me relatively comfortable and I felt little pain. However I was beginning to get nervous about such a high dose of such a strong narcotic so I would try to wait as long as I could (until the pain got really bad) before I would ask for my pain meds. So yesterday, the doctors order in the computer changed that I could have 1mg or 2mg depending on my level of pain. I assume that they are trying to wean me off which is great, because I do have a fear of my body getting addicted to this stuff, especially since I've been on it for over 2 weeks now. Now some days the pain is worse than others (last night and this morning have been horrific) and the nurses kind of have their way into swaying me into choosing 1mg instead of 2mg. Although there is STILL a considerable amount of pain after 1mg, should I ask for 2mg next time? I'm so unsure of what to do. I really do not want my body to get addicted to this medication, but I need to control my pain. Does anybody have any advice for me on what to do? Have any of you been in this situation where you're on a strong IV pain killer for a long time (over 2 weeks)? Did you have a hard time coming off of it? Ahhh, please help!
 
I've never been in your situation before, but I know if I were I'd do everything in my control to not become addicted. I think I'd put up with the pain. I'm not telling you to do this... I'm just saying I'd be stubborn and try to fight out the pain. I also can not comprehend your amount of pain since I'm not in your shoes. Maybe you should ask to speak to the hospital's pain management team so you can see what the chances of coming off of them addicted are.
 
Hey girl,

I'm so very sorry for you. What a traumatic and turbulent experience you have endured over the past days on top of the very disease. Those health care givers become desensitize over the years and do not realize or rather forget that we look to them for mercy. What hospital are you being treated at?

I pray for you today, that you will find the strength to persevere every needle prick, every probe and every other procedure that you'll have to endure and that the doctors will find a way to make you better.

You sound like you're in good spirits, that's very commendable. We are here for you, my friend.

Lots of love
 
katiesue, thank you for the advice. I've expressed my concerns to my surgeon, and he has tried to assure me not to worry. he told me that even if all went well with the surgery, i'd still be on strong painkillers by mouth anyways at this time. what i've decided to do, is just let my amount of pain decide what to do. if i'm having a tolerable amount of pain, i won't take anything. if the pain starts to get to the point where i find myself really straining to deal with it, i'll take the 1mg. if the pain is really bad to where 1mg does not help it, then i'll take the 2mg. my surgeon also mentioned that it is bad to let yourself just be in pain, because it can really slow the recovery process because of all the straining you'll be doing with the abdominal muscles. this makes sense to me, so i guess i'm going to trust him and just go with it. i know i'm a strong-willed person and highly doubt that i would find myself desiring this medication if i'm not actually in pain anyways.

and nicole, thank you very much for the kind words :)
 
so sorry to hear you're still in such pain, and still in hospital!

i agree with the theory you just posted, about not letting our bodies have to cope with intense pain when there is relief out there. are there any other painkillers that you could have, either in conjuction with, or instead of, the ones you're worried about becoming addicted to?
 
I have been on Dilauded, and yes it is a strong drug. I had a teaching Gi specialist tell me that when you are being monitored there is little chance of addiction. I too hate painkillers and I have never (knock-on-wood) been addicted to any drug. Trust me I have been on lots, but take lower doses as much as possible. The doc says that if you start to get headaches from the painkiller, you switch, and therefore little chance of addiction. I agree with the Surgeon, if you are kept awake from pain, that means you are not healing and you could possibly delay your recovery time. Stress will aggrivate it too so relax and take what you need. Try not to worry ok. Big hugs.
 
Hiya, sorry you had to go through so much! I thought I just thought I too would like to share some of my story (in short as poss!!) as to complications after operations!

I had my tonsills out some years ago which did not turn out too good, I kept hemmorahging from where they were taken out and ended up staying in hospital to have both sides closed up for a few weeks.

I was put on a lot of antibiotics and they really upset my stomach. After 3 months I was sent home still getting throat infections and had many reaturn trips to the emergency room but they kept changing my tablets and sending me home. I then started bleeding from my rectum and very bad diarrohea which they said was just due to the antibiotics.

My mother kept bringing me to the emergency room as I was bleeding a lot up to 20 times a day but they sent me home once more and took me off all mdes. Then one night I was so bad she brought me back over and refused to bring me home.

They then did all the tests and decided I had stomach ulcers, they kept me in hospital for three smonth and treated me for ulcerative colitis with steroids and prednisilone. One night in hospital I was feeling the worst I have ever felt in my lifre I wentn to the toilet and my entire colon just burst out of mr.

I had developed toxic megacolon and nearly died They brought me to surgery immediately and removed my colon and gave me and illestomy! And I just went in for a
tonsillectmy!!!! :-(

Lots more followed such as pnemonia and major hair loss and two years later they I decided I wanted my rectum out (not entirely sure why, but I didnt want to go through the surgery to reconnect my anus cos it sounded horrible) so no test or anything they just took it out!

No I am 25 with the bag for the rest of my life and still dont know if I can have kids.

I feel like someone is to blame for all this or maybe it is just bad luck!
 
Hi, I'm so Sorry to hear about what you had to go through.
Your doc theory not to let your body be in too much pain I feel it is right.
I was on TPN and 1 to 2mg of Diluadid every 3 hours for the pain for 4 weeks, and dropped 45 lbs. Diluadid can be very addictive and it took shear will power to get off it... but it does the trick. try to take as little as possible, enough to take the edge off and avoid getting the 'euphoric rush' that Diluadid can induce since it is 10 times stronger than morphine. Also using a PCA pump can be helpfull since you deliver to yourself very small dosages.
I know you are a stong person and everything will be ok very soon.
best wishes
 
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