Hello everyone,
I was diagnosed when I was 15 in 1985. Admitedly, I don't think I've had such a rough time as some others, but things haven't been a breeze either.
Sometimes it's b*tch
Sometimes it's a breeze.
I only had one surgery and that was to see if the chrons would recess. It didn't work, so I've been on meds.
Originally, I was on prednizone. I had a discussion with a guy I knew who had chrons who referred me to a new DR, saying that this guy could get me off pred.
My issue was that I was going from 5mg to 0mg and flaring every time.
The new guy suggested I try 5,4,3,2,1,0,1,0 etc., I knew just sitting there in his office that it would work. And it did. I have only been on pred once since then and that was 1991.
Unfortunately, the pred had already done it's damage. I woke up one day to intense muscle spasms in my back. I think the pain was worse than any cramp I had ever had.
I went through a couple of DR's there who told me I had rheumatoid arthritis (extremely scary as my nannie had that) and wouldn't let me up the meds despite the fact that I was in pain. So I had my gastro get me a new one stat! The new guy sent me or an MRI, gave me valium for the spasms so that I could do some exercise, and then sent me for a bone density. I had an 80 year old spine and 60 year old hips. Thank you prednizone and old DR.
Since then, I started working out and that has become my medication in addition to 6MP. My bone density has gone up, still not enough to be normal, but better than it was!
While I love the weight gain and the fact that I never felt hungry that I had with pred, the side effects are just not worth it.
Let's add to the fact that I'm already very small boned. I look to menopause with mixed feelings. Glad because I may gain some weight and afraid because I may end up with broken and stooped bones before my time.
I'd also point out that the rheumatologist that I had ended up moving to the US, and then unfortunately having a stroke and dying
He did refer me to another great guy who put me on what is now deemed to be the proper amount of vit. D that folks in my situation should be taking. Apparently medical articles are only now bringing this to light. He was also Joe Weider's doctor.
That's my story and I'm sticking to it :voodoo: (my friend's daughter would love this icon)
I was diagnosed when I was 15 in 1985. Admitedly, I don't think I've had such a rough time as some others, but things haven't been a breeze either.
Sometimes it's b*tch
Sometimes it's a breeze.
I only had one surgery and that was to see if the chrons would recess. It didn't work, so I've been on meds.
Originally, I was on prednizone. I had a discussion with a guy I knew who had chrons who referred me to a new DR, saying that this guy could get me off pred.
My issue was that I was going from 5mg to 0mg and flaring every time.
The new guy suggested I try 5,4,3,2,1,0,1,0 etc., I knew just sitting there in his office that it would work. And it did. I have only been on pred once since then and that was 1991.
Unfortunately, the pred had already done it's damage. I woke up one day to intense muscle spasms in my back. I think the pain was worse than any cramp I had ever had.
I went through a couple of DR's there who told me I had rheumatoid arthritis (extremely scary as my nannie had that) and wouldn't let me up the meds despite the fact that I was in pain. So I had my gastro get me a new one stat! The new guy sent me or an MRI, gave me valium for the spasms so that I could do some exercise, and then sent me for a bone density. I had an 80 year old spine and 60 year old hips. Thank you prednizone and old DR.
Since then, I started working out and that has become my medication in addition to 6MP. My bone density has gone up, still not enough to be normal, but better than it was!
While I love the weight gain and the fact that I never felt hungry that I had with pred, the side effects are just not worth it.
Let's add to the fact that I'm already very small boned. I look to menopause with mixed feelings. Glad because I may gain some weight and afraid because I may end up with broken and stooped bones before my time.
I'd also point out that the rheumatologist that I had ended up moving to the US, and then unfortunately having a stroke and dying
He did refer me to another great guy who put me on what is now deemed to be the proper amount of vit. D that folks in my situation should be taking. Apparently medical articles are only now bringing this to light. He was also Joe Weider's doctor.That's my story and I'm sticking to it :voodoo: (my friend's daughter would love this icon)
