I've just found this forum and never knew there were so many people with Crohn's and how some of the stories are so similar to mine (code brown!!). 
I was diagnosed with C 12 1/2 years ago when I was just 17; it took my GP ages to refer me to a consultant by which time I was 7 stone (45kg) and had inflammation and sores from my mouth to my butt. The weight loss totally ruined my self-consciousness at school and uni, something I still suffer from today.
Since diagnosis I've been very up and down and usually control it with the occasional course if Prednisone, although I have tried Aziothiaprine and 6mp but they gave me nasty side effects. The biggest change for me was when I changed my diet to exclude almost all wheat. It does help and have much more energy as a result but it’s hard not to live totally wheat free.
In October I had a flare up and went back on a course of pred but it never really worked and by December I found myself in so much pain in my abdomen that I couldn't stand up or walk straight. I went to see my GP and she sent me directly to hospital with suspected appendicitis. After a long wait, x-ray, CT and a night’s stay; they identified my ileum was very inflamed and I've been on Budesonide ever since.
I had a colonoscopy on Saturday and they could only get 15cm in before encountering an impassable stricture and so they never even got to take a look at my ileum. The stricture opening was described as small as a pin. How can this be if I’m still able to go to the toilet? I've got a barium meal on 5th February too.
Basically I'm now worried what’s going happen next. Is surgery my only option? Any advice would be greatly appreciated.
Thanks for reading
Max
I was diagnosed with C 12 1/2 years ago when I was just 17; it took my GP ages to refer me to a consultant by which time I was 7 stone (45kg) and had inflammation and sores from my mouth to my butt. The weight loss totally ruined my self-consciousness at school and uni, something I still suffer from today.
Since diagnosis I've been very up and down and usually control it with the occasional course if Prednisone, although I have tried Aziothiaprine and 6mp but they gave me nasty side effects. The biggest change for me was when I changed my diet to exclude almost all wheat. It does help and have much more energy as a result but it’s hard not to live totally wheat free.
In October I had a flare up and went back on a course of pred but it never really worked and by December I found myself in so much pain in my abdomen that I couldn't stand up or walk straight. I went to see my GP and she sent me directly to hospital with suspected appendicitis. After a long wait, x-ray, CT and a night’s stay; they identified my ileum was very inflamed and I've been on Budesonide ever since.
I had a colonoscopy on Saturday and they could only get 15cm in before encountering an impassable stricture and so they never even got to take a look at my ileum. The stricture opening was described as small as a pin. How can this be if I’m still able to go to the toilet? I've got a barium meal on 5th February too.
Basically I'm now worried what’s going happen next. Is surgery my only option? Any advice would be greatly appreciated.
Thanks for reading
Max
