Hello, everyone! You folks are amazing. I’ve been reading this forum for a while – figured it was time to say “hello” 
I’m a 27 year old female with a wonderful husband and here is (drum-roll, please):
My (abbreviated) Crohnsology:
1990’s: first major flare-up when I was 8 yrs old. It took a long time to be diagnosed. Was a pretty sick kid – except for all the times on pred when I was an ugly sick kid :ylol2: My mom deserves a shout out for being my health-care advocate and greatest supporter – thanks, ma!
2000-something: 6MP, I’m so glad my mom found you and brought you to my GI’s attention. Other than the fatigue and brain-fog, you’ve ok.
Sept ’09: colonoscopy to confirm Crohn’s flare… grrrrr – I had been symptom and med free for 3 years! Hellooooo, pred. I didn’t really miss you, but as you stopped my bloody diarrhea with remarkable speed (as in, virtually the next day) at least you have one redeeming factor. And 6MP… hey, you’d better join the party, too.
Nov ’09: what are these &*^%$ calf cramps, spiky fevers, and night sweats all about?
Dec ’09: ah, blood clots. Leg DVT and bilateral PE to be precise. And let’s throw pericarditis (fluid around the heart) into the mix just to be contrary, ok?
Present day: Warfarin (oral anticoagulant I take because of the clots) is the pits. My INR (blood test to measure the “thickness/thinness” of my blood) is not regular yet. I’ve been really interested in the recent treads about IBD and clots – my GI and Rheumy are trying to figure out what caused mine.
And I’m really hoping I can taper from the pred soon – I’ve been on it for five months now and this manically-fatigued-and-hairy-lipped stuff is getting old. (Back in Dec, just as I was supposed to be tapering, I had to go off the 6mp because the docs didn’t know what was causing my fevers. I didn’t get to start the 6mp again until Jan. So the pred is keeping my symptoms at bay while I wait for the 6mp to kick in again!)
I really want to thank you all – I never knew it was possible to laugh so much about this &^$#* IBD!!! I’m dealing with my first flare-up since getting married, and your humor is really helping my husband and I to laugh together!
Sabrina
----------------
IBD since 1990 (currently diagnosed as Crohn’s)
Blood clots 12/2009 (DVT and bilateral PE)
Medicines:
Prednisone: 20mg/day (oh please let me start tapering soon!)
6MP: 75mg/day
Trazodone: 50mg/night (because pred messes with my sleep)
Warfarin: 12.5mg/day (anticoagulant - because of blood clots)
Ethel: “So, is everything okey-dokey?” Lucy: “No, it’s inky-stinky” ~ from an old I Love Lucy episode.
I’m a 27 year old female with a wonderful husband and here is (drum-roll, please):My (abbreviated) Crohnsology:
1990’s: first major flare-up when I was 8 yrs old. It took a long time to be diagnosed. Was a pretty sick kid – except for all the times on pred when I was an ugly sick kid :ylol2: My mom deserves a shout out for being my health-care advocate and greatest supporter – thanks, ma!
2000-something: 6MP, I’m so glad my mom found you and brought you to my GI’s attention. Other than the fatigue and brain-fog, you’ve ok.
Sept ’09: colonoscopy to confirm Crohn’s flare… grrrrr – I had been symptom and med free for 3 years! Hellooooo, pred. I didn’t really miss you, but as you stopped my bloody diarrhea with remarkable speed (as in, virtually the next day) at least you have one redeeming factor. And 6MP… hey, you’d better join the party, too.
Nov ’09: what are these &*^%$ calf cramps, spiky fevers, and night sweats all about?
Dec ’09: ah, blood clots. Leg DVT and bilateral PE to be precise. And let’s throw pericarditis (fluid around the heart) into the mix just to be contrary, ok?
Present day: Warfarin (oral anticoagulant I take because of the clots) is the pits. My INR (blood test to measure the “thickness/thinness” of my blood) is not regular yet. I’ve been really interested in the recent treads about IBD and clots – my GI and Rheumy are trying to figure out what caused mine.
And I’m really hoping I can taper from the pred soon – I’ve been on it for five months now and this manically-fatigued-and-hairy-lipped stuff is getting old. (Back in Dec, just as I was supposed to be tapering, I had to go off the 6mp because the docs didn’t know what was causing my fevers. I didn’t get to start the 6mp again until Jan. So the pred is keeping my symptoms at bay while I wait for the 6mp to kick in again!)
I really want to thank you all – I never knew it was possible to laugh so much about this &^$#* IBD!!! I’m dealing with my first flare-up since getting married, and your humor is really helping my husband and I to laugh together!
Sabrina
----------------
IBD since 1990 (currently diagnosed as Crohn’s)
Blood clots 12/2009 (DVT and bilateral PE)
Medicines:
Prednisone: 20mg/day (oh please let me start tapering soon!)
6MP: 75mg/day
Trazodone: 50mg/night (because pred messes with my sleep)
Warfarin: 12.5mg/day (anticoagulant - because of blood clots)
Ethel: “So, is everything okey-dokey?” Lucy: “No, it’s inky-stinky” ~ from an old I Love Lucy episode.
