Hello from south Alabama

[ILUVBUDWSR]

I thought I would introduce myself. I'll make it short and sweet. I was diagnosed on my 18th birthday (i'm now 30) with Crohns disease. I lost a lot of weight while going through the ordeal but then my doctor put me on prednisone and I gained a few pounds. I was in remission for years up until 2 or 3 years ago when I wasn't happy in my married life. My wife got to the point where she would cuss me for every little thing I did. She would'nt let me have any sick days if I was'nt feeling well but I still loved her. I hope that one day I meet a nice lady who is more understanding. I am one of the people that have flare-ups when I am under a great deal of stress. My GI doctor then put me on Humira and I did real well on it except for the side effects. While on Humira my joints began to get inflamed and I was in a lot of pain. My doctors all told me it was arthoritis but I knew it wasn't all along but a side effect from the drug. I stopped taking it without my doctors consent because nobody would listen to me and am doing just fine without any med's and the joint pain is all but gone at this point. However, I am like a lot of people with Crohns. I have my good days and my bad days. Some days I can eat something and be fine then the very next day eat the exact same thing and feel like death warmed over. Fruits and vegetables are a big no-no for me as well.

I lead a very normal life and try not to let Crohns lead it for me. I have a very demanding work schedule being a locomotive engineer for a major railroad company. Last year my wife decided she wasn't happy in our marriage and decided to just up and leave one day so I lost everything I worked for in the last 10 years. I lost my house,cars,and her. She left because I wasn't home much due to work (so she says). I am 30 years old and am having to start my life over again and so far through all the stress my Crohns hasn't gave me much trouble which I am grateful for because my doctor is a real butt. My last visit he told me that I didn't need to come to my follow-ups anymore and we could do most of it over the phone. I didn't like that very much so I am in the process of looking for a new GI doctor.

I hope to hear from some of you and if anyone ever has a question to ask me feel free. I have been poked and prodded by the best of them like most other people on here. Also , I have been on all the medicines like Asacol,6MP,Colozol,Pentasa...ect...ect....ect..I have had 1 surgery due to a side effect of Crohns.

P.S. : I Dont drink!...lol The username is more for a chuckle.

 

[misscris]

:welcome:

 

[Delahar]

I just got diagnosed with Crohn`s in March.
Lost a lotta weight.Muscle which took years to build melted away in a matter of months.
I`m going into remission and starting to gain a little weight back.
I know there`s nothing you can do to prevent flare-ups,but how do I improve my chances of staying sympton-free other than avoiding stress?

 

[ILUVBUDWSR]

Well what were you doing all those years you stayed in remission? I would go back to doing that. Think about around the time you had a flare up and if you were going through any life changes or if something in your life was gving you problems and try to avoid it.

Your doctor will probly try and pump you full of all kinds of crap and most may not even work for you but there will come a day you will be back in remission but for now try and do what the doc says. For me the immune suppresants were always the worst because if you got a cold it would turn into something worse and you can never seem to kick a flu bug or the like while taking those.

 

[fenway1971]

Hi Bud -
Welcome and glad you have joined and shared your story. Good people on here and everyone's very helpful. You definitely should get a more understanding doc.

That woman is out there for you. Keep looking. You deserve better.

 

[Guestly]

Keep Your Chin Up Bud!

Hey Bud,

You know you are still a young man, (albeit a very wise one) so you have lots of time to rebuild your life and meet the right woman who will understand and look after you. Beleive me there are plenty out there - I have so many girlfriends in their thirties who are still seeking Mr Right...

I know it's hard, I just got made redundant this year and I have lost so much, not to mention confidence (and continence :lol: ), and I am in the process of having to sell my family home. I am gutted because it was all I ever wanted for my kids, but as I look at it, it's just bricks and mortar, and the bills were causing me stress so I'm best off free of it.

You have had a really rough time, but you are wiser now for it - you need to look after YOU now...

Lishyloo x