Hello I'm knew and need advice

[karisue]

I had a right hemi-colectomy oct 07 and from Jan till July last year, was in and out
of hospital. Its turns out that I have diverticular disease in the left side also. From August up until 4 weeks ago I was back in hospital for 6 days because of infection and as usual ended up on iv antibiotics. I have been really well 6mnths prior to this. My bloods show my B12 levels and blood count are fine, but I keep feeling so tired, I went back to work week later, but felt so tired I took 4 days of my holiday just to rest. I feel so tired and can not understand why if everything is ok at the moment, although today I have been backward and forward to the loo.

I have only got to spend a social evening with friends and the following day I'm so exhausted. I have been taking floradix, a herbal pick me up, packed with iron and vitamins, it helps to get me through, but am so fed up feeling so tried.

After being so well I tend to forget what is like to be bad, and its horrible every time. I find it a chore to go out with friends and see family even to go food shopping, I look at the day or week ahead and think "Oh god, I just cant be bothered" and have to make myself do things. Does anyone else ever experience this or is it just me.

 

[kello82]

hey karisue and welcome!
i feel where youre coming from with the fatigue. im currently in that state too-cant even make it out to the store.
you said that your b12 is fine, did they check your iron or hemoglobin? anemia can make you tired like the way youre describing.
my only advice is take it one day at a time. dont look at the whole week! youll just worry yourself to death (as we allare gulity of though), but it is good not to. and take care of yourself. rest when you know you need it
glad you found us here lots of great advice and friends to be made

 

[karisue]

Ah thanks, I thought it was just me, over the last 12 hours i'm hurting a bit on my left side again, its a dim ache like a tooth ache. I get so fed up with it, and try to brush it aside and carry on till I cant stand it. Yea they checked for anemia but am okay. I do feel that family and friends demand a lot and think oh my god I cant cope with them but carry on regardless even if I'm not good. ~They get fed up. Its like my husbands family said oh god not again your always ill, they dont
understand, so I try and keep it to myself.

 

[mRae85]

first of all :welcome: glad to get to meet you , so sorry it has to be under the circumstance but we all share in it and like kello said, alot of good friends are to be made here, friends that you would never have the chance to meet under any other circumstance I suppose, so there is one good thing that comes from all of this I guess ( I always try my best to look for a good thing and believe me there aren't many of them that come with being sick all the time as I am sure you would agree) Kello took the words from me though, this is a wonderful place and since finding it, Id say not yet a week ago, I love it here. We all understand what you are going though right now, and we always will.

*hugz* you've had a really ruff time I'd say, once again I am glad that you found us. I know all too well how it seems no matter what everyone around you seems to expect waaaay too much out of you. I also understand that you have to feel like hiding it from everyone around you, it is sooo hard to open up to people in your everyday life and I know I've heard that "omg your sick again" phrase come out of almost everyone I know I find it hard to tell anyone anything anymore, I either feel like I am complaining or alot of times just get embarressed I guess. We all know the symptoms are not exactly good dinner conversations or pretty and "polite" things to talk about. Alot of us here dont really get out much, it comes with being so sick, take advantage of the times that you do though. Sometimes simple things and things I honestly wouldn't be able to not do like just making my way to the shower or checking the mail seem to be a chor, let alone shopping for food or going out with friends and actually having a GOOD time.

Just know that you can ALWAYS open up to us and we will never complain that you complain. We scream, cry and LAUGH around here. It really does a person good to know that they are not alone, and from now on, you'll never be alone again

 

[mRae85]

Also, I dont think I have ever heard of diverticular disease , could you maybe fill me in on it a little, a brief discription of it. I promiss I will be googling it just to get a better picture, but if it is anything at all like Crohns then the symptoms will vary for miles so I'd like to know about it personally from you. Around here I have found that there are sooo many different ways we are effected by the Crohns, nothing seems to be a "normal" symptom.

Also I might add that something I found to be really fun on this forum site are the polls, I just made my first one so it's not too far from my mind and if you are looking for something to do on here that is the spot. Some are Crohns related and others are not, I feel in love with that spot when I first got here and now I'm going to try to make some more haha. It is really niftty I think to just see how I fit it and / or differ from the other people on here, alot of nice ones in there I still want to do too. Just thought I'd mention it to let ya know that as I said, we also LAUGH alot on here as well. This is a great place for advise, facts, support, and laughter

 

[karisue]

Its so nice to have support, but yes like you I find it a chore to even have a shower etc, and make myself do it.

Diverticular disease is all part of bowel disease, little pockets on the lining of the bowel can get infected, and bleed etc, but told its all connected.

With reading your story and about you, I no I rarely go out and last weekend was the first in a very long time.

 

[kello82]

haha agreed-showering is a chore. ive been resorting to baths for the past while, and i just wash my hair underwater. and not even every day at that
ugh feel like a grossie but, there are days when the energy to shampoo is just not around.