Hello, My name is Jo 28 and so tired of this!

[PorotoMeansBean]

hello everyone, my name is Jo, im 28, and i have Crohn's , i had enough money to get diagnosed ,but i cant afford a treatment, or meds. i can tolerate pain, since i been with this problem for so many years now, but is not easy, sometimes is hard to take it all. i dont want people to feel sorry for me, i just want people to understand and feel comfortable talking to me about this illness, but no body seems to be ok with it. i feel alone . just me and my disease. i havent left my house in the past 4 months , due to being sick. i went from being 250 pounds to 170 , and im not healthy. but in reality, i have an amazing husband who takes care of me and sympathizes with me, but he has to hear me and see me everyday get sick, i know he worries about it. i have a 8 yr old daughter who is very supportive and gives me tons of kisses everyday. i shouldnt ask for anything else, but i do would like to be able to talk to someone else about this, someone who understands and someone who is going thru the same troubles, i guess is why i decided to join this forum. i really suck at forums and they confuse the crap out of me <--crap get it ? i hope i make some friends and we can share our pains and support <3 HELLO EVERYONE!:kiss:

 

[Astra]

Hiya Jo
and welcome

There are tons of Crohnie friends here for you!
We understand how you feel and are here to support you.
Lotsa luv
Joan xxx

 

[723crossroads]

hello everyone, my name is Jo, im 28, and i have Crohn's , i had enough money to get diagnosed ,but i cant afford a treatment, or meds. i can tolerate pain, since i been with this problem for so many years now, but is not easy, sometimes is hard to take it all. i dont want people to feel sorry for me, i just want people to understand and feel comfortable talking to me about this illness, but no body seems to be ok with it. i feel alone . just me and my disease. i havent left my house in the past 4 months , due to being sick. i went from being 250 pounds to 170 , and im not healthy. but in reality, i have an amazing husband who takes care of me and sympathizes with me, but he has to hear me and see me everyday get sick, i know he worries about it. i have a 8 yr old daughter who is very supportive and gives me tons of kisses everyday. i shouldnt ask for anything else, but i do would like to be able to talk to someone else about this, someone who understands and someone who is going thru the same troubles, i guess is why i decided to join this forum. i really suck at forums and they confuse the crap out of me <--crap get it ? i hope i make some friends and we can share our pains and support <3 HELLO EVERYONE!:kiss:

Hello Jo, My name is Teresa. I have crohn's and was diagnosed last Aug. Was put on asacol and it did nothing. Then entocort for awhile and it put me into remission. I did well for about 6 months or so with drinking aloe vera juice 100% organic and inner gel only (Fruit of the earth brand) from Walmart. Also took probiotics. All of a sudden the runs came back. So I called my gastro and he called me in a prescription for Cholestyramine. It is a packet of orange flavored powder you mix in water and it is kind of gritty. I drink it once a day and it has cured my runs. If I don't take it they return. I don't think it is very expensive, so you could ask your Dr. if they could be so kind as to just call it in for you. Or maybe take payments on one visit. The drug was originally made to pull cholesteral out of people's bodie's. Hence the name. The brandname is Questran. If you want to see info about it, go to healingwell.com and type in cholestyramine for diarrhea. There are many success stories on their forum. Read about it. I hope this helps Jo. Welcome to our forum.

 

[Swirl]

Hello!!!
Try being inside for 6 months!! Almost there but you don't have too. Ive been working for a few months now after not being able to for 2 years. It gets better, Stuff have been keeping me well. PM anybody!
Texas has all that sunlight, enjoy it!

 

[PorotoMeansBean]

thank you all for the hellos :} it gives me a great piece of mind, that im not alone !

 

[723crossroads]

thank you all for the hellos :} it gives me a great piece of mind, that im not alone !

Let me know how you are doing!!

 

[David]

Hi Jo and welcome to the community

Is there any state or federal assistance you can get to go on treatments? There are also some diets and low-cost treatment options that can work pretty darn well for many if you're willing to do a little work to get them. Let me know if you're interested and I'll be happy to elaborate. Otherwise, know I'm sending supportive vibes your way if that's all you're looking for

*hugs*

 

[siwrlygirl]

Hi Jo! Hope you are feeling okay today. I am new to the forum as well and already feel a great sense of friendship and support from everyone!

 

[Panda33]

I am new too, both to this forum and diagnosis. I know how hard it is to function and cope with this disease. And the learning curve is crazy.
Try to keep you head up and focus on the blessings in front of you...my children give me strength and keep me going.
Take care of yourself.

 

[Tenacity]

Welcome to the forum

The only advice I would like to send your way is to contact the Texas Risk Pool insurance plan. It is a state medical insurance plan for people with specific illnesses who cannot get insurance anywhere else. I had a look at the list of illnesses it covers, and crohn's is one of them. They will not discriminate against you for having a pre-existing condition and you will be able to have health insurance like everyone else.

Also, the only med that comes to mind that is extremely inexpensive is LDN. Why don't you take a look at our LDN section - you can find it in the treatment forum. I think it costs like $1 a tablet, and has hardly no side effects.

 

[723crossroads]

I am new too, both to this forum and diagnosis. I know how hard it is to function and cope with this disease. And the learning curve is crazy.
Try to keep you head up and focus on the blessings in front of you...my children give me strength and keep me going.
Take care of yourself.

Welcome Panda to our forum. Ever need an ear to bend, send me a message.
I will try to help! Blessings to you and your children!!!:welcome:

 

[723crossroads]

I am new too, both to this forum and diagnosis. I know how hard it is to function and cope with this disease. And the learning curve is crazy.
Try to keep you head up and focus on the blessings in front of you...my children give me strength and keep me going.
Take care of yourself.

:welcome: