Hello! Newly diagnosed.

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
May 8, 2016
Messages
16
I'm fat, female, and fifty; I don't fit my image of a Crohn's sufferer at all!

But here I am. My most dramatic and recent flare developed on an Educational Tour of Europe. I assumed I had "eaten something bad." I figured my system would purge the offending food, and I would return to my normal. That never happened.

I spent my 50th birthday in a bar in a tourist village in Italy, doubled over in pain, sipping ginger ale so that I'd have access to the bathroom. Fortunately, there were other leaders on the tour and the teens were allowed to travel in groups of 3 or more during down/nonstructured time.

I am still traumatized by the plane ride home from Italy to Texas with unrelenting cramping, explosive you-know-what, and what had progressed to dehydration.

Still, I thought I'd go home, sleep in my own bed, and be better. But I got home, put my bags down, went to the bathroom deposit a bowl of blood. Went to the ER, got a CT scan which revealed an ENTIRE colon of inflammation. A few days later, a colonoscopy with 3 biopsies revealed IBD: Crohns. I was in the hospital for a week. My dehydration was severe, my veins disappeared. IV and blood draws were painful and bruising.

I believe my first flare was actually 22 years ago, when I was pregnant with my oldest. I think because I was female, 1st pregnancy, and my report of symptoms were dismissed and disregarded.

Now that I know, so much makes sense. I "knew" for years I had IBS. Recently developed a very "noisy" belly. Got diagnosed and treated for GERD in the last year. Migraines for the first time in the last 5 years. My daughter (19) had an autoimmune - juvenile rheumatoid arthritis (diagnosed when she was 10.)

I have an upper endoscopy scheduled for Wednesday. My GI is concerned that "my" Crohns is pervasive throughout my digestive track. It was in all 3 biopsies and since my hospital discharge, I have developed external symptoms in my nether region.
 
Welcome to the forum. Please know that you have lots of support here. Visit whenever you want.
 
Hello and welcome.You'd be surprised just how many people there are who fall into your category.Granted there are more sufferers who struggle to keep, or put, weight on,but there are many who class themselves as overweight.It must have been VERY stressful to be taken ill on your trip to Europe,but at least now you're on the right road to getting support and advice.There will be others along soon who can relate to your story.Feel better soon.
 
Welcome, sorry you had to find us. You said: since my hospital discharge, I have developed external symptoms in my nether region. Is your doctor aware of this? You don't say what symptoms, if it sounds like a fistula, you should let your doctor know. What medications are you on currently?
 
Welcome, sorry you had to find us. You said: since my hospital discharge, I have developed external symptoms in my nether region. Is your doctor aware of this? You don't say what symptoms, if it sounds like a fistula, you should let your doctor know. What medications are you on currently?

1) Yes. I originally saw a NP at my PCP about the issue, but he was baffled. In the absence of Crohns and recent history, I'd assume it was a bartholin cyst. But it's not. It's bigger, painful, raw and bleeds. I had a follow up with my GI on Thursday, and he is certain it is related to the Crohns. Put me on a different antibiotic, took me off the one the NP put me on.

2) Meds
  • Metrodnidazole 500 mg, (to address the external issue)
  • Lialda - 1.2, 4 tabs a day
  • Budesconide, 3 mg, 1 x day
  • Prednisone (on a taper), used to address the radical inflammation
  • Dicyclomine hydrochloride, 20 mg, 1 tab or PRN
  • omeprazole 40 mg, once a day
Meds, before diagnosis:

  • Wellbutrin (was having passive suicidal thoughts)
  • niacin (low good cholesterol)
  • levothyroxine (thyroid)
Also: Melatonin, Vit e, 5HTP, was chromium picolate.

To add to me intro, on the tour, we walked a lot. I have continuing pain from a near fatal car accident (and from being overweight) and I was taking NSAIDS every night. I think that is what triggered the dramatic flare. I've had symptoms of severe IBS (I thought) for years prior to this.
 
That sounds more like an abscess. They can take a while to heal. Usually they are drained, but you said it's bleeding already. Did the doctor mention sitz baths, that can help with the pain. Prednisone should help to alleviate symptoms, but comes with some side effects. Hope you start feeling better soon.
 
Back
Top